As this journey with my mom unfolds I'm realizing so much about our dysfunctional family dynamic.
My BIL called me the other day. I was shocked as he doesn't normally call me. He started by telling me I helped him through a rough time several years back and he felt the need to reach out to me now. I really didn't want to talk but he prodded and I finally did open up to him about my struggles. My sister ended up marrying a high school friend of my brother so my BIL has known our family including my mother for a very long time. He's seen some things to say the least.
One of the things I told him was I resented not only doing everything myself but having to worry on my own about all of the logistics. Like why wasn't anyone else having important conversations with my mom about selling some assets (her cottage and car out of state) and saving for future care?
His response to me was that everyone (meaning my sister and brother) knew that her response would be negative. He said "It's always been like that, she's difficult to approach".... got me to thinking, he's so right. Everyone has always walked on eggshells around my mom.
We all knew her behavior was dysfunctional. Having an alcoholic parent isn't normal. Yet my mother was never confronted, it was tolerated and somehow normalized.
I feel this strange pressure to "normalize" her continued dysfunctional behavior (addiction, narcissism, etc) and now even the dementia. I can't begin to think of a way to even have a conversation with her about her future care needs. Don't all sane people know that dementia is a different animal and majority of people end up needing to go to a facility? Yet this can't even be addressed. Yet at the same time my tolerance for this at this stage of my life is VERY low.
This is heavy on my mind because on Jan 4th my mom will be having an appointment with her PC. This is the doctor that I talked to when she was away last month. We had a confidential talk and I told him I was concerned that all of her doctors weren't communicating enough and I wanted to know why she needed daily opiates. He agreed there didn't appear to be any reason and he was going to talk to the pain doctor. I told him I was concerned about her cognition and he said he was going to read her evaluation. He mentioned that he may recommend an addiction specialist.
Well I got a reminder call about her appointment yesterday, and the person said she was to be seen for "mildly elevated labs (I think he will be addressing the drinking), cognitive impairment, and her pain complaints".
I'm nervous because I think there is a strong chance she will have a very negative reaction. At the same time I can't keep normalizing this stuff. The charade of independence with lack of cooperation is more and more intolerable.
Can anyone relate?
Also for your own safety have someone else to drive you and your mum back, and a plan B of you going to stay with a friend or family that night (not staying next door to your mum even if you have to set up alternative carers to visit her) for a week or so while she takes in what was said on the 4th and/or realises that the current situation can not continue. Always remember "People treat you how you let them" so after so many years it is now time for you to look after yourself first.
Parental conditioning, like Pavlov's dogs, we get "trained" to "correct" behavior. It can be difficult to break out of this "training", but it CAN be done! Many people never recognize the fact that what they are trained to do, following in their parents' footsteps, might be wrong! The insanity is perpetuated - people will say "...my parents did this and I turned out okay." I refused to be "okay" and repeat how my parents treated me when I had kids. It worked for me in that respect, but I was unable to stand up to others - that took much longer.
So, when you feel the pressure, banish it! Begone evil daemon! Don't give in to it.
"I can't begin to think of a way to even have a conversation with her about her future care needs."
If she has dementia, is there a need to have a conversation with her? As you suspect, she won't like the discussion and get angry, and then will forget it, so why go there? I only brought up AL once and her response said it all. This was from one who had planned to move to AL if/when needed and now had no use for it. We NEVER discussed dementia with her, as she would've denied that! One doctor did tell her it "wasn't safe for you to live alone." Bad idea. Mom went ballistic.
"Don't all sane people know that dementia is a different animal and majority of people end up needing to go to a facility?"
Not really - if one hasn't been down this road, one can be clueless. I had heard of Alzheimer's, but nothing else and no clue what the symptoms were or what to watch for. It was only when she started repeating herself that I did some research and began working on brothers to get them inline.
"I'm nervous because I think there is a strong chance she will have a very negative reaction."
