My dad died in 2021 after a long illness and I had to take care of my mother who hurt her back the day after the funeral. Four months later my husband was diagnosed with terminal brain cancer. He had a brain bleed after coming home and I got a preview of his final months. Now I’m just responsible for driving him everywhere, meds, calls, house-everything. He’s better but I’m resentful, depressed, etc. Our lives are home and doctor. I don’t think I can handle what’s coming as I can’t take this now. Thoughts of a funeral freak me out cause his mom hates me. I’d rather be dead.
Your husband has his health issues and that will not change. You can talk with his doctor about what kinds of help you and your husband qualify for - home health aides, adult day program, respite, meals... After obtaining all the local/governmental aid, then talk to family, friends, members of your faith community for help. Lastly, talk to your insurance company and assess your finances to see what kind of paid help you can afford. The goal is to give you some time off daily and more weekly so you can meet your own needs and get a "breather" from caregiving.
Once you have some help, then you can look at long term needs. You might want to consider prepaid funeral services. Call a couple of mortuary companies in your area. They have nice representatives that can meet with you, explain their services and walk you through how the process usually works. It also costs less for a prepaid funeral. You may get a discount if you get a plan for your husband and yourself as well.
As for his mom, she is probably feeling overwhelmed as well. If you are paying for the funeral, feel free to plan a memorial that honors your husband but also gives you comfort. Funerals, or memorials, are not for the one who is dead but are to give comfort to the living.
Do you do ANYTHING each day 'just for you/r distraction / enjoyment?'
Get a caregiver a day or two a week and you take off doing everything and nothing just for you. If you haven't already hired someone for a respite, why not?
Not clear on the funeral and his mom's feelings for you.
Do what is in your best interest.
You are married to him, not his mother. In other words, you do what you want and she can support you or not (if not, leave you alone) and tell her she isn't invited to the service. May sound mean although I feel you have every right emotionally and psychologically (and legally) to do what feels / is right for you.
While you may not want to do this, perhaps write a letter to his mother telling her out you feel and outlining YOUR boundaries with her. Let her know in no uncertain terms that you aren't putting up with any b.s. when the funeral time comes.
Be very clear with what you want / don't want . . . will and will not tolerate.
The 'why' she hates you may or may not be beside the point.
I wonder if any of those feelings on her part could be resolved or softened by the two of you talking - although I sense you are way way and way more beyond that possibility.
You absolutely need time outs before you go batty.
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Gena / Touch Matters
What did you agree to in your wedding vows? What if YOU had the disease and HE was tasked with your responsibilities?
In my case, if it was me sick instead of my husband, he would have my daughter take over. He just couldn't handle it. So much for the wedding vows. Hubby just couldn't do it.
What a terrible year you have had. I'm so sorry you have been facing so much in such a limited time frame. You haven't had a chance to grieve for your father properly and I might suggest you start there. Take a few hours, or a day, or a couple days (even tho you may feel you can't spare the time right now.) Give yourself permission to finally let loose and cry for your loss, talk to friends about how much you miss him and how hard it's been. Share a story with someone that knew him. Visit his grave, if possible, and leave a note, flowers, a pretty pebble or simply some tears. When your dad passed away you never had time to properly deal with it because so many other fires started up that needed to be put out! I suspect taking this step will help you re-group in your mind and have a bit of strength to deal with the future fires.
Your husband, like you, is frightened and probably physically weakened by his disease and treatments. Try to find a time each day to talk together about subjects NOT RELATED to his health, doctors, next steps, etc. Those things need to be addressed, of course, but creating a bit of normalcy in the mayhem is important too. Play a game together (maybe with some friends), watch a favorite movie, reminisce about a vacation, pretend you won the lottery and spend your winnings, (one of my favorites).
