Mom recently passed and dad has dementia with paranoia. I hired healthcare professionals to cook and take care of him but it’s costing a lot of money for that. I want to move him to a nice elderly facility that will be perfect for him with memory care and closer to me at half the cost. If he doesn’t sell the house and move he will run out of money in a few months. Any suggestions on how to get him to agree?
a doctor to diagnose "mental incompetence" - that shows that your dad is not able to make decisions for his own medical care and/or finances;
a lawyer to help with legal processes to transfer decision-making powers to you - usually through a POA if dad is mentally competent or a guardianship if dad is mentally incompetent;
any other witnesses to support your claims that dad can not make wise decisions for himself.
First, I will tell you that I have little hope that you will accomplish what you have stated, unless your Mom and Dad talked about this scenario before she died. First, there will be the going through of your Mom's things that are left. Then there will the things that he would have to go through for himself. That is a huge order for someone who has dementia. Dementia means that he has bits and pieces of memory so I'm not sure which pieces he holds near and dear and which ones he doesn't. Maybe the contents of the house are not important, however being able to work in the garden is. You do need to slowly extract these nuggets out of him.
If he can do numbers, the best thing to do would be to write down his income and expenses and show him that he will run out of money. That is option 1. Don't be surprised if his first reaction is to get rid of the caregivers. Most people don't realize how much work and how much preventive work, the caregivers do for their patients.
With today's higher interest rates, another idea might be to take out a home equity loan to pay for things while you wait for house prices to recover and your Dad to make up his mind. That was the idea that was given to me by a property manager.
Another take would be, if he wants to keep the house so you could inherit it, would be to clean up the house, rent it, and also do the home equity loan. He might be willing to do that, rather than sell the house outright.
I'm assuming you have visited some of these managed care facilities so that you are aware of what they provide. If not, I suggest you do that, because places vary widely and the cost might be more than you think. In addition, you can always ask the facility for tips on how to market their facility to your Dad.
I'm also assuming you have already looked into other financial help. If he needs help 24 hours a day, his PCP can recommend a certain number of hours of home help. I'm also assuming that you have talked to a tax professional to ensure that he is NOT over-paying his taxes.
I wish you well on the financial journey. It is really hard when an elderly person runs out of money.
It is HARD to be the 'parent'. But it often has to happen.
How many times in your life did your dad make you do something you didn't really want to do, but it was for your best?
My MIL was in a rehab after a bad fall last December. She was there for about 6 weeks, I don't recall the exact length of time.
SIL INSISTED that mil be brought home to 'die' as she was considered a case for Hospice. I balked (altho, I have NO VOICE and NO INPUT into this situation) Said it was the perfect time to have her placed in a LT care facility.
SIL refused--moved MIL back home and tried to make the CG work, Of course it didn't and it hasn't. It's been a nightmare for almost a year now.
For the first 3 months she was home she thought she WAS in a NH and kept commenting on how nice it was!!!!!!!!!!!!!! When it finally hit her that she was home--she wasn't super thrilled. She has been 'independently' living, in Hospice @ home while her 3 kids shore her up.
My DH has POA. He will never enact it and he will never use it. She will someday die in her home, having burned all bridges behind her.
She would not even have to sell her home to afford the best of the best NH's. Now you can't even get her to step onto the back porch, she's so isolated.
My point being--IF my DH had been able to sway his sibs, MIL would have been moved to the best of the best ALF's and she'd be so much better off. She doesn't need nor want 'activities' or visitors. She wants to be alone and sees only her 3 kids and her 2 CNA's. I think her decline, slow as it's been, would have been much less stressful for so many people if she had been placed.
SIL is too 'whipped' to standup to her mom and the boys are too tired to do it.
we just go, week to week dealing with whatever pops up.
You probably WON'T get dad to agree, but you can still do this.
I could not get my Mom to move or let help in , So I called to have the County area Agency of Aging come out , they sent a social worker out to assess Mom’s needs because she would not leave her home and would not let help in . Your Dad is letting help in but perhaps the social worker can convince Dad to move ? The social worker that saw my Mom interviewed her and deemed she needed 24/7 supervision and could not be home alone any part of the day . Maybe your Dad should not be alone at all either . The social worker was prepared to return to the house with a strong person to physically remove my mother from the house and place her in an assisted living that I chose. Mom ended up in the hospital before that happened . When it was time for hospital discharge she went straight to the assisted living place. I did have POA though to do this .
Do you have POA?
The social worker told me to stop helping . She said .” You have to let them fail at living independently , for them to realize they need help “ . But my Mom was too stubborn and too far gone to realize she needed help thanks to siblings interference keeping Mom home alone unsafe too long, throwing food I made , eating only cookies and not washing , changing clothes . My siblings finally gave in when Mom almost burned the house down putting the wrong type of bulb in a light above the kitchen table . If she hadn’t ended up in the hospital she would have been removed from the house .
