I moved my mother into our home when she could no longer care for herself. She has dementia and has been with us for three years. I live with my husband and adult son. Fortunately, my mom has enough savings that we can afford a caregiver whenever needed, as well as enough money to help cover living costs (food, utilities, rent, etc.). She is mostly in good spirits, walks and talks, laughs, enjoys being with the family. Recently, my husband has expressed a desire to have her placed in a nursing home. He feels burdened and inconvenienced by her. I feel that placing her in a home will cost me on multiple levels: physically (having to leave our home throughout the week to visit with her), emotionally (she does poorly in a nursing home setting), and psychologically (I feel responsible for being a loving daughter- and just thinking about it, brings me to tears). I know that my husband feels the stress in our relationship (which we had well before my mother moved in) and believes that it will be better with her not living here. I feel that putting her in a home is against my value system while she is still doing relatively well, and I will resent him if I do it under this pressure.
I'd love some feedback!
my mom back in 2010 was showing some signs of memory loss and some confusion plus making 'mistakes' here and there. (and bad judgment too!!)
now 8+ years later - her memory is about 10 seconds long. cant remember what day or season it is. cant read. cant watch tv (cant keep up cause can not remember whats going on) isn't washing her hair and im going to have to check on if shes even showering. (she is in assisted living) I have seen her "decline." Due to the dementia, she has seen things and hears things. (she believes everything she thinks no matter how bizarre)
I am glad she was placed before it was TOO DIFFICULT. she has been in AL since 2011. (with my dad, who is now deceased) she knows her surroundings, even if she has no memory. I think because we didn't wait too long.
edit: my moms AL is very nice. not 'nursing home'....more like a senior home. lots of people always around, so no loneliness ...lots of activities. etc
You should put your husbands wishes above your moms if you want to save your marriage.
Good luck.
my mom is almost 89. she does ok in AL. im sorry to say this. but if I had to live with my mom I would not be able to do it. The ~repeated questions~ would really get to me.
I visit her twice a week for 4 hours. and my sister sees mom once a week for idk how long - 3-4 hours I guess.
my mom used to not be as bad. but slowly she got paranoid, started hearing music (said her AL neighbor had radio on loud, but didn't) insisted someone stole from her, long story. hides things. doesn't remember if shes coming or going.
I personally think its wonderful if you are able to keep her with you, I do. I don't know how I would handle being in your shoes - since your husband doesn't feel the same way.
Before I moved her in with me, we lived 2000 miles apart. I was calling her daily to check in. Again, I felt awful that she was living in her house, alone, and her life was empty. Now that she is with us, I feel that her life is so much more enjoyable. I would feel terrible in disrupting her all over again and leaving her in a place that she has never wanted to be.
I sympathize with your husband. We have three children. One is grown and living twelve hours away. The two younger ones are headed off to college. We will now be empty nesters. However, we cannot go anywhere without finding respite care.
I am also angry and bitter. There have been so many times this past six years that my kids and I have missed out n stuff with my husband because he had to take care of her. He missed something important to my daughter and I apologized to her. She responded with,”It’s ok Mom. Did checked out a long time ago: when Nonna moved in with us.” That burned a hole in my heart. It has hurt my relationship with my husband. I am angry with him. It has hurt his relationship w his siblings. We are always asking for help. One son has informed us he is not her caregiver or our respite care.
My point is that although it might be easy to have your Mom living with you, it might not be what is best for your husband.
Every family has its own needs and way of doing things. There is no one easy answer.
Good luck!
Sounds like you as a couple might benefit from an objective person such as a counselor to meet with to discuss both sides openly and reach a solution.
Moving her to AL would be a co promise if it’s affordable. You can visit and meet her needs and wants, take her out and bring her to your home to visit.
What are your values towards your marriage? That’s a question you need to balance with the other value you mention. Your marriage and husband should come first but if it doesn’t then I would say you two have other issues to work out.
If it comes down to it, would you choose your mother over your husband?
