You know who you are. You provide the 24/7 if the parent lives with you!
Sibling mails out of state lottery tickets for Mom to scratch off,
this has been going on for 2 years.
The big pay off????
About $6 bucks every time....:)
Lets Mail those $2 dollar winners back and keep this bullsh*t going......:)
Meanwhile, you wrote to the sibling THREE TIMES IN MAY.
"CAN YOU TAKE MOM FOR ONE WEEK THIS SUMMER"?????
NO RESPONSE.....
But hey......keep sending those winning scratch offs!!!!!!!
:)
I really needed a break when a struggling first-time Mum. My folks made it clear they would be odd occasion sitters not a regular service. I needed more than that so had to cast the net wider. Booked the baby into daycare. Expensive - yes but kept everyone resentment free - that was priceless.
Similar happening now as parent needs a break from other parent's care but I cannot leave my work & family to provide. So residential respite care arranged.
Cast your net wider than your sibling/s for help.
We do everything that we can, but I often feel like my SIL is frustrated because we don't do more. Honestly, we can't do more unless we live there too and that is out of the question. We still have our own family at home and, while my mother is very active and healthy, she is also an only child and has her own mother to care for and we help where we can there too.
Full time care fell to my SIL for a number of reasons. They moved in several years ago because they needed to. Stayed because he needed them. And she doesn't work outside of the home. The rest of us have full time jobs.
But I often think she feels we should be more involved, while we are as involved as we can be and not live there. Even if we lived there we wouldn't be 100% because we have other priorities.
I say all of that to say this.
I know it doesn't seem fair. I spend half of my day fielding calls and texts from SIL/BIL actively dealing with him, because my husband can't due to the nature of his job. We do everything we can to stay involved. But I know from her perspective she's feeling like she's out there all alone and fighting all alone. She's not, but I know she feels that way.
Sometimes siblings can't be involved. If yours are making it clear that they aren't going to do more, I would suggest looking elsewhere. The cold hard truth is they don't have to help. They are allowed to set their boundaries and stick by them.
There are other options. Respite care for times when you need to leave them. Outside help. We are actively looking at a week of respite care next year as we will all be out of town at the same time and he cannot go. So we are trying to make sure it is covered. But sometimes it is more than you can handle. Your siblings have drawn their line. At what point do you get that chance yourself and consider other options?
Oh the book I will write one day lol
Gad, some families are just... oh, wait, as far as I can tell, my brothers don't do anything! I think OB (not local) still sends cards (big whoop) and going through papers she has in her room, I think he sent some pictures printed on paper of something he's building... Like that will make ANY sense to her? I'm not even sure she remembers my brothers now. Before lock down, she hadn't asked about them in a LONG time! I had to have YB take over one med appt which is 4x/year and he's always complaining about it, trying to get out of it, etc. FOUR times a year!!! She will likely be gone before he retires, so he'll have a nice retirement... half of mine is spent dealing with mom stuff (managing finances, paying her bills, managing medication, ordering and delivering supplies, taxes, etc.)
Families, yuck. When mom passes, I intend to become an only child. OB is already out of my picture (I have valid reasons!), YB is only there still because of that med appt. Handle her burial with dad, close out her finances and taxes, have any remaining trust funds split/sent to each of us and DONE! I'll be FREEEEEEEE!
With COVID its going to be hard getting respite with Mom. Some ALs and NHs will do it if they have a room available. It will cost, you can use Moms money. That's what its there for. Do you have someone you trust who could come to your house and care for her?
One isn't local. He did help some by driving or flying up for a week or 2 here and there, once to move mom (I did everything else, but refused to be part of the move to MC, even though I was sure I would still get the blame!), several times to help with the condo. His last trip was just over 2 years ago and he is NOT welcome here. I missed the warning signs on previous trips, but that last one showed he NEVER got over his abuse of me from childhood! It was just lingering in there, dying to get out. He's been that way with others too (some I learned after his abuse this time.)
The other just doesn't think or consider anything. He left his wife and has done nothing since (no separation agreement, no divorce, just pays for whatever), yet he lives with someone else! Except for needing him to take her to appt 4x/yr, I am done with him too!
Could look like DH is leaving future parent care for the 'girls' of the family but DH is happy with his role (tech support). Why try to be nurse if I have no interest or skill at that, he once said. Indeed. He does not see that the care needs to be split equally between sibs at all. I am aware that it could appear sexist, but the truth is that he knows what he will & won't do. Says if parent can't self-care after a hospital stay then go to rehab etc. He just will not do 'wiping'. Has zero guilt. We have already seen SIL offer to provide ALL the care then phone around the sibs requesting they step up equally (after 2 days). So we learn & plan.
