My mom has been in a nursing home for over 4 years. I feel we have "dumped" her there. While she needed time to recover from a hospital stay I feel she is ready to be in my home. My huband does not want her to live with us. Im also afraid because my mom needs help with everything. She is incontinemt, in s wheelchair 100%, and has dementia. It scares me that I'm just feeling guilty and not thinking clearly. That her needs are too great and for her to live with us would be a mistake. It is so painful to accept that my mom is in a nursing home. Any advices?
Placing your Mom where she can be appropriately cared for is not a guilty action. "Dumping" her somewhere is. Why don't you use some of the energy and time you would devote to her if she were in your home to devoting to her in the NH? How far from you is the nursing home? Would it be practical to visit several times a week? Short visits are OK. Keep an eye on the level of care she is getting. Make friends with her regular nurse and caregivers. Eat meals with her occasionally. Bring in scrapbooks to look at with her. My mother is in a nursing home, but I certainly didn't "dump" her there. If you are feeling like you did dump your mom and there is some basis in fact for that feeling, then remedy that by paying her more attention where she is. If you are already doing that, then, please, force those guilt feelings out of the decision process.
Have you and your husband discussed how much of a struggle it has been over these past four years to accept that your mother is where she needs to be? He might already be aware of it, but I think it would be good to talk about it. I believe he's accepted that is where she needs to be and is aware that the two of you cannot run your own nursing home as two people at home.
I would also suggest seeing a therapist about your struggle and pain over accepting that this is where your mother needs to be. Take care and keep in touch.
It also means if she is wheelchair bound, that you or your husband would need to carry her to the bathroom for daily showers since she is incontinent and help her with her showers which she might not want..... are you strong enough to do that on a daily basis? And to be able to change her Depends as she lays in bed? And be able to lift her to put her into a wheelchair?
Are you able to be a Caregiver 168 hours per week? You would be doing the job of three caregivers, who each work an 8-hour shift, who get to go home and have a good night sleep to be refreshed in the morning. Could you get by on just a couple hours of sleep per night?
Could you do all the above for the next 5 to 10 years? No more dinners out with hubby... or vacations. Unless you hire 3 full-time caregivers during the week, and 3 more full-time caregivers to work the weekends and hopefully holidays.
Think about it this way, do you want to be her "daughter", or do you want to be her "Caregiver"... it is very difficult to be both.
Today is my mother's 96th birthday. She has been in the NH for 2 years. My sister tried to care for her and the stress contributed to her death, a day before her 70th birthday. But, mom is healthy and happy. Go figure.
You can't get rid of the guilt so you just have to do your best to live with it. The best way to spend your time is to make sure the facility she's in is giving her the best care that is available to her and to visit her as often as you feel is appropriate for both of you.
The nursing home social worker might talk with you about your pain concerning accepting that your mom is in a nursing home and needs to be there. She might be able to recommend a support group or a good therapist for your to talk with about this issue.
You didn't make her any rash promises back in the day, did you?
She's been in the NH for four years; so I'm just wondering what it is that makes you feel you have to change things now. What's improved that makes you believe you could care for her properly and safely when you couldn't before?
The thing is, I'm coming at this from her angle. I'm sure she'd rather be "at home" than in care, wouldn't we all; but she wouldn't prefer the pig's ear you'd be likely to make of changing, washing and dressing her; she wouldn't prefer the tears and arguments; and she especially wouldn't like the serious injuries that can result from well-intentioned people making ordinary, human mistakes. With no practice, no run-up, no rehearsals, I just don't believe you could care safely for your mother - even if your husband were wholly in favour of the idea.
So don't make your husband the bad guy. He has not only his own and your family life at heart, he's also right about what's best for your mother. Spend the time and temper you save not having her in your face the whole time enjoying her company and improving her quality of life where she is, instead.
Your husband and family are your priority.
I do not think you can keep up with the demands of an alzheimers/dementia patient, nor should you try.