Why is it your problem ? It’s your FIL’s childrens’ problem to clean up his post death mess.
I hope your FIL’s children are helping you with this mess .
I am currently looking at Medicare ratings of SNFs for him . My nephew I think has rose colored glasses on about having choices . His choices if he has any will not be the best , as she will be Medicaid.
Do what you think is best . Your Dad can’t make decisions anymore .
Some countries have free very nice memory care facilities for dementia patients . The US does not . My nephew can not afford to put his Mom in a nice place. He is single , no kids , and is saving for his own retirement and old age care needs . I commend him for realizing that he cannot quit work and should not deplete his own retirement savings for a facility for his Mom.
And seeing some of the responses for trying to gain control over a parent with a guardianship - be very careful if they already have a POA in place. That can get VERY messy in which it can involve family members who already disagree. I for one would fight, for example, and make it pure hell for a rogue sibling who has totally created a precarious situation where the desire was to fain incompetency just to punish our mother. Not having it.
I think what alot of us here have to remember is that questions and postings are only a SLIVER of what we can help each other with. When we give advice to each other, lets remember that alot of us here are already on the edge and that there are many many moving parts to each story/question posted.
You can get help to pay for his home care.
There are programs in every state to assist with paying for care and for things they may need in the home. We have a great program here called IRIS that will pay the healthcare provider (which includes family) and also helps pay for any other needs not covered by insurance. So any modifications needed to the home and/or activities that they might like to do.
Please consider your father's wishes and do not take away everything he has worked for his whole life. He just lost his wife and there is no need to destroy the little happiness he has left. Please look into these options to stay in his own home.
Guardianship, as I replied to Laurie, puts you in complete control. Its expensive but Dads money can be used. A Judge signs off that Dad can no longer make informed decisions and you are in control. You cannot receive guardianship if the person is competent to make their own decisions.
Like I said, Mom was like 6th stage. I did not even ask her what she wanted. I just did it. I was looking for respite care so I could go to nieces wedding. I found they were having a 50% off sale on room and board for the length of Moms stay. So I placed her. You need to just do what needs to be done. Dad will always say No if asked.
Anyway, what finally convinced my hubby, who was still lucid for portions of the day, was the money issue. I had to make out a very impersonal demonstration with statements, the value of his house and car, and so on, and contrast cost and worth carefully and as non-personally as I could, which was not easy; he kept falling back on the idea that I was just trying to make him die sooner so that I'd have "all" the money. He had this idea because the elder son came up with it and with every phone call repeated it. The elder son also attacked me with this idea -- that I was deliberately "discouraging his father from living," when in fact I was killing MYSELF to make his last years as peaceful and healthy as possible.
I searched until I found a nice facility like the one you seem to have found, and a. visit there, meeting the wonderful staff and many residents, made hubby soften up to the idea. The other thing that helped was that I WAS able to convince him that he only had about 2 years' money left and that if he stayed home, requiring home helpers, he would run out and have to beg his sons for money. (I have much less than he does and I have an old age coming on too!). Somehow the sudden realization that 1) he would HAVE to ask the sons for money, especially the elder very controlling one, to whom he is pretty submissive, and 2) if he ended up depending on them for care it would not be the loving and constant attention he gets from me. Also he finally understood that the AL place, while expensive, doesn't cost nearly as much as living in his house with helpers. AL gives him 3 very good meals a day, 24-hour nurse-on-site, laundry and apartment cleaning, and unless his care costs rise, AL costs about $50,000 a year LESS than home helpers.
So money worked as an encourager with him, but I had to be very careful not to increase his paranoia. And he began to realize that he would only have me and the helper as his ONLY company. AL gives him community.
Much luck to you...and please continue to find support on this forum.
Speak with his PCP, to get an accurate " level of care needs assessment" for him and, ask the PCP to assign a Geriatric Case Manager to him. This professional should be helpful to you both regarding coping and decisions.
You may also glean valuable insight by conferring with an Elder Law Attorney.
You're on the right track - getting him out of the house and selling it is the way to go. I don't believe you're going to be able to reason with him. Dementia destroys his ability to do that. Also he won't recall discussions where he's agreed to something. Follow the advice to find an attorney, and good luck.
Get him to a psychiatrist to evaluate the paranoia. There's meds for that.
Go look at facilities that have the appropriate level of care.
Tell dad he has a leaky roof. Or bugs. Or a hazmat condition and the house will be uninhabitable for 3 months.
Move dad.
Clear the house. Sell it if you have POA or guardianship.
If not you may have to become his Guardian.
Once you have Guardianship if he has been deemed incompetent then you can place him in a facility that will meet his care needs.
As his Guardian you act in his best interest in all decisions financial and medical.
This is also true if you are his POA.
Begin the application process for Medicaid.
If he is a Veteran the VA may be able to provide some help. It might be a little or a lot depending on where and when he served.
Contact the VA or your local Veterans Assistance Commission (neither charge for their services)