I've recently moved back to my hometown in Florida to be closer to my dad, who is in a SNF (Skilled Nursing Facility). The reasons for this are several: 1) my sister would not move back and was threatening to move him to where she lives in the PNW 2) I am not very career-focused at the moment and 3) I don't have a lot holding me elsewhere.
The past six months have been a gradual process in "moving" back, but mainly I have been here with him. He has had several scary health events taking precedence over all else, and there were the holidays, plus a crisis with his twin brother that I attended to, and now things are getting back to normal (?) .
My problem is that my sister wants to retain control over him and his care entirely. For instance, the nursing team and therapy are calling her, when I am right down the road. Then I go in to see my dad and I'm not sure who the nurses are or what is going on. I have been trying to discuss this with her since last summer and she keeps deflecting my requests - it's never the right time.
Today we had a care meeting that she basically controlled from the phone, while I am sitting there feeling useless. Afterwards I asked her to talk with me about it again, but she deflected, again.
I finally called and tried to say that all I was asking for is to tell the staff to call me for daily stuff - he won't take his pills, was aggressive, etc. She can keep tracking all of the meds and such and dealing with the administrators, etc. She had to think about it and "might" be able to make a decision this weekend (it's been six months already...)
For me, it feels horrible to not be able to really care for my dad - I have to go through her in a way. But I know she has some issues with my dad's decline. It feels personal, like she is saying I am not responsible enough, but I think it is more about her and knowing she is going to lose him. So that is all the emotional stuff.
In the meantime, my dad is the one who is losing out due to our bickering. To me it just does NOT seem like such a big deal - during a crisis last fall I had the "daily reins" and all was just fine.
I don't want to confuse the SNF staff and put them in between us... I want to provide a united front, and of course I can't upset my dad with any of this.
Well, thank you. Just in writing this I see history repeating and have an idea of how to handle it.
Thanks for listening.
Try to bury all this emotional stuff with your sister. This isn't about her or about you. It is about your father. What does he want?
Find out.
Oh yes, family dynamics are really complex, and yes, I have spent a lot of time thinking about how I can do my best to live within our tribe. I get it figured it out, then slip back into the pattern, then have a meltdown (see above), and then I get back on track. Yes, I love my dad and sister, despite the dynamics. I don't expect my dad to be aware of how he could have done differently by us.
A lot of my pain comes from my sister not being aware of the dynamics e.g. dysfunction. I want her to be my sister - I need her to be my sister. And yes, we do love all love each other.
Sibling relationships are hard. If she has been primary caregiver for some time, and you have been disengaged, she may resent your riding in and taking over. She isn’t seeing it as help but an interference.
Seek help from others by joining local caregiver support group at dads facility. You’ll learn a lot.
Shane, we are not trustful of the facility or any facility, and have learned that we need to be vigilant in advocating for him e.g. keeping on top of the staff. She does have a lot on her plate, as she has a job and I don't right now. But it's not really about that, I'm seeing.
Countrymouse, I think you are right on that she doesn't trust me, or, at least, she does not trust me to care and love her dad as much as she does. Yes, not our dad, but her dad. Since she was a young kid she has taken responsibility for his happiness - rather - he put her in that role when my mother divorced him. It's called parentification and is not healthy - it is sometimes referred to as emotional incest. She doesn't see it and maybe never will.
I could write a book on it all, but I'll spare you all here. That is the way things are, and I've gotten emotionally sucked back into the dysfunction and the way I want them to be. Now that I realize what has happened, I can deal with it better. This discussion has really helped me, so thank you.
You can't choose her attitude. You can talk with the SNF staff. I'm wondering if you are on the list of people with access to your father's medical information? (That's a HIPPA issue, not a POA issue.) If he's legally competent to list you as someone who gets access to his info, then make sure the SNF knows that. If he hasn't listed you, get him to do so.
Do what you can, but just know the family dynamic is not going to change.
What really set me off is that he was recently in the hospital due to pain from a fall, and delirium. He was deemed over-medicated and said that probably contributed to the fall. The SNF Dr had recently doubled his anti-depressant and added Buspar, plus his Exelon patches were not being removed and that was building up in his system. The Dr in the hospital discussed that with both of us and suggested the meds be cut back, which we agreed to. He started to improve and was transferred back to the SNF. I trusted my sister, as I always have, to make sure all was in order when he transferred back to the SNF (I was out of town taking care of my uncle). Since he has been back he has slipped into delirium again - even our caregiver remarked that he's just not himself.
I have trusted her, and think I still do, to do what is best, but she has a habit of resisting in any area, no matter how petty, where I have a bit more experience. Depression is not petty, and is something I share with my dad that she knows little about, luckily for her. A few years ago she unilaterally tried to take him off anti-depressants and, though I was annoyed when I found out, I was not too mad, and made it clear that I wanted to be consulted in any psych issues with him.
Back to a few days ago, she says "Oh, well he is still on the higher doses of psych meds - they weren't changed on the discharge paperwork" She said a few more things that led me to believe she'd known this for some time, and that she didn't tell me because "things seemed to be going OK."
I guess she decided to tell me right before the care meeting, in case it came up - she knew I'd be surprised. So after the care meeting I texted her about which one of us was going to deal with the staff, and said I was uncomfortable and wanted to discuss. She texted back "Who is handling what is a topic not for text and for another day". That was what sent me through the roof - her tone and dismissal of me.
We had a big blowup last summer over similar matters, and I did set up a counseling session for both of us to attend on her next visit. She did not want to go due to her work, and though I tried and tried to say "let's sit down and talk when you are here" it doesn't happen.
Not surprisingly we've had this issue and pattern with finances too - I try to talk with her about it and she avoids it - kicks the can down the road.
There have been some times that we worked really well together, like sisters - but it feels like she is acting more like my dad'd wife and I'm the child. Not surprisingly my dad's ex-wives also felt this way about her relationship with him.
Well, writing this has helped. I see that I am doing a lot to try to have a sisterly relationship with her, and she is shutting me out. I guess she holds all the cards legally, so there is nothing I can do. Did I mention that I am the oldest?
So where you say... "Well, writing this has helped. I see that I am doing a lot to try to have a sisterly relationship with her, and she is shutting me out."
... I wonder if writing how you think she might see things would help, too. What's she afraid of? Why might she resist the idea, for example, of resigning her health care responsibilities and allowing you to step up?
It's a question of seeing things "as they are, not as they ought to be." At least then you know what you've got to work round.
See All Answers