Is it possible to arrange either alternate transportation OR bring a friend along? The friend can sit in the waiting room, but be with you for the ride home. Often having someone else around, esp a non-family member, can curtail the behavior (mind your Ps and Qs and not air the "dirty laundry" with outsiders!) Have your friend "walk" mom back to her condo and LEAVE with your friend. Mom might show up later or call to express her anger, but you don't have to answer the door/phone!
In one of your posts, you mention working with EC atty on facilitating the move. Hopefully you already have all the POA paperwork in hand. My experience with this (moving/atty) is:
1) Mom refused to even consider moving ANYWHERE, never mind AL
2) EC atty told me we couldn't "drag her out of the house", aka force her
3) EC atty suggested guardianship (major expense!)
4) Facility we chose would not accept committals, aka guardianship
I would work with the atty, research and visit (often) several MC/ALs, ask LOTS of questions of both Atty and Facilities, take notes, go back and visit the ones you liked, ask more questions. You can do all this w/out consulting mom or others in the family. It's a lot of effort, but once done, it's behind you. Any family pipes up saying what to do or what you're doing is wrong, ignore them or tell them THEY can take over and do it all. THAT should shut them up (it sounds more like they are avoiding so maybe this won't be an issue!)
Out of characters again - posting suggestions for move as a reply to me!
Once all is in place, if possible I would arrange some transport, even if it is another family member or a friend. When it came time to move our mother, I let my brothers handle it (I did all the prep/leg work!) In some way this may have helped me as she would hound my YB anytime he visited to take her back home but NEVER asked me! If this isn't possible (check around for transport in your area), prepare everything you need to move ahead of time and arrange someone to be there for movers, take mom out for a long leisurely lunch or shopping and lunch/dinner at the facility - they do often provide a free meal, then escort her to her new "home." Be prepared to exit ASAP. In mom's case, some subterfuge was used, but facility also ordered anti-anxiety to calm her as needed - when the discussion around guardianship happened, they said just get her here, we'll do the rest!
Bottom line is sometimes there is no way to "discuss" this with the person. In their mind they are fine, everyone is wrong, they don't need help or AL, etc. It can be like dealing with a toddler - you know when you bring something up, the tantrum will happen, so just avoid bringing it up and just do it!
(The subterfuge used was due to her developing cellulitis and needing treatment, which delayed her move by a few days - YB wrote up a phony letter from the hospital 'Elder Services' telling her she moves where we choose or they will move her. She was still angry, but reluctantly went with the brothers. I also bought BR furniture as I didn't see any way to move her BR furniture AND move her as well. Brothers were no help during the "prep." YB did bring some smaller items to her new place, like her rocking chair and stool. If the doctor can write up something stern enough that she can read over and over {make a copy so you have it if/when she throws it away!}, it might drive home the need, but it will come from someone else, not you)
I've learned over the course of the last year not to fight her. She no longer wants me or my husband to go into the doctor's with her or make her any other kinds of appointments her GP may want. So we no longer do. I've advised my father that he will now have to be the one to be her caretaker, instead of the other way around. She feels we are spying on her and telling everyone she is crazy. She is just an unhappy human. Only my mother could see things that are being done out of love as a negative.
I've discussed with my Dad that as long as they are not in any harm, I won't get involved in any decisions for them, unless I am asked. He wants to stick his head in the sand regarding my mother's condition, no matter how much I try to make him realize that this is not going away, she is not going to get better, in fact her memory is deteriorating quickly and then I will step in by having a doctor sign off on the POA. Then the decisions will be made for her whether she likes it (she won't) or not.
I don't feel guilty for my decisions. As the old saying goes - You can lead a horse to water... They seem perfectly happy living their life so as long as they are safe and relatively healthy, we do what we can - and what they allow us to do - for them.
So yeah... I'm pretty much in the same boat as you except my mom lives alone with me next door. My dad died over 20 years ago. And she is still an active addict.
If it were me, I would just say "you can either work with us to lay out a plan that you currently have a say in, or you can bury your head in the sand and once you are no longer capable, we will do what we think is best". Those are her options...period.
