I am one of four adult children of my 92 year old mom who now has dementia. I have lived with her for the past 19 years as has my brother, who is on social security for being disabled mentally. He is paranoid of everything, so therefore has never been able to work. I love my mother very much. She means the world to me and I have tried my very best , especially over the last 10 years, to care for her in the best way I know how. I take her out every morning to her favorite coffee place, I cook all her meals, take her to all of her doctor's appointments, take her on a summer vacation with her two dogs who she can't live without, clean the house, etc.etc.. My brother who lives here does next to nothing to help me. Once in a blue moon he takes out the trash cans and that is about it. He has become more and more angry and nasty and hates the world and it gets harder and harder to live with him. My other brother doesn't do anything to help me either. He gets mad over the slightest things, like my mom's dogs who he doesn't like, and then uses that as an excuse not to come over or do anything. My sister has done a little to help, but really not much at all. They all act like this is my total responsibility and that our mother is just mine when it comes to helping her. I have paid for many house repairs on my own over the last few years. The brother who lives with us pays very little to us each month and every month he has another excuse why he can't pay. It's hell trying to get the money from him. I'm so tired out and so sick of it!!
I guess my question is, how do I care for my mom and do my best when I am constantly upset by my crazy sibling who won't cooperate? How do I get past the anger that I am getting NO help from anyone? Does anyone else have a similar experience and how do you or how did you deal with it?? I know that I must accept that it is like I am an only child, but I really resent it.
Your brothers I'm sorry to say sound pretty typical, it seems many (not all), just disconnect themselves, don't want to deal with hit. Other siblings who are not as involved often when they do step in to help, they just really don't know what to do or even where to start, kind of like how we all were at the start of caregiving for our parents, it was a learning process as we all know.
As for the nutzoid brother, I would try and have him legally removed. Most people would not like my attitude but, if I had someone like that living in the same house, and I managed to evict him I really would not give a damn where he went or ended up even if it was the street. but that is me and things aren't that simple.
I agree with a previous poster: have brudder put somewhere before he become a lethal presence as well: there are enough stories of these crazies who end up murdering everyone. Sadly, what they are trying to avoid happens anyway, but worse.
Best of luck to you. As for the rest of the family, protect yourself against them, document everything. I don't know how bad your moms dementia is but she could be an impediment to trying to get rid of brother or rest of siblings.
Best wishes in the New Year ahead.
My mom has 3 siblings... 1 which we live with and 2 who are married to highly controling spouses. My aunt (the one we live with) was financially supporting my grandmother for the past 10 years. My mom did all the cooking for my grandma and I did everything else, I shuffled her to doctors appointments, and took her anywhere she wanted to go. I made sure she got off to the center okay and greeted her at the door at 2:15 if I was home. My grandma made her schedule around my school and work schedule because getting her non working grandchild or retired son and daughter to do ANYTHING was useless. As she got "more difficult" (as one cousin put it) we did everything we could to get an aid to take care of her for a few hours because it was starting to become just too much and trying to keep up with her needs and everything else going on just became too much. Even though I have 3 RETIRED relatives, 1 cousin who works PART TIME, everything always ended up falling on us because they always found excuses why they couldn't do things for my grandmother.
Grandma passed away peacefully in the comfort of her own home about a month ago and my mom and her sister have hardly spoke to their brother or sister since. Yet, in about 2 weeks they'll be annoying us non stop because they want items of my grandmother's they think are due to them.
The way we handled it was, you're either in it 24/7 or you're not and if you're not, then you are giving me the right to make any decision I see fit in the care of mom (grandma).
Seriously, try sitting down with your siblings and coming up with a plan. Maybe your brother who uses the dogs as a reason why he can't come over can at least meet mom at the door and take her out to lunch.
Your sister can maybe once an a while do a lunch or dinner and maybe take mom to get her nails done or go out to a movie.
As for crazy paranoid brother, try to get him to maybe do something like watch TV with mom and talk to her about what they're watching. Maybe he just engage mom in conversation just enough to keep her entertained.
