I would like to hear stories about how your health has been affected by sibling(s) that refuse to help you with parents' caregiving. Speaking for myself, I've had high blood pressure and am fatigued most days. I basically consider myself a calm person, but having to deal with impossible to get along with sibling(s), it is really an emotional and physical strain. In addition, do you plan to end the relationship with your sibling(s) at some point that do not help you with caregiving?
I got ZERO help from my 5 siblings. They all shunned me once Mom had passed, and I will NEVER speak to any of them again. The oldest sibling sexually assaulted myself and my little sister when we were just little girls. The other siblings have NO IDEA that the patriarch of what's left of the family is a child molester who cared only about discrediting me just in case I decided to tell his secret that I had kept for 50 years.
If I had had a weapon when Mom died, I would have shot this pedophile and happily spent the remainder of my life in a jail cell.
Caretaking brings out the WORST in dysfunctional families. I'm done with all of them.
When my dad died, being the medical person in the family, it was mine to oversee & so I did. That was 22 years ago. We all seemed to rally to help dad.
Mom had died when I was 22. I am now 68, an R.N. & a full time care giver.
I have found to remain "ever present", is the key for me. Sounds easy-lol-it is a life time dance. Family?? Everyone is my family. Family of origin-look about you....look in the mirror. If as individualizes, we can't look with in & see the LIGHT-look to your mom & find it -it is there. Go moment to moment-it is all we have anyway. Blessing are you, your mom, & all of us & if I (I will own this), can't put my arms around an idea/a thought/ which I can't, I have found that it is through another human being that I learn, can hug & can love for if I can't do this with another, how can I do it for myself?
At the time she literally lived about 100 feet from my brother and yet she would not see him for weeks. Not to mention, never having the medicines that she needed in order to not land in the hospital. Or even groceries. That's why my mom was literally moved to my town, without my input, so that I could care for her. Because as they see it I don't do anything.
My sister, true story, one time that mom was in the hospital ER, went to see her for 5 minutes and said that she had to leave because she was going with her fiancé to his parents wedding anniversary party. Never in my adult life have they ever called me to see how I or my family are doing. So of course, the longer and more intensive that my caregiving has become, the more angry and resentful that I have become with my siblings. I have tried so many times to communicate with them by phone, email and regular mail to no avail. Family meetings? Well, I speak all I want and nothing ever happens.
They have always seen me the "sister of convenience", because as long as I don't complain about how tired I am or that I and my family want to go somewhere, then all is right. Any communication we have had has always been initiated by me. Any responses have been grudgingly given but to say that they don't have time. Yet, they call and email each other all of the time and they coordinate time off to go on family trips with each other!
I have had to have many a serious talk with my mom because in her own way she too has made things even more difficult for never really giving me my place in front of them. I think she is afraid of them, so no telling what has taken place between them privately. I do know the few times they come to visit her BP goes sky high. Yet, she acts as if everything is perfect. Very strange!!!!! She won't ever tell the truth because she is the type of person that can lie very convincingly.
Like others here, I feel happier when I do not have any (what little there is) interaction with them. Of course, this means that I no longer will try and do things just for mom's sake. 18 years have taken a toll on me mentally and physically. My siblings truly do not care for me and that is so obvious in their actions. For myself, I may be a little sad for losing what little and very stretched sibling relationship I may have had. But then again, how can I truly be sad for something that never existed. I am so happy with my little immediate family whom I know and feel how much they love me. Yes, sometimes we do have to break away from things or people who cause us more pain than happiness. Whether family or not....
Every day I pray for us caregivers who are in this daily war. God bless and strength to you all!
"You don't ever have to feel guilty about removing toxic people from your life. It doesn't matter whether someone is a relative, romantic interest, employer, childhood friend, or a new acquaintance. --You don't have to make room for people who cause you pain or make you feel small. It's one thing if a person owns up to their behavior and makes an effort to change. But if a person disregards your feelings, ignores your boundaries, and "continues" to treat you in a harmful way, they need to go. ~Danielle Koepke~
I have tried to have a relationship with my brother for many years, but the relationship is just toxic for my mental health, so I have chosen to cut him out of my life. I wish him only the best. It is just not in my best interest to have a relationship with him. I know it hurts Mom that we don't get along, but I have decided that I need to worry about me for a change!
• Around the time I turned 60, just before Mom became sick, I was sitting on the examining table at the doctor’s office for my yearly checkup, thinking, “I feel great!” In a matter of weeks, because of the dramatic increase of caregiving demands, fatigue, aches, and pains began to get the better of me. WTDAM p.11
• If the expectations we had coming into the caregiving relationship are not fulfilled, the seed for conflict is planted. Our expectations are born out of a sense of fairness. Imbalances of responsibility lead to bad feelings among siblings and to caregiver burnout. “Doing one’s part” is open to interpretation. You are not in control of your adult siblings, and when you try force your will (no matter how justified), it provokes a wide array of negative emotional responses. WTDAM p.60
I also address the issue of maintaining sibling relationships.