If your husband does not have anything else to do but whine about and against your mother....let him know you intend to HONOR your Mother by CARING FOR HER AND ABOUT HER (which is no skin off his teeth) come hell or high water.
Ask him also to GET A LIFE and a new hobby and pray really hard.
Honoring your parents does not always mean that you have to take care of them in your home. The husband's feelings are valid just like a wife's feelings are valid in a relationship. My husband and I moved his dad in with us and I regret the decision because there is a lot more work than I thought, less privacy and space for my baby to grow. It has affected our marriage so we are making other arrangements that are good for everyone. The main issue is that poster feels guilty about not having mom in her home which she shouldn't feel guilty. We are blessed to live in a country that has options for the elderly and in this instance mom is blessed to have funds. They should use the funds to place mom somewhere where she can be well taken care of and socialize with people her age. Of course, daughter should visit regularly. That way mom is taken care of and daughters marriage can get a break.
You word your question saying "I moved my mother into our home..." did you have a discussion with your family about this before you made the decision?
I wonder is part of the reluctance to move her to Memory Care or if at this point would she qualify and do well in Assisted Living that you are depending on her income for household expenses? there are 4 adults living in the house, how many are contributing to the expenses?
I know from a personal point of view if I were living in my child's home if I were causing any stress on the marriage I would not want that. While I would not want to be "put" someplace hopefully I would accept that AL or Memory Care would be better for my child and his or her family.
If you really can not place your Mom then getting caregivers in more often, you say you can afford them whenever you need them. I had caregivers 4 or 5 hours a day 5 days a week the last part of my Husbands life and prior to that I had them 3 days a week and previous to that I had him in adult day care. Adult Day Care might also be an option for your Mom at this point.
Sorry if I sound so hard nosed on this or mean but you also have to take your Husbands feelings into consideration.
You are between a rock and a hard place.
The questions below that I am asking do not need a response as they are personal to you and nobody has the need to know.
1. Not really my business, but are you and your husband presently in counseling for your marriage?
2. Has this issue with your Mother been constant through out your marriage and prior? My MIL was none too happy that her son married a Schitza! My husband had to take matters into his hands after 5 years of this and we finally became friends.
3. Are your feelings YOUR feelings about not wanting to move Mom into a facility?
4. Is it something to do with religious upbringing?
5, Are you doing this because you have siblings who have discarded Mom and are just waiting in the wings for what they may received later? I have them!
6. Have you talked with her doctor? I was extremely defensive when I finally met Mom's doctor for the first time (I wasn't allowed to enter the circle of trust) and I told him I would do EVERYTHNG to keep Mom in her home. He told that he has yet to have a family member NOT say that and then they end up having to place their parent in a facility
7. Does Mom live far away from you right now? If so, is that part of your guilt? I live a day and a half from my Mom.
8. I feel guilty every single time I see her (every month because I am her Guardian/Conservator since July. That's my job to make sure she is being taken care of to MY EXPECTATIONS)
9. STAY AWAY FROM ANY AGENCY THAT INTERACTS WITH THE STATE! IF YOU RECEIVE HELP FROM THE STATE FOR ANYTHING, YOU WILL HAVE TO PAY DOWN ALL OF HER ASSETS AND THEN THEY WILL LIEN AGAINST THE ESTATE, BE PAID BACK ANY MONIES PAID FOR HER CARE ETC. THIS IS THE AREA THAT YOU WILL BE LIABLE FOR ANY DEBT. REVERSE MORTGAGES ARE A PYRAMID SCHEME TOO NO MATTER THE CELEBRITY THEY HAVE IN THE COMMERCIALS. REALLY? WHAT CELEBRITY WOULD NEED A REVERSE MORTGAGE?
10. Contact a reputable in-home care company i.e. A Place for Mom. Have them provide you (not for them to care for Mom) with a caseworker who specializes in this area
11. SHOP AROUND FOR THE FACILITY YOU FEEL MEETS YOUR NEEDS. It's like looking for a new house. The caseworker is your realtor in this situation.