I had to let my dad continue with his drinking and carrying on. I had to walk away to keep my sanity. That is until I got a call that he had a stroke. Then I had to come in and make medical and burial decisions without his input. If he wanted something different, he should have planned. Years later I realize he was sick and not capable of doing anything normal and I have accepted that.
You cannot fix her dysfunction. But, you can choose not to enable it or let it ruin you.
It's based on decades of psychological research and explains EVERYTHING. It discusses the types of emotionally immature parents, why they are this way, what it does to their children's coping strategies and personality development, and how it tends to have a ripple effect through generations. It talks about these parents' preoccupation with themselves, their lack of ability to take responsibility, anticipate future problems, communicate feelings, cope with stressors (often resulting in addictions), and how they resist repairing relationships and become overly fixated on family roles. It also teaches you ways to manage your interactions with such parents, set healthy limits, break the cycle of negativity, and how to recognize and surround yourself with more emotionally mature and healthy people. Seriously, this book is a goldmine. If you're even just remotely thinking this could be helpful to you, or a loved one, order it. It's on Amazon and it's cheap. While it's helped me immensely in understanding my mother, it's also helped me understand so much about myself, it's improved my relationship with my husband, and I believe it will help me be a more emotionally healthy parent myself. Good luck!
I definitely agree that setting boundaries is one answer. In my case, as she aged I insured that she was in a clean, safe environment that met her needs, and remained in close touch with the facility that provided this care, but that was the extent of my involvement. I don't feel any residual guilt over this decision b/c I did the best I could, and didn't completely abdicate my responsibilities to her...I just carried them out on my terms, not hers.
If addiction/alcoholism is part of the problem, and it sounds like it is, then Alanon might provide some support for you.
I know this is really difficult and hope sharing how I ultimately handled my situation makes you feel less alone. Wishing you all the best...
After you hear what the doctor has to say, you can create your conversation with her. Hopefully, he does go the addiction route so that the door can be opened with the help of an unbiased professional and things you avoided so many years can be discussed. And you will need medical assistance to lower amounts of the alcohol/drugs after so many years of abuse.
Good luck to you. It's not easy to change a lifestyle for ourselves, much less that of another person.
I’ve been to various counselors, on/off over many years, and never gained the insight that was shared here.
I didn’t see how “normal” families behave, so without a realistic frame of reference, I’ve been sucked into the dysfunctional tornado.
I have some thinking to do, and will certainly grow from this experience.
I’ll be back, but for now—THANK YOU.
•my dead family
•what’s left of my living family
•my in-laws
And my conditioned reactions to them.
I’m almost embarrassed by how many decades I rolled along, being the designated fixer.
OK. Who am I trying to kid? I embraced being the designated fixer. Even when it went against my best interests.
When you are raised from day one to be That Kind Of Special, it’s a hard habit to break.
In my 40s, I hit the wall with being everybody’s Sin Eater.
But.
I lacked the language to truly “call them like I see them.” I lacked the tools to protect myself.
Then I stumbled upon AC Forum. 💡
I’m done caregiving. For now, at least. Yet I stay on these message boards.
In my circle, nobody is getting any younger. And nobody is getting any saner.
AC Forum is a living tutorial about boundaries. What they are. How to identify people who don’t have boundaries.
And most importantly, how to develop your own boundaries.
I need the constant reinforcement that I get from reading your posts. You folks are awesome.
Even though I am darn good at compensating for other people’s personality disorders, it is NOT my calling. It is NOT my purpose.
Reliably, the Tribe Of Weaklings recognizes my “gift.” And it is frequently their default expectation.
NO. Just NO.
Thank you, AC Forum! Love and hugs to all. 💗💪🏼😃
Accept the fact that at this point in time, you are Not going to change your mother. Quit trying. Think of the Serenity Prayer.
My mother refused any assistance so I quit trying. She passed in 2004, leaving me to assist my father for 7.5 years until he passed in 2011. I went in "blind" because my parents "didn't feel the need" to disclose information to their children.
