One of the hardest parts of caregiving for me is that I don't mentally connect with my mother. I don't know how much is me and how much is her, but I've never been able to get a relationship going with her. Sometimes I think that maybe I'm going to spend time and talk with her or maybe watch some TV together. It never works out that way. Pretty soon I pull away and go about my tasks. She doesn't seem to want me around and is not very nice to talk to.
Sometimes she'll be doing things and I ask her if she wants some help. She says no. She doesn't want anyone to touch her when she walks. If I get too close to her, she stops moving and says I'm in the way. She doesn't see well, so likes to have a big area around her walker to navigate.
I have a feeling that most of this isn't my fault. It does make caregiving empty feeling, though. Mostly I feel like a visitor in the house that does all the tasks of keeping the house together. I don't feel like a daughter. I think caregiving would be a lot more rewarding if I could find a way to connect with my mother.
I moved down to Florida when my mother started needing help. I thought she should have a family member close by in case of an emergency (my two sisters were two hours away from Mom but there had never been a close relationship with either one) and I wanted to take over those household tasks that were unsafe for her with her balance problems, like changing the batteries in the smoke detectors. I quickly learned that my caregiving plan was not her caregiving plan. Her attitude was "Good, I've got you here, now I want you to do A, B, C, X, Y and Z." Including some stuff she could do herself, stuff she could figure out how to do herself, stuff she didn't really need, etc. etc. For example, she wanted me to come by daily to take out her garbage and walk her dog, which were things I never contemplated doing or offered to do. That's the key point. I wanted to do what I offered to do out of the goodness of my heart. I didn't want to be seen as an unpaid service provider, at her beck and call for whatever she wanted.
That's the first part. The rest of it is that, due to our close friendship, my mother knew that I had plans for my own retirement, and that I was the last person who'd want to spend years of it stuck in one place (a place where I hate the climate, BTW) doing somebody else's chores. She knows I feel oppressed by this arrangement, she knows I feels trapped. She acknowledges that from time to time, long enough to wish out loud that I felt differently.
So the silence between us is dense and heavy, fraught with unsaid things, unexpressed resentments and hurts. It hurts her that our friendly relationship is gone. But not enough to release me from the prison of caregiving. She thinks if she ignores my feelings they will go away (that's a hold-out from old times - she always thought that way about me). At this point I hate to spend time with her, and wish every day that I could just pick up and leave.
I know that we can become their arms and legs for them. Some people think I should cook my mother's breakfast and do other things for her that she does for herself. It would actually be easy to do these things, but I don't want her to stop doing what she can. These tasks are the things that keep her up and moving.
"Things in her childhood family and her marriage were idealized and perfect. Things with her own children were distant and cold. My father didn't have anything to do with the family. He and my mother may have been close, but they never showed any affection to each other. My mother always thought that hugging and things like that should be left to the bedroom."
And there you have it - they weren't emotional people, they were distant, and that's your mother's nature. Unfortunately, it won't change.
In your next post, I want to hear about your plans for a new life, FOR YOU! You go, Girl, GO! Use that compassion and insightful analysis you have to connect with others and get some joy out of life before it's too late.
I am finding it difficult to stay positive when there always seems to be a black cloud looming. I try to have compassion, but honestly...I am weary of all her suffering. Placing her in a nursing home would fill my sister and I with so much guilt and I know my mom would never forgive us.
I am in transition myself with employment, and returned to school last year to better my career skills. It has been a huge struggle. I recently turned fifty and am hungry to really live fully, but most days it feels like my life has basically ended.
I pray everyday that I will be released from this confinement.
I don't know what I'll do if my mother lives into her nineties. I can't even contemplate the thought. It frightens me also to think that a person in a nursing home still needs a "helper" waiting in attendance on them. But my mother is the type who always wanted things done for her and I can see myself right there holding the water glass to her lips, spreading the blanket over her and folding it up again. I'm just praying it doesn't last for years on end because you can't really have a life and be doing that, and how do you maintain your spirits, and your enthusiasm for life that way?
I'm glad you found this site and we can all commiserate with each other.
The other thing I recognize (at least in myself) is the lack of desire to have my mother show affection toward me. I don't feel close to her at all. In my case, since I am sole live-in caregiver, I am subject to alot of negative behavior toward me. She can absolutely say nasty things about me to my face and loudly behind my back but then she turns and tries to say how much she's 'grateful for me'. It's a kind of emotional abuse and I don't feel warm fuzzies toward her. So I've developed a kind of distant coldness toward her. My shrink tells me I am 'objectifying' my mother. I am.
Anyway, nice to hear people similarly experiencing these things---these emotions.
Jessie I wonder if your mother never bonded with her parents and that is why she is unable to bond with you.
As I get older it becomes harder and harder both mentally and physically to get things done and many jobs get started but sit waiting to be finished. it is not because I am not interested but literally don't have the energy or strength.
i really do enjoy being on this site and talking to all my friends. Obviosley caregivers don't want their loved ones on the same site but I wonder if something like this where people being cared for could share their own thoughts and feelings.
Maybe Jessie's mom would write " I wish Jessie would not talk so much, it is really annoying when she shouts at me. Doesn't she know I just love these old songs on Lawrence Welk. Doesn't she know I just want to sit here and watch TV and not walk that stupid dog. it's cold outside and they go too fast for me. makes me feel stupid having to use that walker where everyone can see me" Someone else would write back "I know what you mean jessie's Mom my daughter wants me to go to the senior center on chair exercise day. if i wanted to sit a and squeeze a stupid ball I could do it at home in my comfy recliner not a stupid hard plastic chair in case I pee myself. I can tell you if they make me dance with Mr garlic breath again I will more than pee myself, and the bathroom....well I won't go there because after Mrs S has been in there you can tell what she had for dinner last night. Then there is the knitting group. I don't need triple zero needles to knit a dishcloth, Anyway when I get it home my daughter tells me how much she likes then uses it to wipe that stupid dog's feet. new did have dogs in the house anyway. Give me a herd on Angus and I'm happy. How I miss the farm"
Sorry guys I got on a roll and probably not much comfort for Jessie. I feel as though I am in a kind of no man's land between youth and useless old age.
Mirror mirror on the wall am I really that old?
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