I care give for my partner who has Huntington's Disease. I feel as though I am losing myself and who I am. I do nothing but care for him. He is able to walk and get around but has had numerous falls and broken bones etc. I told him I wanted to get somebody in the home to relieve me once in a while but he is insistent on not letting anyone come to the house. I am so depressed and I long for my family and friends. How do I get him to understand this is important to me?
great & I so support it. Look to elder care in your area too. There are a lot of support systems in place to help in the community. Look into it.
If more than that is needed, I agree with the others, just set up the in home assistant, and get out for a while. If he won't use their service, while they are there, let him do without any help for a while. He'll get no sympathy from me if he won't accept help when it's provided. You are not a medical assistive device (that exists only for the purpose of serving a patient) and he does not have the right to turn you into one.
Good luck
I understand that about 30 % of caregivers die before the one being cared for.
Mom acts pointy and miffed at me. Too bad. It's called reality.
I am in the middle of a 4 day respite break from my husband who's in the 6th stage of Alzheimer's still at home with me 24/7 and this is the first break this year, he is still telling the staff he is leaving, I feel bad that he is causing a fuss but I so desperately needed the break. When I took him to the care home I tell him it is a special type of hotel as he is adamant that he is not going into a home, but it did not take long and he was saying I am not staying here, even though he will forget what I say I still let him know I was sorry he felt that way but I was still leaving him there for a few days and would be back to get him, he said when I leave he'll be right behind me, I called the next day and was told he was coming to the desk every 10 minutes to say he was leaving and when was I coming to get him….It is such a treat to be able to stop in a a girl friends house for a cup of tea and visit, which I did on my way home and realized I had not been there for 4 years and little things like getting up to a dry bathroom floor and absolute quiet, what a treat not getting the constant same questions all day…I dread Monday morning when I pick him up. I did this once last fall and he was so good, hardly fussed at all so I was taken back this time, the thing is if I break down or end up sick, who will take care of him??? There is no one around to pitch in.