Sadly, a sit down with my family was not happening at all because again, both my aunt and uncle married very controling people.
Another time when I asked my oldest brother for help he just said "I don't know what you are going to do. It's a bad situation and you should have thought about it before you moved back in with mom. I have my own life and I can't.......". Fill in the blank.
So, yes I agree that sitting down and talking like grown ups would be great. But as a dear friend told me, I just must think of myself as an only child and stop expecting help.
Every night when I tuck my mom in she tells me I am the best thing that has ever happened to her and thanks me for all I do. This just makes me cry and I realize how much I love her and makes all the craziness fade away. I can't even imagine a world without her in it. So , I remind myself of this over and over every time I feel overwhelmed. One day she won't be here anymore so I want to make the most of our time together.
Thank you again everyone!! You are all so great!!!xoxoxoxoxo
carla~
Sometimes, talking with someone and pointing out the obvious just doesn't work. I've tried to explain to my sister over and over about my MS fatigue and how it really limits me, but she just doesn't care. I've written her off as family and am moving on. It hurts, but I have to do it, or I'll just keep getting hurt, which helps absolutely no one.
Find ANY outside help that you can. Try senior services of all kinds and even organizations for disabled or veterans. Also try the Salvation Army, Goodwill, nursing homes of all kinds, the local Social Security Administration, etc. They may not be able to help you directly, but there is a good chance that they can refer you to someone. It may take awhile, as I am still finding out for myself, but it is better than being treated rudely and insensitively. So much good luck to you and your mother. I just read an answer where one person is thinking of recording family conversations. Do this. I forgot that I got an app for my phone to record conversations with my sister. You may not be able to use anything like that in court, should things go that direction, but these recordings would show a pattern of abuse/neglect that could protect you and your mother in the future.
As much as I hate to say it, the only person I really did not mind caring for was my father. He was only really ill for about a year and I thank God that he was still physically strong enough to pull himself up other wise I do not think I could have done it.
I really did not think my mother would last more than 3 years after my fathers death as she became so depressed and just locked herself away in the house never leaving except for doctor appointments or to go to the cemetery to put flowers on the graves of her family members. She refused to go to anyone for the depression and next thing we knew she was diagnosed as having dementia and told her brain was shrinking.
I moved into my mothers house in 1999 with my daughter as I was ill. I was only going to be here until I got better but I am still here. My older sister also moved in and has lived here for as long. Now you asked about a nasty sibling....this is mine. I found out when I was 28 that she had hated me since birth and planned on continuing until one of us die. She has lived up to her end of the bargain!!! Anything she can do to make my life hard or miserable, she will. We have a younger sister that both of us get along with. Her and I are very close and love the same things and we both have daughters that get along like best friends, so we do things together when we can. This does not make nasty sister happy, at all!
Nasty sister basically does nothing to help although she lives here. She takes care of her own personal needs, cleans her room and bathroom, her laundry and that is it! There is zero help with the house, the yard, laundry, groceries, I do mean nothing! I see a therapist to try and keep my sanity and they told me to leave the house and get out on the weekends. When I do, nasty sister comes up with something she needs to leave to do or she gets ticked off and is either especially nasty with a hateful attitude or an argument may ensue.
The last time this happened was about a month ago, when she informed me while laughing in my face, that "I was no care giver! I was a joke! The last time our house was clean was many years ago! She was not going to work all day then come home and clean! (she works part time and is off at 2:30 but stays gone til 5 or 6 so she has to do nothing to help)" She went on to tell me that "from now on if I wanted to leave the house on the weekend I would have to ask her first!" Oh yes, I would have to run it by her and then she would tell me if I could leave or not! To that I called Bull----T! I told her that she was able to leave the house every single day and stayed gone into the evening even though her job ends at 2:30! I was going to leave the house every frickin weekend and she could stay home and take care of Mom.....everyone gets time off!!