At the same time realize that YOU are just as important as anyone else. So be as vigilant about self care as you are with husband and mother care. Get fresh air daily, even if it's just going in the back yard and screaming! By the way, that's very therapeutic! If you are one that values private time alone go get it! A walk anywhere. Go sit in the local library and read. Go to the movies. Get a haircut or manicure. Go to a book reading at a local bookstore, visit a museum. Any activity that will allow you to get out of your head for a bit is good.
If you are more likely to enjoy company ask a friend to plan an adventure to do together! It takes the pressure away from having yet another thing to plan.
It's hard to picture making these things happen, even if you realize their importance. Last year when my dad was dying of Alzheimers and my mom was just not coping at all, everything fell on me. I single-handedly took care of doctor appointments for both of them, hiring caregivers, arranging hospice care, keeping siblings up to date, trying not to be angry that siblings were allowing all this to fall on me, financial arrangements...all the stuff you are doing. When people said I needed to care for myself I wondered where those magical extra hours could come from. But when I really looked closely, I found I spent a lot of time overwhelmed and paralyzed each day, avoiding my responsibilities by staring at the TV or playing games on my computer. There were hours I wasted when I just could not face doing another task. Those were the hours I stole back for myself. If I fired up a game on my phone, I immediately went for a short walk! Look for small blocks of time in your own days that can be devoted to you!
Best of luck to you. I truly hope you can find some sanity among all the craziness you now face.
I live 1600 miles from my brother. In late 2020 he began to have severe memory and decision making problems. At first I thought it was early onset dementia but an MRI revealed a massive brain tumor. His 23 year old daughter took him to doctor appointments, the ER and hospitals. She and I both have POA—me first, her second so she was able to do a lot locally. He was diagnosed with a glioblastoma but his doctors didn’t tell me that, probably since I’m not a spouse. All they talked about was treatment of radiation and chemo.
Contact the Brain Tumor Network!! They were far more helpful than the doctors. I couldn’t have gotten through this without them. They provide free support for people with brain tumors, the families and caregivers. They consist of navigators who are neuro oncology nurses and social workers who have similar experiences. They can send for medical records and refer patients to get second opinions and advise on experimental treatments. My brother was already at a leading neurological hospital, but instead the nurse was able to look at his medical records to get an idea of the extent of the tumor, the genetic makeup and get an idea of his prognosis. She was incredibly sympathetic and supportive— sometimes I just cried. She gave me truthful information, how bad it was and helped me make the incredibly difficult decision to put him in hospice. Quality over quantity has always been my goal and she completely agreed with me. The new experimental treatments would be of no value for him. The social worker called the hospices I was interested in and gave me feedback so I could select one. him. My navigator comments on his diminishing symptoms as I give her progress reports. Through the Medicare website I found an excellent nursing facility and the best hospice around. Every month she checks in to see how things are going. What doctor would ever do that? Knowing someone else in my corner really helped my morale. Caregiving can be extremely lonely so support is very important.
Start your husband’s pre-planning now. Do you have Power of Attorney for finances and health so you, not his mother, have the final say on his treatment when he no longer can. Is the car in your name? Avoid the title mess. Some states have TOD-transferable on death- to the person named on the title. Is there stuff he’d like others to have? What are his final wishes? Does he have a will—not just a verbal “I’m leaving it all to you.” Does he want a DNR (Do Not Resuscitate) order? Completing the DNR was really hard for me and my niece. There was a finality to it. Ask what he wants for his funeral. Get it all in writing and made official, either with an elder law attorney or whatever the state requires to make it legal. This way he has set it up and his mother doesn’t have grounds to do what she wants.
At the funeral, have supportive friends around, literally, if you can. If they don’t know already, let them in on what could happen. Let the funeral director know about her so they can deal with situations if need be. Get as much help as possible. You’ll get through this. Some people here have cared for someone they never got along with. Whatever the circumstances, don’t take on his mother.
Burnout is understandable when you have been doing this much caretaking. Be kind and gentle to yourself. We don’t get to pick the cards we are dealt, just how we play them.
