Severe Alzheimer patient forgets how to push healthy soft stools out. Needs to be fingered out every 3-4 days. Tried all stuff to promote diarrhea - nothing. Not pleasant task. Guy is still healthy, likes to walk, eats well - lots veggies/fruit.
Any other suggestions to cope?
With age or inactivit, the peristaltic action of the intestine slows down. Often even soft stools are not evacuated. Sometimes more fiber or even softer stools are necessary to get things moving. Have you discuss this with the doctor? Ask about docusate sodium (DSS), a stool softener. There are a couple of fiber additives that you can stir into water or juice and virtually disappears. I don't think you have any luck trying to get him to drink psyllium or Metamucil. I didn't with my mom. She never had any hard impactions or true constipation but because of surgery for an anal fissure many years before, she would get rectal blockages and the only way to get things started was digital deimpaction. Kinda sounds familiar. 2 doses of benefiber or citrucell + 400 mg of DSS daily, plus a good diet usually allowed for natural evacuation. Be sure to talk to the doctor first.
Good Luck
the guy is 80 yrs old and AD since 2002. so we are getting to the end, but it may be a long time coming as he is so fit. still walks, eats and sleeps well. mostly cheerful but can get easily tired when he will get violent a bit. does not really hit me - just threatens to do so! I follow the advice, leave him alone for a while to stew.Then I manage to get him in bed, he falls asleep immediately and wakes up angelic!
Was incontinent since last summer. Now, if timing is right, can pee in toilet but the poop is stuck. I can tell because a wipe is dirty. He has not wiped his own bottom for years! Pull up diapers are wonderful, hi-tech material means it can hold several pees too without getting sore cos of one way pass through layer.
He is not constipated. As there is indication of poop from a wipe - and even if I sit him on toilet for hours with a magazine to flip , he does not push out! the indication is there every 3-4 days. When we do a finger job, there are huge amts to pull out. He does not help much, but standing he does sort of bend a bit, which makes it easier to finger out. S o not constipated and this is why I am trying to give him diarrhea!
He eats oats daily, Plenty of green vegetables and fruit. Prunes and prune juice, fresh oranges, yoghurt, blueberries. You name it, he eats it. He has a very very balanced diet.
I could give him a soapy enema every now and then instead of the fingering. it will be real messy and not sure if he will submit to this as it is better done lying down. His comprehension is very slow , if at all, so he mostly does not co-operate.
coping with him for11 long years and I have had it. I wish he would die soon. Yes it is depressing, but I cope and have to get on with it. When he no longer recognizes me and is bed bound - I will get him into a home. By then it should be the end.
I do not think there is any suggestion I have not tried. there is no blockage - he just does not push any more.
Gwendo
Ativan keeps him calm. I used to give him a dose daily, but he also just got sleepier and sleepier. It works within 1/2 hour and he is very happy and co-operative and then passes out almost! I managed to get away for 10 days to see my son. On my return he was so happy to see me, that I stopped the Ativan. he has been off it for over many weeks now. Beginning to get more grouchy and so I give it sometimes. I think it builds up in the body too much.
Come to think about it, the bowel problems began around when I went off in March. My absence triggered it? The report I heard was he was quite happy and manageable in my absence. I found a wonderful live-in helper last year and she saves my sanity. gwendo
PS...GREAT advice from all of you for my future reference!
It is a spouse, married for 54 yrs and knowing all his funny habits, its hard to put him in a home as we are coping still. I am very fortunate I am very fit n healthy with physical strength to push and pull him. though this is getting harder.
Before he became completely incontinent, nights were very disturbed. Pooping was no problem either. Now I sleep all night! How to do it?
I got a hospital type bed, so he is 'trapped'! Now easier to pull him up too.
I change from pull up to wrap round diaper at around 11pm and also hope to get him to pee in the toilet first. I try to make sure the diaper is higher at the back than at the front - not easy as spouse is not helpful and his hands hang on the diaper as he stands.I need to take it slowly!/. When all done we can all sleep the night until morning. Sometimes the towel and plastic sheet under him, as well as his pants are wet by morning, sometimes if diaper done well - all is clean!
Another tip is to give him shorts to wear at nights that has tabs for a belt and to belt the shorts tightly. Men like to put their hands into their pants and 'fiddle' - pee comes out all over the stomach and the bed! Now that problem is solved!