She is totally ticked off at me even more than she use to be because I am my mothers DPOA not her. I asked Mom and her attorney to please make me the DPOA because Nasty sister had not paid one cent in over two years towards the household and she was paying HER BILLS out of Mom's checkbook! I am also in charge of her healthcare.
Every year when I try to take a vacation a huge fight takes place because she does not want to care for Mom or the dog. Yet she was the sister who felt called to be a nurse many years ago. Nasty, nasty woman! Two years ago we had gotten into an argument prior to my vacation and she filed a FALSE REPORT WITH ADULT PROTECTIVE SERVICES!!! She told them that I had abused her and beat her (she was 65) and caused bruises on her arms! She went to Kaiser and told her social worker, who took pictures, they helped her fill out the paperwork had her sign it and filed it! I had Adult Protective Services sitting in my living room wanting to interview me to see if THEY SHOULD PROSECUTE ME!
The only thing that saved me, was the fact that my 16 year old niece was sitting about 10 feet from us and saw everything that happened and told them that I never laid a finger on her....IT WAS A TOTAL LIE!!!!! She was willing to have me thrown in JAIL!!!! Things like this happen every single summer without fail when I am trying to leave for vacation.
Both of Nasty sister's kids have turned their backs on her and moved to other states "to escape her toxicity!" Her husband divorced her years ago. She has had doctors tell her "not to return" because they could not deal with her. She complained about every doctor her HMO sent her to so they finally sent her to a psychiatrist.... She doesn't see them however....if they do not agree with her, she quits. OH YES, I HAVE A NASTY SIBLING!
Younger sister lost her husband about 6 years ago and she works very long hours to try and hold on to her home. She has two college age kids and she has suffered with depression for years. Her plate is very full and there is no way I can get help from her around here. That I understand. One of her kids stays with us during the day on vacations so they can hang out with my daughter and i make dinner for them every other Friday night so we get to see them.
I did tell my Nasty sister and my daughter that I wanted help around here and that pretty much fell on deaf ears. My sister did vacuum once or twice but it all stopped completely within two weeks. I can "make" my daughter help, but I cannot force NASTY sister to help at all. I did tell her that if she failed to help, I was going to hire a housekeeper.....then Mom came unglued because I told her it was coming out of her money...as in inheritance!
The truth is there is nothing you can do to make any sibling help you. They stay away because they are glad you are the one stuck with the care giving and if they come around you might ask them for help so they HIDE!!!!
If you can keep your sanity and if you have friends or family to get away with, go out and do it. I honestly rely on my therapist coming to my home every week, there are many times that she is all that keeps me going! You need to find one so you can voice your fears, anger and concerns.
I truly feel for you as your brother is an added burden and he is living off of you and your Mom.
God Bless You!
Like my last post basically stated.. Im at a place now where Im exhausted, and beat up...So in our journey, until we get to that place where were sick and tired of being sick and tired, we have to say at some point, ok Im done "cut your losses" (boy what an expression) to save your sanity. We just hurt ourselves over and over again trying to figure them out- and then the anger comes. I have a tense relationship with my sister who's a born-again christian! Talk about trying to figure that one out? Communication to her is confrontation and just backs off....I figured out, its because...she just cant deliver..but of course..."It me", Im too much....the funny thing is Im on eggshells with my words to her, because she does back off. It all just sucks the energy out of you. Bottom line is thier hearts arent open, thier wallets arent open and thier time isnt open. So, start the New year with as much of a clean slate as possible and TRY EVERYDAY to breathe deep to give yourself the clean energy needed for your mom (loved one) and release them. Let go of keeping your fingers crossed hoping for them to rise to the occasion. Its dissapointing but necessary for your own peace of mind. A part of me will always be angry at them, now and when mom passes. I wonder if I'll have a relationship with them? Do I care to after everything. I mean stuff like this show's your true character right? We'll Im trying to get myself peaceful for me and mom. I'll think about them later. Hopefully I'll be a bigger better person from all this or they may have to reap what they soe. I guess I'll cross that bridge when I get to it.
All the best~