As for your funeral planning question, make sure you know what he wants and don’t read his preferences until the day comes —when you need to know. Don’t get overwhelmed - let him choose instead— this may be comforting to him in this time where he feels such a lack of control. Make sure all his legal estate planning has been completed. All of us should have our estate planning complete and this information with regard to our funerals and last wishes available to our spouses anyway. Funerals and memorials are most often planned with little to no prep time. You could search for a questionnaire online to send him so all the decisions are made and questions are answered. Complete one to send to your closest loved ones (including your spouse) as well. This way the funeral planning pressure will be off you completely and his family cannot reasonably argue with you. (Key word is “reasonably” —funerals often bring out the worst in those who are survivors.).
Take care of yourself. You do have some responsibility and control with that. Make a list of those things which calm and relax you and keep it somewhere handy in case you get to stressed out to process the world around you.
Do something nice for yourself every day. Make that a sincere priority.
Take care of yourself.
1. You can stand your ground and defend yourself lovingly but firmly tell her to stop mistreating you and that you are not her punching bag:
2. You could be nice to her not matter what she does or says to you knowing that you may never see her again after "your husband's passing".
3. You could do both: stand your ground sternly and show her love and kindness/respect.
(When/if you do any of this: surround yourself with witnesses, I mean family members/friends, who could see both reactions so that when she gossips about you to them, they could defend your actions and or give you praises for how you handled yourself either behind your back or to your face. Practice what you are going to do with unbiased friends or family members first if you like, or video you talking to yourself in the mirror, then play it back to yourself when you are less emotional and able to give yourself an unbiased opinion. Look up non emotional responses online and practice saying them to yourself and in the mirror. Think of things she has said to you and about you and try to think of non-emotional responses.)
4. You could do none of the above because you think I am totally full of poppycock
5. It is too stressful to try to think of responses ahead of time because you do not know what she may or may not do and just want to play it by ear when and if that time comes.
Side note: She sounds like she might be an old, bitter woman, who is jealous of you and ungrateful that you took care of her ailing son while she wasn't. Good luck. Keep us posted.
I'm sorry that you had to deal with mom and hubby's medical issues so soon after losing your dad. Sometimes life happens with one thing after another piled on and, of course, you're having a hard time.
For now, you said your husband is better, but you do have his future to deal with. Do you/he have any family members near you that you can start working out a calendar with to help you in any way (for day or so breaks out of the house, dr appts, etc)? If so, start there to have them on board with things get harder. Do you have finances to hire in home health when things get harder? If not, this would be the time to talk to doctor (if you haven't) to find out how this will play out: Will there be an event where he has to return to hospital? Can he tell you what kind of hospice care you can receive in the home/out of the home in your state? Those answers may help you sort out what you'll have to cover financially and what would be covered under Medicare or other insurance he has.
I hope you can round up some family members to provide a little respite now and in the future. You have a lot to deal with.
It's time to bring in some outside help and delegate some of your husband's care to them. Let homecare take him some of the places he needs to go. Let them help you by running errands and helping out with some of the housekeeping so eveything isn't heaped up on your plate.
As for your MIL, screw her. It isn't about her. When the time comes for making the funeral, if she can't behave herself and be respectful then let her have no part of it. You are the spouse not her.
Get a hobby only 4 you. Get a plan for death hashed out now so don't have to deal with the mother in law. I'm dying alone and it really really sucks, imagine what your NEXT partner is going think of you if you bail on your dying husband? In sickness and in health people
My heart hurts for you. You say you are dying alone.....don't you have anyone to be with you? Son, daughter, friend, etc ....I sympathize.
At least, I pray you are right with the Lord, your Maker. If you have access to YT (YouTube), please make time to watch Ray Comfort.
You will be presented with the plain, honest Gospel of Jesus Christ, and Ray interviews people on the street, and shows them how all of us have broken God's Moral Law and will go to Hell forever, unless we repent of our sins, and put our full trust in Him.