• There could be healing someday if you and your siblings find your way to let go of grudges. But you may also have to learn to accept that sometimes relationships are broken beyond repair, and it’s just not your job to fix them. Whereas childhood relationships with brothers and sisters are involuntary, maintaining them in adulthood is not. We are entitled to choose “not.” WTDAM p.113
With that being said....i am in the same position....i live in the same town as my parents...my mom passed away last year leaving my 90 year old dad alone....he is in the starting phases of dementia, and is suffering (for many years) with PSTD and can be very nasty, mean to me yelling & screaming....he insists he wants to live & die in his home...and that he cant deal with everything which he cant....i am the one who pays his bills or setup for automatic payments directly from his bank, i look after his grocery shopping or at least I did until recently when he yelled at me one too many times so I left and told him to call me if he needed me....that was 6 weeks ago!!! I have POA so i can still take care of all his bill etc from my home....my hubby has gone to visit him so i know hes ok...got him meals on wheels so i know he eating. As for my 3 siblings my sister who lives just an hour away has not seen my dad in a year and talked to him last on xmas day...my brother lives 4 hrs away has come to see my dad once in the last year but calls him every couple of months...my other brother lives 14 hrs awsy and calls my dad about once a month but my dad is always nasty to him as well. Am I angry they dont stepup and help me more....angry is a strong word but im disappointed for sure!! I have COPD and just recently had to add oxygen into my house...i also am having other issues which are more than likley stress related. Thats why ive had to step back from my dads care...i have called his dr & mental health and informed them of these events. All i can say is look after yourself 1st and if ur siblings dont help get the help u need else where ..... good luck xo
Say tell the siblings point blank you need help and if they don't, screw them.
One of my sisters will come and transport my mother to the doctor's office and sometimes my brother will do this also. My other sister will help out if she doesn't already have something planned.
I am finding that Caregiving has taken over my life until I don't even feel that I have a separate identity. I do not have any friends or acquaintances in the community where my mother lives.
Last spring I became so tired that I needed to see the doctor. The doctor told me that I was suffering from exhaustion and chronic fatigue. I told my siblings that I needed more help. One of my sisters wrote me an e-mail and said that she thought that I was going to be able to stay with mama and that if I could not - I could go on home and the three of them would decide something about mama. Then my brother wrote me an e-mail and told me that I was a horse's behind and said that I was lazy and stupid...and that I was either crazy or a lunatic or both.
I am constantly depressed because I feel that I am being so disrespected by my siblings... My mother gets tired of seeing me all the time and is sometimes very "short" with me.... Then when she does see my siblings, she is so sweet to them...
Another year has passed and I find that I am still tired and exhausted...sometimes have trouble concentrating...and it is just a chore to try to do anything... All of my siblings have been on vacations with their families. I have not.
When my siblings do come in to stay for a day or so, I find that I need to go back to my home 100 miles south to check on things and spend the majority of this time not resting but trying to catch up on work that has been neglected
there at my property.
Recently, one of my sisters and I made an arrangement whereby I could go home for a week or so. She was planning to take my mother to her home to keep her there since she also has a husband who is handicapped and she cannot leave him at night. My brother came over to visit and found out about these plans and because he does not like my brother-in-law, he got very angry and said that HIS mother was NEVER going to stay at their house...that HE would see our mother in a nursing home before that would ever happen. My mother was present when he was raving and carrying on...and then she said that she would not go to my sister's home because it would make my brother angry. My brother has my mother's POA, and it is obvious to me that my mother is afraid of him... My brother then said he would stay with our mother for several nights so that I could leave but that he could not stay all week because he and his wife were going on a camping trip. So, that puts me right back where I started....with no help...and no emotional support either...
I have been under a lot of stress because of all of this and did finally go to a support group in the area so that at least I could have someone to talk to...
I have begun writing in a journal and trying to carve out little portions of the day when I can do things that I enjoy...
I do enjoy my mother's company and do not mind helping her and spending time with her...but I had not planned for Caregiving to consume my entire life.
My brother is self-centered and clueless but not mean. He thinks he's doing a great job by calling mom once a week (at my insistence) for five minutes and sending her something a few times a year. He hasn't been to visit it about four years and my is 94. We have a pretty good relationship but it may dwindle after mom passes. I think he secretly thinks I'll take care of him when the time comes. Hahahahaha. No way Jose!
Make sure you get some time for yourself. Right now I have about an hour first thing in the am where I can have my morning cup of coffee in my front yard before Dad wakes up. I simply sit and look at clouds, trees, birds, my cat and not think about anything. Something that simple can help.