I am 80 yrs old and have mobility and neurological disabilities. I feel almost everything is on me. He isn’t even that bad yet compared to others. I find myself dreading the future. His short term memory has caused so many issues. He has lost his hearing aid, his earphones, house key, credit cards, etc. I am so tired of repeating myself over and over. He constantly picks at his hair, his mustache, his clothing. I know he can’t help it. I have tried many techniques to help with memory issues, but most don’t work. I am sick right now with diverticulitis. So I guess I am kind of cranky. Please let me know if you have found T. Snow's work helpful. Blessings to all.
We all have a point where we are not able to handle what we might have earlier in our lives.
I often wonder if I would be able to care for my Husband the way I did now. I am 6+ years older, I have a few more aches and pain than I did back then. Who knows.
I know of many people that are far better Care managers than they are Caregivers.
I do know it does not get easier as dementia progresses.
YOU know your limits.
YOU have your health to consider.
Admitting that caring for him is more than you can handle alone is a difficult conclusion to come to.
Your options are:
*Getting help to come in and help you and him. And that is the big think the help is more for YOU than for him. Helping him is helping you.
*If there is an Adult Day Program in your area look into getting him involved. Not only will you get a break but he will also. And he will get interaction with others. Generally a breakfast, lunch and snack are served. Activities and sometimes day trips are included.
*Placing him in Memory Care. This is not giving up, not a "failure" it is recognizing that his care is beyond what you can safely do at home.
I wish I had a Dime for every time I wrote or read "Caregivers need to take care of themselves" I would be sitting someplace warm not in the Mid West at -3 degrees!
But it is true you need to take care of yourself. YOUR health is important.
He needs you to be his loving wife and friend, not an exhausted, overworked aide. Going forward as he worsens, he will need a trusted loving friend more than ever. By taking care of yourself, you can better the love and care you have available for him. Best of luck and love in this challenging and heartbreaking time.
Don't strive to 'be' Teepa Snow b/c she's an instructor, not a Goddess. Strive to do the best you can using tips and tricks you glean along the way and that's IT. Nothing replaces bringing in help from the outside, or even placing your DH in Memory Care if his care becomes too much for you to manage.
I suggest you read this 33 page booklet which has the best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia. The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
Here is a list of useful tips from her e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Please take care of YOURSELF as well b/c your life is just as important! Get respite for DH so you can get to the doctor and just OUT of the house to revive yourself.
Wishing you the best of luck.
Her methods could work if the person with dementia being cared for has a full staff of professional caregivers working only for them 24/7. Even then most of the time these methods do not improve anything.
Most people taking care of a dementia patient at home are on their own. They are family who most of the time get no help and are flying blind because they don't have a backround in this kind if care.
Don't beat yourself up at your age and with health problems of your own to deal with because you can't be Teepa Snow.
Teepa Snow is a flake who makes videos. I don't think she could keep the perpetual patience going if she actually had to take care of an elderly person with dementia alone day in and day out 24/7.
You're the one actually doing it.
Now might be a good time for you to consider getting some homecare services or even a memory care facility for your husband. Many of them have assisted living for spouses who are not in need of memory care.
These people work shifts, then go home.
They may not even work full-time.
Most of them are probably under 65.
You, on the other hand, are doing all the work of ALL those caregivers, 24 hours a day, 7 days a week. You don’t get to leave your job and go to another location to rest, and re-energize.
I bet even Teepa herself, would lose her patience if she was 80, and doing round the clock care, solo.
I tried being some of these techniques, and I almost got the heck beat out of me by one of these clients. I respect their space. There is no standing there trying to calm the situation down when someone gets caught in a loop of interrogation and no matter what answer you give them, they just get more agitated and angrier. This is when I make sure they're safe, and I keep my distance until the situation calms down. I stop interacting.
All people are different. Personalities are complex as it is. So, no. I don't think these videos are a catch all and blanket resolution for each situation.
Dealing with a person with dementia is stressful as heck. I know some days all I wanted to do was go home and sleep. Other days, I could sit at the same table with them and have lunch. Other days, I had to keep my distance but get the work done.
You can always tell when an experienced caregiver is on the scene and someone mentions Teepa Snow.
Right you are, my friend. Right you are.
What DID work? Meds. She was too anxious and terrified and we had to give her medications to help her just get through her days without extreme misery, or hurting herself and others. I don't regret medicating her a bit, because she could finally relax, sleep, and smile again, and sometimes we could even enjoy each other. She stopped screaming at me so much and hating me for "doing this to her." She still had episodes and was at times angry, but not violent or rage-filled as before. After many, many months (years, actually) of this, her Alzheimer's advanced more and she became sweet and docile again. Now, I can be patient with her and the Teepa Snow-type suggestions are, at times, helpful. But on their own they were not for us and I felt so discouraged and upset because I was desperate for help and her videos made me feel like I wasn't being patient enough, and like I was doing wrong by my mother. I wasn't. Her Alzheimer's did her wrong, not me. I know that now, looking back. Teepa Snow is great but not when you have a more extreme case. I feel so sad for people who watch those videos and don't find any help or hope, and end up feeling worse or like failures.
I would suggest getting as much help as you can, so you get regular breaks. It's too much to handle for one person. When you burn out, you have no patience left and yes, you give in to that resentment, which is 100% human and happens to everyone. But you need to make some changes so that you're not feeling impatient or resentful all the time, you deserve to feel better and your spouse deserves the most and best care available.
It sounds like you are at the point you need some help with your own health. I would maybe look for an AL you could live in together for a while. Find one with a memory care unit attached so when the time comes your husband can be moved there and you can easily visit him.
I’m sorry you are going through this.
Teepa Snow is wonderful (YouTube) videos and she also wrote a Caregiver's Guide to the different stages of Dementia.
From what you say in your profile this is comparing apples to oranges. It sounds like you need someone to take care of you. As is often the case when both man and wife get up into their 80's it's not uncommon for both of them to need assistance.
Can you both possibly go into an Assisted Living or bring in all the services you can get your hands on. A Social Worker and your Primary Care Doctor's can assist you. The Primary Care Doctor can write up an assessment with the services that they think you require.
Don't be stoic about this. I would call on the troops and bring in everything that your health insurance will cover. Also, in the mean time, if you to decide to make a move what about one morning a week respite for your husband--oftentimes transportation is provided, continental breakfast, hot lunch and p/t/ with a doctor's order.
You cannot do this alone at your age and don't feel guilty about it. Half of the country is doing this. I know of a couple where the father went to live with the son and the mother with the daughter, it was the answer for that particular situation.
Teepa Snow is wonderful but techniques alone do not sound like enough with what you are going through. But it also sounds like you are open to information. I hope all of here on the forum can be of some help to you. You do, however, need "a team" in place as things progress.
You are very honest and upfront, I admire you. My prayers are with you.
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