Please, do this for your spiritual health....if you pass without Christ being your absolute Savior and Lord, it will be Hell forever... I want to see you in Heaven and hug you tightly and laugh forever with you! Please watch Ray Comfort...he's funny, smart, sharp, caring, loving, and he truly is doing all he can to get souls rescued from the wages of sin, which is death.
Please do this! I beg you to please watch
Your eternity is at stake!
If you have a Bible, Study the book of John. And meditate on John 3:16.....I love you and dearly want you to trust in Christ the Lord.
It truly is Hell without Him.
Shalom! 💜🕊💜
If you have people who have said to you, "call and let me know if I can do anything", now is the time to call them. Cooking a meal and bringing it over at dinnertime, or cooking stuff for your freezer, or getting groceries, or staying with your husband for a couple of hours (even if you just go to a different part of the house to nap, shower, etc.) Ask the social worker at the oncology practice where he is being treated about help - with the practical stuff, for him, and mostly for you. A therapist and antidepressants will help you - you are depleted already and carrying the grief from your dad's death and your mother's needs, and now this heavy load. Too much for any one person.
I am so sorry for all of the tragedy you are dealing with, it would take anyone to their knees. May The Lord give you strength and comfort during this very difficult time.
I hope you get some counseling and help to prepare you for what lies ahead. Perhaps starting an antidepressant and getting some counseling to prepare you.
As far as his mother. Ugh. Same problem here. My MIL hates me so much it's almost laughable. If he predeceases her, and that is a definite possibility, I will assign one of my burly Sons In Law to keep her away from me. Like, literally, pick her up and put her somewhere far away from me. If she had been a loving and caring mother I would welcome her support, but that ship has sailed.
I can't 'guess' how this would go, but she's so incredibly selfish, I could actually see her not attending any kind of funeral for him. Sad that in the midst of our own grief we have to deal with toxic people.
Prayers for you and hubby.
There should be a social worker at your doctor's or cancer center providing that help. If they're not helping, according to YellowPages.com, there are 5 highly-rated hospice providers and 7 highly-rated top cancer support orgs in Montgomery.
If your husband is lucid, why not ask him what he'd like for his funeral? Reminisce and make plans. A few suggestions to reduce your stress/anxiety:
~ Take the scenic route to and from the doctor. If possible, find a place to park
to enjoy the scenery or people watch.
~ Watch some aerial landscape vids, relaxation vids, or walking tours on
YouTube.
~ Nourish yourself and stay hydrated. Hospice or a cancer support organization
should be able to help with that.
~ Lean into your belief system. Spirituality is an overlooked aspect of mental
and medical care.
~ Laugh. Corny jokes, comedies, the stupidities faced in managing health
(that often requires a warped sense of humor...)
~ Journal. Write out your thoughts instead of bottling them up and fearing for
a blow-up. Even if you don't read what you've written, counselors say the
act of writing in itself is a release.
When you have support to deal with the doctor visits and home care, hopefully you'll feel some of the weight lifted and be in a better frame of mind to tackle making peace with mother-in-law.
Best wishes to you and hubby.
You need to look into therapy for YOURSELF now. Anti-depressants may help you get to feeling a bit better, and talk therapy can give you some coping mechanisms to help you deal with all that's on your plate. You need to take care of you, too, and remember that your life is just as important as his. Yes, he's the patient but you could wind up sick too if you're not careful. Taking 'me time' is vital for you!
You may want to extend an olive branch out to your mother-in-law to see if you can repair the broken relationship now. You both love her son, who's hurting, so now is no time for 'hatred' or hard feelings between you. You can band TOGETHER to offer support to one another now. She may gain a whole new respect for you if you hold out that olive branch, and let bygones be bygones, you know?
Please make an appointment with your PCP to address your depression and to talk about therapy.
Wishing you the best of luck with all you're facing right now.