I sat down with my father and explained that I would not pressure him to do anything - and I was pretty much good to my word - and we got to know each other on a much better level after my mother passed. He was not the villain and she was not the saint. They were human parents; we all have faults and vices.
You don't really have the 'right' to try to normalize anyone else. When you realize that the only person you have the right to even try to change is yourself, it will make your relationship with Mom a lot easier.
It’s very difficult dealing with an addict. I dealt with it with my now deceased brother.
All of our circumstances are different and each of us have to do what works for them and their families. I am glad that you found a viable solution.
My siblings leave it to me to be the bad guy, and they see their involvement as telling me what I should or should not do or tolerate.
Enlisting the authority of the doctors seems to be the most merciful way to confront lack of cooperation.
The whole situation has left me concerned for my own future. It's time for me to focus on my life. If I lose my career, husband or health over this mess, it will be tragic for me, adding to the tragedy that has been my parents' "retirement" years (spent drinking, miserable).
How the F can our parents do this to us? I am so heartbroken that my family became yet another sad statistic. This morning I listed to "Firework" by Katie Perry, the words so much describe the way I feel right now, and I hope it's true that "After a Hurricane, comes a Rainbow"!
She has gotten her way for so long that you are conditioned to think it will always be that way (I've been there too), but not this time, your mom is NOT going back to that house. I mean she can barely walk, and her mental status at this point is WELL documented. Just make sure you assert from here on out and at all times that you will NOT be doing ANY care-taking if anyone has the nerve to suggest it. I really doubt that will happen though.
I had to LOL that your mom still wants her car and thinks she's going to drive. That sounds so much like something my mom would say. Let her rant. When she is in the ALF sell the car and the house. Sell everything. You don't even have to tell your mother.
I imagine you are still shell shocked from all that has happened in the last several weeks, so I'm not surprised you are still overwhelmed and feeling afraid for your future. But try not to be. When the dust settles you will see that you are getting your life back. That's why when I first read the news that your mom was getting placed I was sooo happy for you! You deserve this so much. You have gone above and beyond for far too long.
Huge hug to you Upstream, it's going to be okay.
I wouldn’t waste a whole lot of time worrying about the past. Not much to be done there. Instead you need to prepare for a difficult future. Because our mother was so difficult (borderline personality disorder) we couldn’t make any progress talking with her. She refused to take any proactive measures that could have made her life better. The only way we were able to force changes, was through doctor/hospital.
I don’t know your whole driving saga, but in PA my mom’s PC ordered a senior driving test, where they tested her cognitive state and reaction time before they would even take her out on the road. It was the only way we were able to get her license taken away, despite multiple accidents. I’m surprised she didn’t have to surrender her license when prescribed long term opiates.
You need to get PoA squared away. Every time my mom needed a step up in care, she refused it. The only way we were able to get her into a facility was through the hospital. The magic words are its not safe for her live at home. It wasn’t but it took us a while to figure out that that’s what they needed to hear. (Our mother was not a candidate for in home care, because we knew she would just fire anyone we hired to come in. She consistently refused care the hospital would send round). Also, it’s important that you don’t step up and volunteer to take it on temporarily, as that lets the hospital and off the hook. (My mom would try to jump out of the car and we didn’t even feel safe driving her). If you hold your ground that you can’t help, they will have to find a safe placement for her.
For a long time I went through an ethical dilemma of trying to figure out how to be a decent human being to my abusive mother as she aged and needed help without ruining the lives of me and my family. The answer for me was ultimately you can’t help people who won’t be helped, and the best course of action was to step back and let the state, which has much more power to enforce, be the bad guy. I think you are right to be wary that people assume you will be nursemaid.
Good luck.
My mother's self made crises finally confirmed to everyone including the social worker ...that she needed to be in an assisted Living/Memory Care facility. If you don't have the resources, Medicaid will step in for a shared apartment. It was the absolute best thing I did for her and me. Because from my experience things only get worse, never better.