12. Petition to become Mom's Guardian/Conservator NOW! It's a long process, but like in my case, worth it! You don't necessarily need an attorney to do this for you. There are some very good paralegals who do this on the side. I have an absolutely great paralegal and we still keep in touch!
13. ASK YOURSELF....IS YOUR MARRIAGE WORTH THE STRAIN WITH THIS SITUATION OR IS IT STRAINED TOO MUCH PRIOR TO BRING THIS INTO YOUR RELATIONSHIP NOW?
None of us ever want to admit defeat, but just as my Mom's doctor told me, the day will come no matter how much it hurts. He told me that I had done more in 1 month for Mom than my sister having lived in Mom's house for 10 years as well than the other 2, and he was extremely pleased to know she is being cared for the right way now. Yes, I cried because this was the "talk" I had to have with him before he would sign the court docs. He's good, won't sign anything until he has discussed the issue(s). He doesn't want the responsibility of people who will do anything by becoming the guardian/conservator to just abuse the family member by dumping them or monetarily.
Prayers to you. Listen and God will lead you down the right path. It took over 3 years for Him to answer mine and I know why now.
Yes prayers are answered, glad you are at peace.
Now it's my turn and my husband and I are in an assisted living facility. We are enjoying so much the nutrious tasty meals and no longer have to shop, clean or cook. We can still drive and go to church and other places. Our physical abilities are not all used up on the necessities and we can still enjoy life. There are numerous activities that one can enjoy or not. Visit some places in your area and find out for yourself.
Not easy, but it is my joy. I never forget what people do for me, always a good man and my husband loves him dearly. I have no regrets taking this on, I miss my freedom but this is a temporary situation any way you look at it. The only boundary I set was I will not live in fear, dementia can lead to violence, so far so good, the more the disease takes from him the sweeter he becomes.
Ask yourself what is right for you.
I remember third grade and was told a story about an elderly father living with his son’s family.
The sons wife complained so much about the father, he asked the father to go. So now he asks his own young son to go to the barn and get a horse blanket for grandpa because he has to go.
When the young boy returns from the barn with the blanket cut in half, he said “It’s the dead of winter out grandpa will need the blanket to stay warm,why would you cut it in half?”
The young Boy looked up at his father with a tear in his eye and said,”I figured I would save half for you when you get a old.”
There are even references in the bible to this.
You need not feel guilty for installing your mother in an appropriate facility.
Many of you responded that my husband should come first. Is he taking me into consideration as well? This isn't just for my mom. It is also for my peace of mind. He thinks that I would be more available. Not if I'm spending time throughout the week visiting her in the home after my tiring teaching day. My mom doesn't like to spend time with old people. Plus, she is relatively innocuous around here. I also think it is important to my grown up children to see that we take care of our family members. We don't ship them off when they get old and require assistance. Which isn't to say that a facility be it AL or any other kind is not wonderful for some people. My mom isn't the right fit for a place. I did have her in a place for 3 months and she was miserable. It was a high quality, expensive skilled nursing facility. She never left her room. She kept asking when she would be going home.
I recognize that the time will come when she may no longer be functional at all. At that time, I don't see the need to have her here, since it would make no difference. Until then, sending her off seems premature and unwarranted. I have caregivers who come and care for her when we are working and when we just need to get away or have time to ourselves. I think that I am accommodating our couple needs. I have let my husband know that I will have someone here whenever needed. I get my mom to bed early, so that my husband and I have time alone together in the evening. Am I just being defensive?
I'm not trying to be harsh here, just honest. It sounds like your mom is pleasant to you and hubby, and can perform many of her ADLs, so her being difficult is not an issue. It sounds to me like one of the main issues for your hubby is lack of privacy in his own home and couple time with you.
Speaking for myself, after my ordeal with my mom living here, I wouldn't want any extra person who wasn't my spouse or child living here for an extended period of time. Lack of privacy and time with my husband was really stressful for us, and I ended up placing her in a really nice facility.