Showers just take a bit of time to persuade him to go into the shower. Once in we get it done very quickly, sometimes some resistance.AD patients cannot see water and it frightens them.
I do manage to have a life as I send him out to day care daily. I am lucky to be able to afford this, as well as a live in helper since last year. It costs me less than residential care.
so my one problem is the poop! I will try giving him magnesium as one of you suggested. I take them myself as I get night cramps when I walk too much.
It is these last three years as we go into end stage that has been hard. After what was a long and happy partnership, it is the least I can do for him - even though it has become more of a hate relationship now.
The end must be near soon!
Gwendo
Caregivers of AD need to be smart.,Doctors not much help. If you tell them they are getting rigid - is it Parkinson's - they will say maybe but offer no other help. I need to go on-line, look up symptoms, find if there is medication and then go see the doc and tactfully ask if SINEMET might work! So no help with the bowel problem either, except to treat as constipation!
thanks, Ferris1, for suggesting magnesium. given once so far - 175mg and going into 2nd day. Interesting! In middle of last night for a diaper change. he is sitting on toilet, did a pee and unwilling to get up. Asked if he has poop. He says yes! I did not believe and got him up and yes he has poop indications when wiping his bottom. But he still does not push and we need to finger it out. but it is a step forward that he knows he needs to poop. And this is less than the 3-4 days since last 'fingering'.
So with more magnesium and Sinemet, we may have more reaction. I will keep you all posted!
Thanks for all the hugs and encouragement. We all sure need it with this terrible disease.
Gwendo
As and aside, if you want a magnesium supplement for nutritional deficiencies or because a doctor has recommended it to aid in heart function, my opinion as a nutritional consultant is that the best contains Albion (patented lab process) chelated Magnesium Glycinate as the most effective and biologically available form. Magnesium glutamate and magnesium aspartate should be avoided. Magnesium Citrate probably won't hurt you but isn't as absorbable as the glycinate. Albion licenses the use of their ingredient too many well known brand manufacturers, although they tend to be costly and not discounted. I I have found that Swanson vitamins.com use Albion in some of their private label mineral supplements at quite a savings. Caveat: the caution here is to read the label ingredients because once and also carries some of the mineral forms that I do not recommend.
One good thing about end stage is the patient sleeps a lot during the day. The brain is diminished and gets quickly tired with any kind of activity ranging from a shower to eating a meal. This gives needed respite for me as at week ends, I am coping on my own.
Pills have to be ground up and mixed with food as this patient spat out large capsules/pills a year ago. He does not seem to mind powders on a spoonful of any food. I also need to give liquid forms of Omega fish oil.
Thanks for all the tips. This is a wonderful blog to get needed helpful info.
Gwendo
Lying down for an enema is the ideal position but if you insert the catheter as high as possible before he sits down you can do it on the toilet. You need a regular large guage catheter which can be reused if necessary many times and as much as several pints of warm soapy water. It won't harm the rectum as it runs right out into the toilet like a lavage
For SYSTEMIC (internal, cellular) supplementation, the body is is calcium and magnesium in an approximate 2 to 1 ratio. That's why many supplements contain both calcium and magnesium. If you want the highest level of biological activity and assimilation, please consider the magnesium glycinate, as stated in my previous post. You probably won't find this yet in a combination pill because it is a newer form of magnesium. If you want to take it in conjunction with calcium, please take Albion chelated form of calcium or calcium citrate (such as CitriCal) as a second, but not preferred, choice. Calcium carbonate is a cheap calcium ingredient and not highly absorbable compared to chelates. If you want to take both calcium and magnesium for systemic supplementation, it is much better and more bang for your buck to buy individual supplements made the best ingredients.
If you want the magnesium to be staying in the digestive or intestinal tract and not be absorbed much for the body then plain, unadulterated, magnesium oxide (pills or pills crashed into powder) is the best choice. As posted earlier, the magnesium hydroxide and milk of magnesia is also effective (Phillips cherry flavor is the most palatable). As has been posted by users of mag ox, you have to adjust the milligrams differently for each person to get the best results. You should not use a calcium magnesium combo supplement when you're trying to affect bowel function. If you think systematically, using a magnesium oxide intended to stay in the bowel in combination with a calcium intended to be absorbed, you will inadvertently the throwing of the systemic Cal Mag balance.