Since I live closest to M&D (75 miles away), most of their care responsibilities have been on my shoulders ~ finances, home mgmt, dr appts, meds, etc. So, lots of driving back-and-forth and extended time staying w/ them. As a result I’ve given up pretty much all opportunities/commitments in my life (work, volunteering, activities, friends, etc). I’ve been mostly fine with that, especially having a supportive life partner who has chipped in and tag-teamed to help. Plus, my brother (1,300 miles away) has made multiple trips, often coming for several weeks at a time to provide relief for me. Throughout their lives, our parents have been wonderful role models w/ tremendously giving hearts ~ so we are happy to give back and now help them. And fortunately, my brother and I are on the same page about most decisions regarding their care, estates, etc.
Our sister has been oversees teaching for many years, coming home for only a few weeks each year (Christmas/summer vacations). For awhile, she’s been planning to retire in 2021. Two years ago, I began asking her (multiple times) to consider retiring this year to help us care for M&D. But she has refused, saying “it’s complicated” w/o giving any concrete reasons. Note that she is single, w/ no spouse/partner, no kids, no home ownership. And it’s not a money issue, since we even offered to cover her final year’s work salary/expenses from our parents’ estate. But she declined. Then COVID came, giving her a solid excuse not to return to the US due to travel bans from her current country.
I finally realized that throughout our lives, she’s always been selfish and has NEVER had my back (e.g., I’ve had my own major medical issues w/ multiple hospital stays, including ICUs ... and not once did she visit me in the hospital while she was in the US). So, I have basically let go of that toxic relationship and ceased communication (my brother keeps her updated).
Our dad died at home this spring (not COVID related) ~ he had a wonderful life and as good/comfortable a death as I think possible. Mom, brother, and I were with him. His last coherent words were thanking me for all I had done for him. It’s just too bad that my sister chose not to be here for our parents. She’s the one who has to live w/ herself, knowing that she is missing out on their final years.
Although at times I do resent the fact that she’s not here to help, I no longer expect anything of her, which has been a big weight lifted. No expectations = no disappointment!! And I can certainly look in the mirror knowing I have done everything possible for my parents, and they have appreciated my efforts.
Boundaries are a wonderful thing, If the MIL didn’t have plenty of $$, I do realize this would be a different scenario.
I provide care for both my parents who are nearly 90. They still live independently but need help with meals, meds, house cleaning etc. I have siblings who are either unable or unwilling to provide support. My parents gift me money generously each month that amounts to $15-20 per hour. They thankfully realize the work it takes and also know it would cost them much much more to get outside help.
I’m very honest with my siblings as to the monetary gifts and they are ok with it because they also know if I step away they would have to step up. I also am blessed with a sibling who will come a week a year so I can get away for a bit.
I think communication is key.
from experience , I used to always be the one parents turned to ...my yb lived there but didn’t contribute except for occasional paying a bill plus yard work which was lax. As parents became less able , he did little to step up...mom even learned to do all the car stuff , through mechanics and shops but still, I felt with bro there he could’ve assisted and would have been less taken advantage of . Then sis lost job and moved in , with adult child. Again, parents paid for everything . And I still was more the helper As mom got more infirm , sis took more on some by need others cuz she liked the control of dinner and food etc. she even made decor change decisions . When mom needed rehab, I spent days visiting and researching and finding best place..then somehow day of transfer and I get word she is going to a diff place ...never any real explanation of why nor from then on did social workers at these places contact me despite my being on list for medical decisions ..with the sister also. I suspect it was all her doing ..since at one place I discovered she had told them to contact her and she’d communicate with me..also I overheard both her and staff and learned she was misinforming them about moms condition. Pretty much she cut me out. She also was verbally abusive to my parents ...but my mom expressly did not want me to confront her about it ..was so difficult for me but I needed her wishes. I tried to help , I researched and interviewed home care personnel but then sis chose a much more expensive agency and refused to explore getting insurance to cover it quickly depleting savings. I firmly believe all the yelling and scolding had effect on not only decreasing moms quality of life but also in shortening it. She passed with those sibs at bedside while I was called in afternoon and mom passed before I could get there from five hours away. I did choose not to come to the house then since she was all ready taken away. I was never able to say good bye ..and learned that she was being given morphine which likely made her pass more quickly despite not even being in pain..but that’s hospice I guess.
