My mother has dementia and had to move in with me. She is still able to make decisions about her finances. I take a portion of her ss for household expenses. I documented how much more it costs her being here. Is this ok to do like for instance more groceries eating out etc.?
In my country we know what it means - when you see someone SMACK themselves in the head because something was said that was so idiotic [you know you have seen this many times] either by themselves or by someone else then that's GOBSMACKED -
I won't even go where you guys jump over hoops over the way your health care is mismanaged - you all say 'may', 'what if', 'if', etc without anyone really knowing what the rules are - GET THEM IN WRITING & DON'T GUESS - why can't there be clear rules? -
I can't even comment further because there isn't anyone who knows the real regulations nor will anyone check this & get it in writing - not going to where you live any time soon & I'm not alone
I never did work out what had so offended the note-leaver.
You can gift without tax consequences up to a certain amount, but you can NOT gift without consequences from Medicaid. Medicaid will look at all financials for the past 5 years and may count even $50 gifts to kids or grandkids against the person. If your parent can pay for 6 years, and during the last 5, not give any money "away" from Medicaid's standpoint, that is a good situation to be in.
The important thing is to be well informed, so there will be no nasty surprises in the future should mom need medicaid. Good luck.
FYI - I spend $2347.87 [$1760.90 US] per month for my mom in nursing home which includes private room[they provide hospital bed], food, laundry, nursing [she's diabetic etc], housekeeping, physio & recreation - meds are extra but most are paid by government so last year I paid just under $200.00 [$150.00 US] - total for year was $21,280.80 US [tax deductable too!] excluding clothes & new wheelchairs etc
You guys gobsmack me with having to bend over backwards to not pay anything that seems justified as living expenses because you're running scared about what these people are going to okay - are there no clear guidelines? - everyone says 'but what happens if ', 'she may be denied', 'if', 'may', 'perhaps' - go find out from those who know & get all your information from official sources -
Otherwise you are impoverishing yourself supplimenting your mom & what will happen to you? - can you charge for your labour? .. probably not but ask because even 2 hours a day will add up & there is no way that's all you'll be working - otherwise the nursing home will be getting money that you deserved long ago because you were too scared to ask the right people & I bet they won't give it back when you find out what you should be entitled to all along
GET THE CORRECT INFORMATION FROM THE RIGHT PEOPLE - go in person, get the person's name, employee # & as much documentation as you can - I'd put my cell phone on audio record to be able to show who gave you what information [& DON'T TELL THEM YOU'RE DOING IT] - then if they try to change something you have proof of what you were told & when - maybe do it 2 times to be sure they are saying same thing but use different office to get a different person & if they say the same thing you will know BUT IF DIFFERENT insist on clarification
So when I became CareGiver with my Dad - I had 7 years of receipts and no one questioned, "where did the money go?"
"Someone" suggested to my Dad that I was stealing from him. God Bless him, he told "someone," everything I have is hers. She can't steal what is already hers. :)
When he passed, everything that was left was divided equally as he had wanted.
I must forewarn you though as the only survivor of my dad who had Alzheimer's, be very careful not to cross the line when caring for this person, especially when it comes to the point you must completely take over all of her financial matters. Someone who turned out to be an apparent fraudster befriended my dad and ended up with his house and who knows what all ever else he had before he died. There were eight different cases on public record involving unpaid taxes and a foreclosure against the person who became dad's POA. Be very careful when the day comes you must make more and more and more decisions for your mom, especially were finances are involved and guardianship is required. Money can be very tempting, especially when someone becomes incapacitated, be very careful not to cross that very fine line. I understand you have very good intentions for your mom, but just be careful not to cross that line because you never know when you might and the right people find out and come after you and maybe even win their case. I've been studying about elder financial abuse specifically because of my own pending estate case. You may not believe this, but more times than not it turns out to be a family who ends up abusing the elder in some way or another, and one of them is financial abuse. It wasn't so in my case because I wasn't allowed to be in the picture, it was my parents decision sometime after my rescue by CPS where I became a ward of the state and aged out of the system at 21. Years passed before the entrance company contacted me and making a long story short, it wasn't until my dad died that I started finding some things out and it all started with a gut feeling that something just wasn't right about the situation. No one would listen and months later I finally found someone who would listen and actually did. I found a good lawyer through my state bar association and that's how I was able to open an estate for my dad and start an investigation into the whole entire situation. Chances are very good I'll be looking at an asset recovery later when everything wraps up and all information is gathered. All of this because suspicious activity points clearly too someone who most likely took advantage of the fact my dad first and foremost had money, lots of it and he had a house and who knows what else. It's sad he developed Alzheimer's but i'm sure good will come out of it because now I can share my own story and my own findings to help others dealing with similar issues as my own. I can also use my story to warn others do not cross that fine line that so many people end up crossing while caring for incapacitated people. I hope my story is a constant reminder for those times you may be tempted to go to far because maybe I was meant to deal with what I'm dealing with over here in order to do my part to help stop and even prevent elder abuse.
There may even be times when your mom drives you crazy but don't cross the other fine line of other types of abuse such as physical, verbal, mental, or emotional. Learn all you can about elder abuse. Learn what to look for and make yourself accountable or even have an accountability partner or two. I would highly suggest maybe even setting up video surveillance so that you can play back later in case you make a mistake. If you do, you'll see it on video and you can go back and make it right or change the behavior if you can't exactly right the wrong by apologizing to your mom if she gets to the point she no longer understands or remembers.
I wouldn't be the one doing all of the caregiving if I were you, I strongly encourage you to please get help, you need it. I would also warn you against what we often hear about, caregiver burn out. Caregiver burnout can actually lead to abuse intended or not. Just be careful, especially as your mom becomes more and more dependent on you, and hopefully you don't live in Oregon where I saw became law where it's now legal to starve and dehydrate the mentally ill. I think the people really need to fight back against this to stop it from happening and even overturn that law. Again, hopefully you don't live in Oregon, I pity those who do at the time of incapacitation. "When the law gives you the right to do wrong, there's something wrong with that right" as singer and songwriter Danny Ray had once written in one of his songs. He's a Christian artist who has visited our church multiple times over the years and his songs are definitely spot on
For trips out, birthday presents, personal items: you could keep a petty cash book for her and file receipts in it. Again, it's a matter of being able to show that you're managing her money safely for her - not that you're doing anything wrong, just that you need to be able to prove that you're not in case anyone wants to know.
In my case I cover all her expenses now in my "rent". I am not POA, and because there was a trust involved and then I had to get mom on Medicaid, I had to get a lawyer involved. Long story, but the lawyer drew up a basic lease agreement and my brother, who is one of two POA`s signed it. That lease was sent into the pooled trust with Medicaid and they send me a check every month for rent from mom's spend down account in this trust.
I don't know what state you are in, but you can usually get a free consultation with an elder attorney and ask the question. I'm not a lawyer, but it would seem every state would look at it as a landlord/tenant situation. Please act on it soon, better to have all the right documents in place as early in the process as possible. Good luck. Take care of yourself too.
It is also necessary to document the extra she costs you, and what you take from her ss in case of future need for medicaid.
Good luck. This is a hard journey..