I am trying so hard to keep things together and stay calm with my mother but there are times when the things she says and does hurt so bad you just want to get up and walk away, Never to turn back!!! I can't get away because of the way she is and I know better. Everything I do is always wrong! My nerves are shot and my anxiety levels are through the roof!!! We are looking into putting mom in a memory care facility but I am feeling guilty about that too. HELP !!!!
Seem to always be crying about everything!!!!
So... how do we deal with this? Self care. For me, anyway, this is how I deal with this craziness. You have got to find habits that bolster your own mental/physical/spiritual/emotional well being.
I juice veggies everyday. I do some form of exercise every day. I learned to do Breathing Exercises that naturally calm the mind. I get on this very website and participate in a "vent" thread every day.
Only by doing all of these new activities can I begin to have clarity where the lines are drawn... otherwise, its hard for me to not just go down into a big emotional-frizzle ball of frustration... where I can no longer make any rational decisions about what to do next...
DON'T go down into the frizzle ball! ;D Do whatever it takes for you to catch your breath and get perspective. This means taking a big break from the constant stress. If you can't do this physically, then learn to do it mentally. I would start with learning to do breathing exercises... just type in "breathing exercises" into your Internet search engine and learn about them. They are wonderful and act like a natural Xanax on the mind. Good luck, sweetie!
Out of fear I think a lot of the behavior started, because now she had to handle things which she never had to before. But she still always had that level of behavior. For instance, I discovered that she was saying things to adult friends of mine to isolate me for being available to just her. She told relatives I was too busy working when they would call her to get my number to let me know about a family event. At one point she even wished me dead.
The only answer I can offer you is first decide where the lashing out stems from. Is it a lifetime event, or related to her current position in life. Then you need to examine the boundaries in your life if you have any or do you need to increase the one's you have.
Boundaries was a huge healing point for me emotionally because that told me, she was choosing her behavior, it was not my fault. It allowed me to still care for her at a distance, where she lived in assisted living because there is no way I could or would take care of her in my home with her behavior. She wouldn't be happy in my place or assisted living, so I chose the assisted living where at least I could get space between she and myself and at least know that I was caring for her.
I think you need to make some determinations for yourself and look into what works and doesn't work for you. We can all share stories, but the fact of the matter is you have to decide what is it that you and you alone can live with after she's gone.
For me and my situation, I can say for one I have no regrets, but I do not miss my mother. The only thing I miss is that I wish she would have learned that she had it all and the fears were false in her life. But I do not miss the emotional agony she put me through. Learning what true emotional freedom is like now that she's gone has been a really challenging road, but one that I am finally learning to enjoy! You have to decide for you
Do not feel guilty about putting her in a memory facility. You have a right to be healthy and sane too. You are a caregiver, not a martyr. I recently went through a period where my nerves were shot too from caring for my mother, and putting her in the hospital twice in two weeks, then in rehab. During this process I realized that I can't take too much more of all of it. I have had two weeks to rest and recover some, but even after my mother returns home, if she will not do the exercises necessary to keep her mobile, I will have put her in a NH, assisted care, or do something. I have also considered having home health aides come in twice a week to give me time off to care for myself. Caretaker stress is very high for all of us, even when we have skills to cope with. There just comes a time when you have to draw the line and put mom or dad into skilled care that is equipped to handle all their needs that one person can't handle no which way. Drop the guilt. You have done everything humanly possible to take care of your mom and have hit your limits. Put her someplace where they can care for her properly and take care of yourself. Actually, when the decision time came, there was no guilt because I was in survival mode. That's when the guilt disappears and reality takes center stage.
I have scars where she knocked me around and put me in a hospital when I was about 6. I learned to avoid her at a very early age. Now 87, in a NH, with Parkinsons and dementia, unable to walk since breaking a hip, her nastiness, dementia and paranoia have increased alarmingly. She barely eats anything as "It's not to my liking" and is skin & bone but offers to take her food she likes is met with a fierce "No". All she does is sleep, so I guess the latest game is "Martyr".
She's manipulated and verbally abused me forever, worse the past 15 years since dad died. She has no friends, having alienated the few she had over the years and, as an only child, I got stuck. I've had the phone company there 4 times recently because she insisted her phone wasn't working - can't dial it by herself any more and the phone bills I get often have wild long distance calls where she's tried. According to the phone company they either find it in a drawer where she can't hear it or she's turned the ringer off.
Never mind I gave up my home and career to spend 4 years housebound in her cold gloomy basement to care for her, everything is and has always been my fault and all she does is bellyache, demand, demean and generally be nasty, even accusing the NH staff of abuse recently, which is rubbish as they're wonderful. I give up. I'll go see her next week with some strawberries I have ripening in the garden and if she's nasty I'll walk, probably never to return.
Yes I've made my decision but I live in constant fear of what will she try next so she can be the centre of attention. If she can dial she may call the cops to complain of imagined abuse at the NH (I've warned them) or send the cops to my house for whatever cockamamie reason she can make up - did that some years ago because I didn't answer the phone immediately. I have POA and now she's trying to hold "her money" (as always) over my head. Won't work sunshine! I'm not wealthy but I have a wee house that's paid for on 2 acres (needs a ton of TLC, but I love it and it was all I could afford) and money of my own.