At funeral, I learned more of sis’s doings overhearing how wonderful she was to have moved in to help my parents and giving up her life. She had lived there for 5 years before my mom was even declining..and only had any caregiving role in the year prior to her death. I just kept quiet..knowing that is what mom would have wanted.I had heard sis actually telling social workers this same thing , that she had moved in years ago to take care of them..and I think she believed it this entire scenario is the reason I moved just could not handle watching it happen . So in the six months before mom passed , I was not right there. Also, sis complains about not getting help but is very critical of any help. given. Even with me , when I’d take parents to doc. She would complain about what day or time I made next appt, or that a new prescription had not beeen given.Then when I’d offer to make the phone call necessary to remedy these complaints she’d decline .
since Clovid , I have not been to visit...doing weekly FaceTime instead with Dad. He has just age related decline at 91. A bit unsteady and can’t hear . Just needs someone there and his meals made and meds given. He has had aides to help him shower for a few years now again no effort to get coverage even through his vet benefits.
Now sis , bro, and each of their grown children live there. Dad pays for everything even food, 19 y/o niece not even working,
So tell me I should help
As for the recurring sad theme song, siblings no help... Plenty of us here. Look at the bright side, if you can - so long as they are not interfering, chastising or criticizing you, count your blessings! There are many posts in the forum regarding those nasty siblings who circumvent, get in the way, and make life miserable for everyone! Most of the time these siblings are looking out for #1 and what they will get when mom and/or pop pass on. They don't want to pay for help, a facility or even pay the sibling who IS doing the care-giving. It's all about what's in it for them! Some even go so far as to hire lawyers, cutting into any potential gain they might get (there might not even be any!)
In my case, I did all the research when I realized mom was in early stage dementia and explored all the options. First was to ensure we had all legal documents updated and set up a trust for her assets, I did try to hire aides, so she could stay in her condo longer, but after less than 2 months, she refused to let them in (1 hr/day only!)
So, next was locating places we could move her to. I found 3 places in the town next to mine (she was living about 1.5 hr away from me) and after arranging visits, YB finds a place we HAVE to visit too - about 5 minutes from where he was living, but I knew I would be the one doing everything else, including visits, and it would be at least 40-45 min drive for me! Comparatively, that place was not as nice and was more expensive. OB goes home and reports a place he looked into was less than 1/2 as much! Sure, it is less exp where he lives, BUT that cost he was told was only for the room. Everything else was ala carte AND there were lousy reviews.
I did have them do the actual move (mom was ADAMANT she wouldn't move so we had to have a fib set up to make her go.) Then comes the 1.5 YEARS I had to spend getting condo cleared, cleaned, repaired and sold. Very little help from those 2. Since then? OB doesn't come to visit (last trip was over 2 years ago and after one visit with mom, he refused to go again - didn't know what to do with her. With YB it was like pulling teeth to just get an answer to invites for special days/meals. I finally stopped asking.
During the whole process, their behavior, push back and lack of help was generating a lot of anger for me. Two incidents in particular (one for each) got me drafting an email to them, one for each, to explain WHY and let them know what their behavior and lack of help did to me. I would set it aside and come back to it another day, to continue it, but at some point I realized this was like a catharsis. I could get my anger out and let it go. I also realized that if I did finish and send these emails, it wouldn't change anything. At most, it would just anger them (no problem with that!) and result in more flak, so I just left the emails in the draft folder. They sit there to this day!
OB was abusive to me when we were kids (painfully physically and verbally abusive!) As we grew up and spent time with others, I sadly assumed this went away, as a child puts away kids toys. I was SO wrong! This reared it's ugly head big time during that last visit (I missed the warning signs on previous visits.) I am SO done with him. Haven't talked in over 2 years and have no intention to start. I have also learned I'm not the only recipient!
YB isn't physically abusive, but his verbal tirades are getting worse, so when mom passes, I am done with him too. For now, mom needs help getting to one appt outside the transport area, 4x/yr and I can't support her weight.
Once she passes, I will finalize burial, paperwork, taxes and have the trust release any remaining funds to each of us, then I will be an ONLY child!
You aren't alone.
Thankyou. I think I understand better. If your family has not thanked you thoroughly & properly for that onerous task, I thank you instead! Bravery comes in many forms.
No, no one is obligated to help but in my case my mom was a saint. The kindest, most loving person who sacrificed every day for us so my question was "why would you not want to help?"
