I asked if she could feed herself, and they said yes. But she was so stiff, I couldn't even get her arm up so she could grab her burger. They told her family she is having trouble swallowing. She is skin and bones. I fed her and she ate at hamburger, tater tots, a yogert, a full banana and a cookie and enjoyed every bite. Are they covering for the fact that she is not being fed, explaining her emaciation. She is not long for this world, and maybe they are helping it along. Is this standard practice? I also tried to readjust her legs, and couldn't even move them. This is disturbing.
It is hard to say from one visit what the truth is with your friend, she may just have been having an exceptional day. Your description of what sounds like contractures in her legs and arms are a red flag to me as they are a sign of neglect - does she ever leave her bed and room? The unfortunate thing is that you have no real idea of her status and how aware and proactive her family/POA is, if you have a good relationship with them then you might tip toe through the minefield and ask in a "curious not furious", non threatening way.
I would contact the state and file complaints, I have found that is the only way to get anything fixed. Fear of fines or losing their licensing is the only language that they understand, especially a place that would do what you witnessed. Your friend is being starved to death, how cruel is it that she has food in front of her and can't get it in her mouth. We don't even treat prisoners like that.
You may want to ask her family if she’s supposed to have help eating. At Moms NH there was a table for people who were self sufficient, one for people to could do it but needed encouragement, and a few tables for people who had to be sat with and fed. Their level of assistance was determined by the RN and the Speech Therapist. So if you have info from the family on what her level of assistance at meals is supposed to be, it would be good for you to know for future visits. Also you could share with them that she ate really well for you! That’s always a nice thing to hear.
So you asked if this is standard practice...it would be helpful to have a little more backstory and if they were assuming you would feed her, but no, leaving a person to eat when physically impossible is not standard practice.
It is a public facility and well run, but there simply are not enough staff to feed all those who need feeding. Volunteers take up the slack.
Many of the Candy Stripers go into a career in medicine and their volunteer hours help with admission into the programs.
Bu the way if you’re referring to “Medicaid” nursing homes they are not all “bottom of the barrel”. My mom was in an wonderful NH that accepted both Medicaid and private pay. No one other than the billing office knew how their residents paid. Good care can be received anywhere as long as the family and/or friends are involved and demand it.
The woman in admissions said the staff helps when needed. I was at the NH daily. Sometimes it was mealtime. They just dropped food off when they saw me there.
Some people don’t have visitors. Those people do need help. It is sad.
Will you be able to check on her and determine if her weight is stabilizing or increasing?
I don't doubt that when assessed at admission the lady was recorded as being able to eat and drink without assistance. And then you have to ask, has anyone checked since?
There should be a record of her intake but from the sound of it this is not the kind of nursing home where you'd expect it to be reliable.
You have absolutely done the right thing in speaking up, and I'm glad the lady's daughter got a positive response to her enquiry; but unless this is followed up I am afraid the lady will indeed not be long for this world (of course it's possible she won't be anyway, I haven't been to check our OP's profile).
It depends on how much you're willing to do, but for the sake of other and future residents I'd be inclined to check out the NH's inspection reports, see if there's anything enlightening on those, and then report your concerns to whoever is responsible for long term and residential care standards in the area.
Nursing homes are often chronically understaffed by overstretched, poorly paid and minimally trained workers. It will likely always remain a problem. But just a little initiative and imagination can make a difference: for example, is there no volunteer group, who might be asked to help at mealtimes? If not, why not ask the activities director to organise one? You need a few strict ground rules about hygiene and following protocols, but it shouldn't be that hard to get a group going.
And, by the way, if the lady is so very immobile I'd also be inclined to ask if she minded my having a quick peep just to see how her skin is doing.
Your compassion and caring are why we all come to AC looking for hope and sanity. Please follow the wise advice here, but realize for many, death can look like the cruelest factory of neglect and hardened caregiving. In an unfortunate many cases, it is. We haven't figured out how to comfort millions 24/7 yet. It kills me to live with these images. Follow your best instincts, and take care of yourself because we need your caring and best thinking. I am so grateful for AC. My father died July 18 at 98.
Let me assure you her body assimilates nutrition and fluids very well, when the ARNP at Cornerstone of Central Florida said her body would not do so. She LIED to me.
My dad had to go to the facility where his mom was and he had to feed her or she wouldn't have gotten fed. Sad but true.
If family is not involved with the care the patient will die very slowly.
If this is what is recorded in her chart, then the aides are not obligated to try to feed her. She would need to be examined by a physician and have her ADL status changed to "full feed" if that is what she needs. Most likely, as her disease has progressed, she has forgotten how to feed herself.
Unfortunately, having worked as a CNA previously, there were often not enough staff working to ensure that all those with feeds actually were fed. It was not my original plan, but one week I had to start "rationing" who would get fed on which evening so that at least somebody was fed supper every-other-day. I was assigned 16 total care patients - and there was only one of me. I could not feed more than 8 during my shift because it took me an hour per patient. You do the math. Also, the trays were whisked away at a certain time, so if you did not get some food into the patient, then they did not eat a meal. Yes, I complained about it to my charge nurse.
His Advance Directives specify no tubes, CPR, kidney dialysis. The facility and doctor have asked me several times about the feeding by tubes and I have said absolutely not. I have been asked to sign an additional document to reaffirm his wishes and that I will carry through as he wants. Tubes would be easier on staffing and less stressful to overworked staff whom I'm sure would be fired if he choked to death. I fear watching him die in a choking fit, but I can not go against his wishes. Equipment is kept bedside to clear his throat if needed as this falls short of intubation and CPR.
A CNA is assigned to feed him at every meal. If I'm there to help, his tray is generally brought sooner and I feed him. Otherwise it's about a 30 min. wait. I realize it's so lonely to be in a bedside having to eat alone so I try to be there.
Another thing with CNAs: They really work so hard for mostly no thanks yet lots of criticism. In the 4 years my spouse has been there, I've only complained about 1 CNA who rode in the van as escort to a medical appointment. She did not respect our right to not have her present in the room with the nurse and doctor. It got worse from that moment forward. I told the nurse supervisor to not let her travel to his appointments again. I went one step furthur and told her she needs to train her staff that if families say to not enter the treatment area, that's the way it is. I directed most of my anger to the charge nurse as I think she tells her CNAs to go into the appointment room. This is appropriate when no family is present. If family wants CNA in the room that's OK. Though I would actually like the CNA to come in with us, it is not what my spouse wants, and his wishes trump that of others.
Otherwise, I always tell management whenever I'm at meetings that I think staff does very well handling him.
Bless anyone who even tries to do CNA work!
editing to add-thanks cwillie! I initially misread and thought ombudsman was telling the OP to have a care plan meeting! My apologizes!
I finally got them to feed my dad each meal every day. filing a complaint against them I am sure helped.
I understand that they are always understaffed but that is no excuse . I have seen so many people in the home with plates that weren't even touched because they couldn't do it themselves.
this is so wrong. I am not saying all staff members are no good, but a lot of them just don't care. they are there to collect a paycheck that's it.
the final straw was when I got there one day my dad had bruises and cuts all around his neck as if someone was chocking him. the supervisors couldn't imagine where it came from she said. I couldn't leave my dad and mom in that place any longer. in my opinion, it was all pure neglect.. I packed their bags called an ambulate and took them to my house. they did so much better and gained weight....