We feel guilty and it's so hard to walk away but, in the end, we have no choice. Take a look at the website daughtersofnarcissisticmothers.com. My mother is there to a T and perhaps so is yours. We are conditioned from an early age by these evil entitles (can't call them human) to take any form of abuse they wish to dish out without being hurt or complaining. I look at that site and this one often and that gives me the courage to make my last stand. Just call me "Custer" :). You're not alone. We have all given everything we have and then some, but the abuse just escalates. Why? Same reason a dog licks himself ... because he can!
Up so early this morning I'm going to take a nap with my precious dogs and perhaps cry some. Bitter am I? Yes! hate her?, Yes! angry with myself for putting up with it for a lifetime? Yes! I'm 64 and I'm determined to rebuild my life. My duty is to take care of her investments, pay her bills and ensure there's lots of cash so she can have the best care, but there it ends. "Mommie Dearest" my whole life, in recent times she's tried to hug me and I totally recoil. Too little too late.
God Bless you all and know that you're never alone.
Sometimes it is the dementia that causes rather than exacerbates the behavior, as in a recent case here where apparently custodial grandparent first became unable to manage the housekeeping, and then their temper, and injured the child severely and permanently...someone should have been watching more closely!
I am doing my darnedest to make myself over into a nice person, and develop the habit of admitting it if I get overwhelmed....hard to break the habit of hiding that particular emotion though, it is too often a necessity of life in the real world! I may even try to tone down my sarcasm a little.
During the last 10 years of her life was probably the most miserable and most difficult for me. Add that to a marriage of mine that was highly dysfunctional (I think some courtesy now my mother when I look back), I hated her in those years. I dreaded every moment because of how I was treated, but I also knew that she knew no other way because she had lived that way all her life. So boundaries were VERY important to me with her during the last four years after I spent the prior six years realizing just how dysfunctional my family life was. Oh man! Hard years there!
I just got tired of people saying to me "Be nice, you'll miss her when she's gone." Well I don't. I've been in counseling for a lot of years and the one thing I learned was that it was okay to not miss her. I think deep down mom knew that because she competed with me for the attention and respect I gave my father. That was never a secret.
In the last four years of her life I cannot begin to say how she lashed out at me verbally. My husband (still married to same one), saw how vicious she was and for the first time, he "got it" after 15 years of marriage.
But through all of this, the doctors documentation, dealing with lawyers, getting friends and family away who were taking advantage of her due to her severe fear and anxiety, and the gambit of momma drama, I did everything to the point where I could do no more and eventually she had to make choices of her own whether she liked it or not.
So the mountain top of mom has been such an adventure, I've learned to take that pain and God has taught me that stubbornness I had to survive mom makes me a survivor!!! I've turned all of that which I learned from mom (even though negative) into a positive. I'm stubborn as hell thanks to mom and I've learned how to confront issues and not be afraid. That stubbornness has held my marriage together for 21 years now, and I am developing an organization that provides shelter and aftercare for victims of human trafficking all because of the stubbornness my mother taught me through all her miserable life. That stubbornness is going to be perfect for the new adventure!
For all of that I'm grateful. So now that she's gone, I don't miss her at all, but what I regret is that she never lived the life God had for her, which was perfect. But I can do nothing about that now except to enjoy my life and I'm doing that! Now removing those tapes in my mind are a bit more of a challenge, but I'm getting through them! I refuse to be a prisoner of that attitude any longer!!
So Ashlynne, take that pain and allow God to transform it. Even at 64 He can make something incredible out of it if you can let go of all the hurts.
Until there is a problem and people have a need, many don't find out until that time just exactly what the difference of "long term care" vs. "medical insurance" is. The way I came to look at it, to separate the concept, is that the insurance is for more or less acute care requiring doctor intervention and when the patient can be treated and possibly healed or the condition improved. By contrast, long term care is for chronic situations where the patient will probably not improve and where the condition will eventually lead to their demise.
So you and your sisters are now in a position of having to navigate the Financial maze of Medicare and possibly Medicaid (depending on your moms home and other assets). Your mom already has dementia so some of you do or are going to be able to do is going to depend on what you've already got set up, like medical and financial POAs, a will, a trust, etc. or the possible need for conservatorship/guardianship.
Have you been working with your mom's doctor(s)? She sounds like her dementia is pretty for advanced. It seems to me from your statements that you guys are floundering a bit when it comes to the concepts of dementia. Do a lot of reading here. There is no need for your family to "reinvent the wheel", so to speak.
The truth is, dementia changes a person. You no longer need to worry about what your mom used to be or what she used to like. She is most likely going to be very different now. When the disease progresses to the state that you have described, it is typically manage my medication. One member recently posted something to the effect of her mother not being appropriate for nursing homes because she was combative. But that's exactly one of the reasons a dementia patient IS appropriate for a nursing home. At that stage, they become a danger to themselves or others and their personality changes MUST be medically managed.
You haven't mentioned any medication. What are your moms doctors doing in that regard? Anything yet? Even the depression that sometimes comes with the disease may need to be medically managed as well. You speak of not wanting your mom to be in a nursing home because of the possibility of bringing on an early death. But you and your sisters need to understand that this disease is not one anybody recovers from. It ALWAYS leads to death even though the timetable is different for each individual.
This is the torture of dementia. Hard on the patient, hard on the family, and hard on the family watching it be hard on the patient.
Since you are new to this site, rather than have your situation and questions get lost within the posts/thread of another, may I suggest that you use the right side of this page where you can start a new question or discussion specifically about your feelings or your mom's condition or whatever. As you read and learn more and more about her disease and her condition as well as the struggles family caretakers have because of their loved ones health, you will get support, suggestions and ideas from being here. Welcome!