My mom is like yours in the sense that she complains sometimes about being lonely, and yes there have been times she wants to sit in her room and mope. There are plenty of people to talk to and activities to participate in, but I can't make her do so. But I feel like if I run up there all the time because she feels lonely, not only will I run myself ragged and put a strain on my relationship with my husband, but I would be enabling this behavior.
I point blank told her, "Mom, I can't be up here 24 hours a day. There are people here and lots of fun things to do, but it's your choice to go and have fun, or sit here and not have fun. No one can decide that but you."
I have seen a difference in her participation level. It seems like she is slowly participating in things more. Still gripes and complains. She's miserable, she's lonely, and the latest is complaining that "I never visit her" after I've been up there 3 times this week. Sounds like your mom kind of did the same, but she may catch herself making friends and having fun there. The socialization would be good for her too.
Plus, there are multiple facilities out there too, so if the one she was at wasn't a good fit, she might like another one better. Just food for thought.
My dad is in a NH and I didn’t "ship him off" as you said. It is where he can get the care he needs as he is wheelchair bound, so please don’t use that phrase to others even if you think it. Many of us here have reasons why our LO are in a facility. Thank you.
Couples therapy would help, but I would suggest that you seek individual therapy that will help you to better understand your husband's thoughts and feelings about this. Why are you being so stubborn and unfeeling? There is something else going on.
You said mom was in skilled nursing for three months? What had happened that she needed nursing level care? Skilled nursing is not at all like memory care. There are activities, many opportunities to socialize and make friends so she will not need you as much. Maybe that is what you are afraid of? No one can care for mom like you can? You are right, but the staff at a memory care facility will figure it out. They have to do this all the time.
Why would you even want to visit daily? Once a week is plenty and will allow you to reclaim part of YOUR life that seems to have gone by the wayside. What did you used to do before mom? Wouldn't you like to do more of the things you enjoy?
Are you trying to show your children what is expected of them when you need the help? Would you really want your children to provide for your care and lose their lives because of you? You are showing them how difficult care is especially when one spouse no longer wants your mom living with him.
What you should understand is that there is an appropriate time to let others care for her. Be honest with yourself and be willing to acknowledge that there will be a time when your mom needs more help than can be provided in your home. The longer you wait, the more difficult it will be for mom.
Im not faced with the husband issue but I’ve been told on this site “it’s time to consider a care home...” yes, I’ve been complaining about my mom but she has all her faculties right now. If I send her to a home I want it to be only when she needs it and when the end is near. I want to share her time with her. Even though I get frustrated beyond belief at times.
I take it that you and your husband are still working. So you only have about 5 hours or so at the end of the day together. If chores are done during this time (cooking, laundry etc.), then visiting/caring for Mom, there is precious little time for him alone. I think that is the key word-ALONE. Your husband doesn't want to "share" what should be his time alone with you. Do you WANT to spend time with him? Or is Mom a convenient shield to keep him at bay? Would it bother you if he moved out?
I think you need to bring your feelings to the surface and realize how you really feel about your husband.
Can you (or would you consider) her staying part time at your home (maybe a couple of weeks) and part time at a board and care home for a couple of weeks? (It's called respite care.) You do NOT need to see her every day. Two to three times a week is great. Her supreme happiness is not your responsibility. You will still be a "good" daughter. You can not live with a noose of guilt hanging around your neck.
Do you have the desire to make your husband "feel" like he is the love of your life and very important to you? Spouses can put up with a lot IF they feel respected, loved, cared for and important. Would you be willing to have a "date night" on the weekend? How about leaving Mom with son and going to the movies on a weeknight? Do you make any room in your life for him?
It all depends if YOU have mentally checked out of the marriage. There's no hope for him coming over to your way of thinking if you have checked out and it'll be just a matter of time before you'll get to have Mom all to yourself.
However divorce can be horrible. It destroys your current life, your happy memories of the past, your family, your finances, and every holiday. Your mother will deteriorate, probably leaving you on your own because she dies or you can no longer cope with her at home. The issue is not just about who is boss in your marriage. Sometimes it’s worth being practical, in spite of ‘the principle of the thing’. Sad but true!