You can try one more time by saying (not a letter): I've been at this on my own for x number of years/months and I need a week off. Paid employees get several weeks a year off and as an unpaid employee - I need time off too. I want 2/3/4 weeks a year from now on. I am planning to take off from this date to this date and I need the following help from you: Commit to being here to cover this period of time -or- I can locate some 24 hour caregivers to cover this week and give you the information so that you can pay the fee to cover this expense for one week. If you don't have funds to pay, perhaps you can get a credit card to pay it out over a period of months and charge it again when my next vacation rolls around. 4 weeks a year is not asking that much. 2 weeks a year is asking very, very little
Be prepared to get excuses. Plan B is going to be any friends or other family members that could do a day or so to relieve each other. If mom has any money, use it to pay for the care. Do not try to save her money so there is something left after death. Sibling will be there to get their 1/2 of remainder and never give any consideration to the hours you gave. Talk to Dept of Aging in your area to see if they have any kind of respite assistance for caregivers.
I tried it my sis. Felt weird to be asking for what I needed but then good. Arrived in a more honest place I was relieved to be in. Not sure she was (maybe prefered the veneer). I was never a live-in helper but an errand runner - needed a break from the constant calls & pressure.
No it didn't suit her & she wouldn't come. What a relief to ASK & find out though. Then I went ahead to arrange formal respite care instead.
When my sister first started taking more and more care of Mom I lived 3000 miles away. At first there was nearly nothing I could do but send money for the odd bit of equipment, then I started spending my summer vacations near or with Mom so I could help out. I finally moved across the country to be nearby.
That being said, I know my limits and there is only so much I am willing to do. Before the pandemic I was spending 1 to 2 days per week with Mom. I did not do her housework or any of the in-home chores. I took her shopping and to lunch and visited with her. Now I call her and try to keep her spirits up.
I know that my sisters would like me to do more, as Mom has many needs. My response? They are doing what they chose to do. I took care of my MIL in the last months of her life when I was 60 and I know that I cannot do that again at 70. I am doing well to do my own housework and yard work, without even thinking about taking on Mom's.
My position has always been that I will help Mom as long as she can care for herself and her home. When she can no longer do that she needs to find a care situation that meets those needs. It still is.
In our area the nursing facilities and residential care facilities did not experience a big incidence of Covid-19. Out of many one had 1 case and another had 2 cases. The rest instituted safety measures in time to prevent outbreaks. Mom would probably be safer in one of these residences than at her own home, given that she falls a lot, has trouble with sanitary needs, and can't stand long enough to cook.
Am I willing to help my sisters clean her house, prepare meals that she usually puts in the trash, etc.? No. My position has been clear for more than 7 years. If my sisters CHOOSE to provide more for Mom, good for them, but I am doing what I feel is right for me. When they want to look for a placement, I will help with that. In the meantime I am doing everything that I have committed to.
I miss my old home sometimes where I had spent years getting everything the way I wanted it, but I do not regret moving here 5 years ago to be with Mom in her final years. I also feel a little offended that they are always hinting around that it would be easier for them if I did more. I feel that I have done enough, am doing enough. If the work is too much for my sisters they need to think about what further arrangements to make. I didn't ask them to take on Mom's housework and yard work and I don't appreciate them trying to guilt-trip me into doing something that I cannot do. That being said, I do love them and we do have some good times together. My advice to anyone whose sister/brother is not doing what YOU want them to do is to ask yourself why are you doing this? Have you taken on more than you can really do? What steps can you take to lighten your load? You are doing what you chose to do. Did you make a mistake? Have things changed so much that you should re-evaluate what you can do? Think about YOUR choices and don't waste time and hurt the relationship you have with your sibs by trying to make choices for them.
1. Sibs who said they would help with Mom and then did not.
2. Sibs who complain about care being freely provided by someone else (me), but don't offer to help and don't offer realistic solutions because they are so far out of the loop.
3. The size of the caregiving job was misrepresented by these same non-helpers in order to manipulate helper into stepping up in the first place.
4. Even one-shot-deal types of help are moaned about (such as "help me move this dresser - it'll take 5 minutes") and take weeks for sib to show up to do this. Meanwhile, we see on social media that he dined at a restaurant 15 mins away during this time, but was "too busy" to help with the dresser. Would be much better to set proper limit and say he's not coming. Much better.
5. Sibs who say "I'm here for you" but then are not.
6. Sibs who call while I'm cleaning up body fluids to ask about their inheritance and how much they adamantly don't want Mom in a nursing home because they are waiting for their money and they realize NH will "take" all of it.