This is true. Many people only look at an addict as wanting to getting high. What they really want is relief from their misery. They are searching and therefore self medicating the only way they know how.
I will pray for him as I prayed for my brother and all addicts. Thanks for your insight.
In spite of the hell I faced with my brother I have enormous compassion for addicts.
My brother read the Bible in prison too.
Wanted to add that while we were growing up there wasn’t much support. Addiction wasn’t spoken about as much and it was shameful for the addict and families. Everything was very secretive then so we had no frame of reference. So don’t feel badly about the confusion of what we felt as a kid or even later in our life. It’s a process, a journey to healing for anyone in this situation.
Both the addict and their family suffered in silence. We lived in a hush hush world where we were taught to smile in public and present ourselves as a ‘happy’ and ‘acceptable’ family.
Thank God, we now live in a society that is willing to talk about issues like addiction. There isn’t any shame in going for support these days.
So I fully encourage you to get that support for you and your mom. I hope she will know it comes from a place of love and accepts.
Unfortunately, my brother did not accept my offer to help him get into Bridge House here in New Orleans which has a good success rate with addicts. It’s not a quick program which is what I like about Bridge House. It’s an intensive in-house rehab and they learn how to integrate back into society while in the recovery process.
The addicts are allowed to work in the Bridge House thrift shop and other jobs that are available. I couldn’t make him participate in the program so I had to accept his refusal.
All you can do is try. There is support out there. You aren’t alone. There are many resources now for families of drug and alcohol users.
I have read about your brother in various posts and I must say you survived a really heartbreaking situation. I know you tried so hard with him and especially as a sibling you never think they are going to die young, so that is double the heartache and emotional trauma. I'm really sorry you had to endure that, and pretty much on your own.
I'm sure your brother knew inside himself that you tried everything and you did it out of love. He couldn't beat it. He is at peace now.
I hope my mom will be able to get a handle on things. That remains to be seen, but I definitely want professionals to handle it. The one thing that gives me a little hope is I think if my mom can get off the opiates it will help her cognition. If she is able to experience that and recognize it I think she could be motivated to help herself.
Yeah, I can relate. It’s really weird too. My mom sort of accepted my brother’s drug habit as ‘the norm.’ She didn’t approve but allowed or as they say, she enabled some things. Consistency is key in changing situations. If you mess up, start over! Keep going until you get it right.
My dad wanted to be consistent. Mom fought him every step of the way. She undermined him and undid his actions. It was frustrating for my dad. Yet, he loved mom. I wish they could have had a united front. That’s what the family needed.
I do remember my brother going to juvenile homes but he would run away. So my parents did try. One judge ordered him to a home that was farther away. He had no friends nearby and he had to stay in that home. My brother was a drug addict but he was cunning. He could figure out how to escape!
If I had done any of his stuff they would have disowned me. The way I look at it now is it was a tough learning experience for me. I used to be bitter about how strict they were with me and was furious at how all of my brothers got away with so much sh!t. At the time though, I thought nothing was fair. Well, life isn’t always fair. I learned that lesson very early in life.
Now I see how they actually did me a favor because I learned to be independent. Am I still angry? Nah, not worth holding onto the anger anymore. It’s faded into disappointment, even somewhat indifferent to it all now.
Piper, you are the independent one. You are the one who has escaped the madness. You didn’t fall into the trap of addiction. Nor did I. By the grace of God, I didn’t follow my brother’s footsteps. I’m blessed. So are you. You are nothing like your mom.
Take your experience and use it as a learning tool. You know how you feel. You know what needs to be done. Do what you feel is best. Does that make sense to you? I hope I expressed that clearly. You know why it hurts so much, don’t you? We are caring people. How do you think we ended up as caregivers?
Caregivers get stuck. I know I did while caring for my addict brother with hepatitisC. It’s possible to get unstuck. With the help of a loving nurse, I did. If I had listened to mom who begged me to continue helping him I would have ended in a mental hospital because I would have cracked up! Look into an Al-Anon group. They are very helpful. I promise.
