I’ve done everything I can for her as her Power of Attorney and am the ONLY person that didn’t walk away when she was hospitalized 3 months ago. I’ve arranged the best care I can find for her. She is bedridden, incontinent, diabetic and on continuous oxygen. She cannot go home. I’ve taken care of her home repairs, bills, car…you name it. Her care has become my second full time job. She is my aunt, not my mother. She led a selfish lifestyle. At 86, she never planned for long-term care. So here we are. Everyone has an opinion but has done nothing to help. I’m overwhelmed every single day. All of her so-called “friends” have never done a thing. They all backed away when she got sick. Has anyone else experienced this? What did you do?
I have had friends of hers speak to me as if she is already dead or have expectations of her that are beyond her capacity...I just don't really have enough time for their issues.
Family offers ideas that require more work from me while they do nothing at all. So now I call their bluff..."ok, come and get her" or "get the spare room ready, she's coming to visit." Naturally, as it would require money and effort she is still here.
In your situation I’d be tempted to lean in to the criticisms and suggestions; ask follow up questions and ask for their specific advice. Then agree with them and ask them what they could do to help, because I’m at my limit of what I can do. If they decline or change the subject I’d have some suggestions. And I’d do this every time they started in with the criticism. In other words, I’d have them feeling uncomfortable enough to avoid engaging me on this subject.
You know that you have done what you can do. That is perfect. Appreciate yourself, because others may not.
When someone is going downhill, everyone panics. That is natural. They are panicking. Fortunately you have held it together enough to help. That’s why you are the natural POA, not them.
So when they criticize you, be firm. Find strength inside to do your best to not be bothered. Remind yourself that they are criticizing, but not helping
Everytime they call to complain, delegate a task. “So glad you called… can you have dinner with Auntie at the care center next Thursday? Drop off some mail for her the following Wednesday?” For each complaint, assign something. Either the complaints will stop or you will get help.
It would depend on the circumstances, but if someone doesn't like what you are doing, either tell them to pound sand or just tell them to do it.
Anything you choose to do for another should be met with an appreciation of the time you are willing to donate for another's benefit, not a criticism concerning what more might be done.
I did not do as much for my mother in her final years as my sisters did. I did what I felt I could do for her without doing damage to myself. In the end, my sisters were happy for what I was willing to do even though they would have liked more help. They did what they were willing to do and I did what I was willing to do. Ultimately, whatever we do must be enough because that is all we can do. You should not do damage to your own health or mental well-being in caring for the dying. Who will care for you if you do? Certainly not those who would criticize you.
Check with local authorities about medicaid beds for your aunt and what kind of spending down of her estate will need to be done for her to qualify for medicaid-funded nursing care. You have done all you can. I do respect you and honor you for having done all you can do, but if you are asking this question you are on the edge of total burnout and you really need to step back from some or all of the burden of caregiving for your own health. Bless you for trying so hard. There are many of us who know the frustration of meeting our own limits. We understand. Please take care of yourself. We understand that, too.
crows arent worth your time and will be visited by Karma when they need help someday.
But, lets face it, with your health problems, you should not carry this burden, it is not your fault, your aunt did not save for her retirement. You have already helped her a lot, time for others to step in or taking legal action.
My sister made a comment about how it looked like a lot of sugar for a diabetic. Arguably, she might be right, but my mom’s glucose is well regulated with Metformin and mom is 88.
I told my sister that I had no intention of micromanaging mom’s diet, and that if my sister thought she wanted to work with the caregiver to manage it, she was welcome to help. Haven’t heard a peep from her, since.
For the record, my mom never had a good diet and is probably eating more regularly and healthier now that someone is preparing her food. I don’t see it as my responsibility as her POA to provide her a better diet that she had for herself. Just want her to enjoy her meals.
I used to be a go along to get along person until I took care of my dad. I came out really strong. And, maybe this will help...all those people came while he was dying and wanted to help. NOPE. I chose who could be there. Period end of discussion. This was my Daddy's end of life, and I wanted it to be as sacred as possible.
I hope this helps. From where I'm sitting, I want to reach out and slap those people for you, but you are going to have to find some support that you trust, and let them stand with you.
They will only judge and say what they want till you are harsh and shut it down. Then they will stop. Or shut off all contact.
If they are allowed to get away with saying whatever they want, they will continue, until you've had enuff. Let them know you are done. But you have got to stand up on your end and say enuff. Good luck.
I would get comfortable with the non-answer answer.
Just say 'Thanks for your input, I'll take it into consideration.' And then go ahead and do whatever you feel is best!
Sorry this has fallen on you. Sending well wishes to YOU.
Who knows one of those extremely rare seniors who don't offer their totally unsolicited opinion and two cents on anything and everything?
If you actually do know one then you've got a unicorn right there.
Family who do nothing always offer their advice and will often demand hourly updates on the condition of their beloved relative This is for show. If they are not willing to take on any of the care burden for the elderly "loved one" they are not owed an explanation. If you have relatives who live a far distance away but want to keep them updated, start a group text. This is what I did when my father was sick and I was his POA. I updated the text at my leisure and that was it. I did not take questions. My siblings were totally cool with it and did not criticize one thing I did. They didn't want anything or expect any inheritance and were grateful to not have to handle any of it.