7. Sibs who can't give even a 1/2 day of respite care so that I can research possible placements for Mom since current arrangement is not working.
8. Sometimes, caregiving starts with something that's supposed to be temporary assistance with simple things and turns into something much more and caregiver is stuck or believes they are stuck.
It sounds like none of this applies to your family and I'm so glad that it doesn't. Most people and families seem to not communicate so well - which is evident by many posts. Plus, some caregivers (myself included) are so stressed that we don't know what to do and all the light has gone out of our lives. In that state of mind, it's easy to be upset when someone calls about an inheritance but doesn't have time to move a dresser. Even just having sibs willing to discuss the situation realistically would matter so much because it's still their LO as well as my own. I'm glad you posted this, because I have been on the other side of it as well and you pointed out some important aspects of that.
My youngest brother is 11 years younger than I and 8 years younger than middle brother. Whole different generation, and although we thought he was "coddled" he had a rather fraught relationship with my parents.
My POA brother had the best relationship with parents; he was often serious ill as a child, took up a great deal of attention due to that and also had some learning and behavioral issues that caused him to be very much the focus of attention.
And then there is the fact that elderly grandma moved in with us (mom initially resisted this the first time grandma broke her hip, but decided to house gma after second break several years later). My adolescence was taken up by ill brother, ill grandma and baby brother tending. Not much ability to grow and develop there.
When mom started to decline in her late 80s, I was happy to lend medical expertise and visit once a week, but made clear that I could in no way be a full time caregiver. Both brothers also were not able to provide this. Mom went into Independent Living at age 88 and transferred briefly to AL at 90, broke a hip and went to a NH and lived there for 4 1/2 years.
My point is that all three of us had very different experiences of our parents. Brother in the middle saw my parents as nurturing and caring; child number 1 (me) and youngest brother? No so much.
Get your parent(s) what they need, but don't expect your siblings to have had the same experience that you did. Parental care and love is not always distributed equally and having been told often as a child to "suck it up" when I had challenges that should possibly have been attended to made me a poor candidate to be a hand's on caregiver to my mom.
I knew that when my mother became anxious, wringing her hands over things that were not happening and were not going to happen that my default setting was to tell her to "suck it up". It would not have been kind, nor would it have been helpful. Getting a geriatric psychiatrist to see her and professionally treat her was the kindest and most useful thing I could do.
Yes, Arimithea, there is selfishness in the world. But consider the other possibilities.
disappointed in my siblings when it came time for us to pay her back for all she had done for us.
Oh, I did tell them I would be spending their inheritance to buy the help that I needed and couldn't get from them.
Lead,
Follow or
Get (out of the way)!
we took on responsibility for my husband’s brother when his elderly parents could no longer handle him. We took him on while my then 8 year old daughter was undergoing cancer treatment for a brain tumor. We recently lost her to the cancer after a 22 year battle with her cancer.
my husband’s sister lives in Arizona and we have asked her to have her disabled brother come stay with her a few weeks
and give us a break but she says her husband will not put up with that.
my brothers and I are doing ok with my mom after the one brother seems to be helping a little more. Think maybe she would no ask him. I could go on and on there has been so many things going on with my brother in law and my mom. I’m tired and used up.
I had to call them out and speak up to get it to stop. I even bought it up to my grandma who would praise them when she sent my cousin to get me to refill her coffee when I was getting ready for work.
My gradma was not kind but she praised the siblings that didn't help while I got the most criticized and did most of it. The sister that came to bathe her and eventually caught on as a regular thing and came often when she realized she needed it was the only one who did not criticize me. I would try to bathe her when I got home from work but she wanted a morning bath but didn't want to take it early enough so I can leave for work. She wanted to take it right when it was time for me to leave for work and wanted to fill the tub and make it a bubble bath to be difficult on purpose. My sister caught on and started to come and give her a bath. This one never came to me to say grandma said you are not doing it right but the cousin and sister that abandon me would come over and inspect the place. They were supposed to help and there was supposed to be a caregiver but I learned that the sister said it doesn't make sense to hire one since I am living rent free and put it in my grandma's head. They would also give her alcohol and leave and tell me I can't leave because she can't walk on her own since she is drinking. The only breaks I was given was to help my sister and I had to come back after helping her exhausted and grandma scolded me for not going with my sister to her AA meetings when I couldn't even leave but didn't say anything to her other grandchildren
Just tell called them and said I received your lotto ticket but not your reply for help.