Best wishes to you. Hugs!
Which brings me to this; you have a long time to think about that January 4th appointment, but the one thing I would NOT do is drive a car with my very angry, demented, addicted mother after that doctor's appointment.
My mom, who was not in any way a particularly disturbed person tried to wrest the steering wheel from my husband as we drove her on a 6 lane highway from rehab to her new assisted living place. I have no idea what was going on in her head, but from the moment we got her in the car and turned on "calming music" (Pachelbel Canon), she started crying hysterically. She had been diagnosed with vascular dementia while in rehab, but she mostly just seem to misinterpret stuff and had some interesting delusions about dead bodies being carted about and the nurses having sex in her bathroom.
But anyway, she yanked the steering wheel and fortunately hubby was driving or I wouldn't be here. We NEVER drove her in a private car after that.
I want you to think carefully about what purpose your presence in that doctor's office will serve that afternoon; I frankly see NO good coming of it.
It is amazing what people survive, isn’t it? Your husband is an amazing driver! Glad all of you weren’t harmed. Angels looking out for you!
Certainly with dementia on the plate you won't be dealing with any of these issues, other than your OWN issues of how best to protect yourself, your immediate family ongoing. There is no dealing with a demented mind, nor with a narcissistic or psychotic mind. Nor an addicted mind.
As long as you are this intertwined with your mother's life, it is your life you have given over to her. If there is an addiction problem this is yet another issue you will be utterly helpless against other than joining an al-anon group as soon as possible.
I missed it if you said that your Mother is living with you. If she is, I suggest that she not live with you, but live now in assisted living. Inform her with gentleness that this will not work for you and your family. You will be met with hysteria; that's a given. You will have to "grey rock" through it often.
If she does not live with you you are in control of limiting some of your visitation, and rebuilding your own life before it is taken over utterly and completely. Get yourself some help to deal with all this. Wishing you so much good luck.
I moved her next door to me in my condo building in the Fall of 2018. So she does have her own place, with easy access to me. Prior to her move I did not know she had dementia. That was diagnosed last Spring. I would not have made the move I did had I known she had dementia, but too late for that now.
Everything you described is why I've taken steps to let the professionals deal with the issues, including addiction. I know placement is in my future and I want them on board now and the whole way through. I got this ball rolling because I know things will be documented.
The first time her PC will be addressing these issues with her will be Jan 4th. He made a special appointment at the end of the day to do this. It's late afternoon and will get dark so she will have to let me drive her. I don't think I'm going to suggest going in with her unless she asks, which is very doubtful.
That's okay though, I think the doc can handle this one on his own.
Yes, sane people know that, but your mother is NOT a normal sane person. Mine wasn't either.
Her PC sounds aware of her issues which is a plus, Maybe ask him to have the talk with your mum about her future care needs. It often is accepted better from non family. I found everything got more manageable when professionals were involved.
I was not able to talk any sense with my mother or my sister. Although I was POA financial and medical and doing a good job, I was seen by them as a trouble maker as I would not enable.
Likely she will have a strong negative reaction. What's new? Mother used her anger to manipulate and gain control of a situation. Alanon could be very helpful, and/or therapy, and/or reading boundaries by Cloud and Townsend and so on. Help yourself first.
Thanks for letting me know things got more manageable for you when professionals got involved. That's my goal too. It makes sense. I had a career in health care. I talked to many families and patients and honestly you would think it was a different person in my body compared to how I am around my mother. An emotionally neutral professional can say the hard things that need to be said. They still have compassion but no strings are being pulled. No manipulation is going on. And when people did try to manipulate it could be seen a mile away. A professional can keep their cool even in the face of bad behavior, an adult child of a narcissistic parent with a lifetime of grooming, not so easy.
Ironic in a way, the fact that I am a nurse and an early retired one at that! People have actually made the comment to me that my mom is so lucky her daughter is a nurse and retired!
Give me the barf bag! I will NEVER be her personal private duty nurse, EVER.