Your aunt belongs in a nursing home. How can someone in her condition be properly cared for at home unless you get very lucky and find some serious homecare CNA's and can arrange them 24-hours a day?
Even then, she likely needs more care then can be done in the home.
Send an email out to your family and your aunt's friends and tell them this. Her elderly friends might not have email so write up a newsletter and send it to them. Let them know that she cannot be cared for at home and if by the Grace of God she improves and does not have to live the rest of her life in a nursing home, she will go to an AL facility or into a senior community.
Then include a 'PS'. It should read as follows:
Ps. None of this is up for discussion. No one needs or will benefit from your two-cents and unsolicited advice.
If any of you think you can do better, I will gladly turn the POA (Power of Attorney) for Aunt ______ over to you and with my blessing. Thanks.
This should do it.
I have found that most of the folks giving their opinion have never taken care of an elderly family member and have absolutely no idea what is truly involved.
My mom had a very vulgar saying ...."an opinion is like an , everybody's got one".
The second saying that I've heard is "don't take criticism from someone you wouldn't ask advice from".
I hope I have given you a chuckle for the day!
I would for you sanity sake consider finding another arrangement a different person to do this, you can legally resign as poa or if that isn’t something you want to do as I said simply block their numbers so they can’t contact and insult you
My elderly aunt once told me the 'cleaning lady' I hired for my father wasn't doing her job. I informed her that I hired a companion for him, not a cleaning lady. And it was only one day not two because my father was too cheap. He was perfectly capable of cleaning his own apartment at the time but his level of cleanliness was not my aunt's. The companion actually did laundry with him every week. My aunt looked at me like I should be cleaning his place. Since he was a man and all. My aunt was a life long housewife who thought that was what women do...take care of men. I had a full time job, my own house, kids and I was spending a lot of time managing my father's life. I was not about to add cleaning his apartment to my list. I will say, she actually did clean it for him once.
Then there is my cousin. She had nothing going on in her life so she tries to latch on to others. I received several urgent messages from her over Facebook, home phone...and the line crosser...my work phone demanding to know what WE were going to do about my father's situation. I have no idea how she got my work phone number. WE weren't doing anything with her in AZ and US in NJ. Unless she was volunteering to run him to his many unnecessary doctor appointments, there was nothing she could do that would make life easier. And I didn't need the added stress of her demanding to know what was going on. I ended up cutting her off. She cried to all our cousins about what a meanie I was...all she wanted to do was help.
now I travel to return my mom to her final resting place … the anxiety is real.
welcome to my world
I've started living this quote:
'Don't get the impression that you arouse my anger. You see, one can only be angry with those he respects.'
Richard M. Nixon
At that age most of their friends have passed on. And their friends are people they meet out at places--senior center, etc.
If you find a handful of people to build your care team, this may buy you some time. Although it sounds pretty advanced. We all have those relatives that need help and it's going to be even more so in the future with the high divorce rate in the U.S. and families living farther apart.
If your Aunt is a homeowner, you don't need the long-term insurance just meet with an Elder Lawyer and they will advise you. The long-term insurance is expensive so few people can continue with it because the premiums increase with age.
The hospital Social Worker can help too. You are not a one-man show so to speak.
When you're in your 80's you have all you can do to take care of yourself. This is nothing new caregiving. My mother God Bless Her took care of so many relatives in our home. Looking back, I don't know how she did it.
Sell everything soon. Doesn't sound like she should be driving from what you write. You are not stuck. Your Aunt has resources and you need to do this legally. Sounds like your Aunt needs around the clock skilled care, basically a nursing home.
Just recently a lady from Church told me her relative refused to go to a nursing home. She wants to leave the hospital, signed a form for no medical care, and was assigned a 24-hour hospice worker. Basically she will return home with no extraordinary means but will not die alone as hospice will be by her side. Her family is not in agreement with this but she has the right to make her decision.
These situations are not a one size fits all. Oftentimes the one doing all the work gets all the flack.
The goods news is your Aunt's primary care doctor (PCP) and a Church, hospital chaplain's office are all good resources so you can lighten your load, visit her without worry and make sure your Aunt is not in any pain and is cared for.
You should be commended. I, too, was always the one who showed up. Usually it was always 2AM. I'm older now and I have more knowledge about how to handle these situations. You learn the jargon and the chain of command, who writes the orders, etc.
We all need support and need to know we are not in this alone. But if you feel you are in this alone then build your team--Primary Care Doctor, hospital Social Worker, Elder Attorney, Church, Hospice if your Aunt refuses going to a facility.
The PCP Nurse Manager usually know more than the doctors. I have had good luck with the Nurse Practitioner's in the PCP's office.
Sign up for the the PCP portal. If your Aunt goes to a facility then that doctor at the NH now takes over along with their pharmacy.
I hope this helps. You look young. When I was in Grad School I had to do all of this just like you. I loved all of my relatives and wanted to do it and even with the love I found it so hard and exhausting since I was also working full-time.
Now I am in my 50's with a wealth of info to share. I hope I have given you some hope and I will pray for you today. You have some phone calls to make and I have always found medical personnel helpful.
If your Aunt goes to a facility kiss up and bring in pastry to the staff, tulips at Easter, etc. Your Aunt will get treated even better. Let them know you'll be around without being a pest and praise them! Amen Sister...