My husband is 91 with ALZ, and he is pretty much confined to his room. He can come out, but I encourage him not to and bring everything to him. His aide comes in the morning to shower and dress him, and I have hand sanitizer at his door to be used upon entering. Other than her it’s just me and my girlfriend in the house. My gf is a Dr and goes to work each day (she does not go in his room). I’m young and healthy, and I miss seeing my son and the children, but of course I don’t want to put my husband at risk. Of course I would take precautions and once I was back in the house I would shower before going into his room. Perhaps this question is selfish of me to even consider, but the two year old really misses his “Loves” aka grandmother.
I have a ‘non-standard’ situation myself, after marrying my first cousin, whose uncle was my dreadful father and my dear MIL’s much loved younger brother. She changed her mind about him in later life after she migrated to Oz, but you can imagine the trials of my mother and MIL finding themselves living close together in their later years (and a few problems for me and DH1 as well!). So many people think things are odd, wrong, you must be crazy etc. This doesn’t help anyone to deal with the reality of their non-standard lives.
However I can remember a thread about a couple dealing with a very difficult demanding father who controlled his daughter and threatened the marriage. Only after a considerable time did it become clear that the W and FIL were Filipino migrants, with some very non-standard issues (including FIL setting up a sham marriage to bring in another W for himself). It made a difference to the thread, with more helpful comments about cross-cultural issues.
I suppose the moral is that it can help to give the back-story. Perhaps it shouldn’t, but it often does avoid the hurtful comments that you have had. I hope that you can forget them, and continue to do your best to cope so well with your own non-standard life. Very best wishes, Margaret
Just to be clear, this forum is intended to be a safe place for ALL caregivers to come. We as caregivers can relate to each other, that does not mean we always agree with each other.
Of course I watch the news and knew in my heart that I could not go see the kids, but does wanting to post (talk) about it make me less of a caring person? No! I’m honest, but I’m also tired, as many of you are.
The majority of the replies were very heartfelt, some just brutally honest, and others not really necessary. As I sat reading them again and again, most just made my heart smile and my eyes tear up, a couple made me want to ask to be removed from this website, because I do not deserve to be judged by anyone other than God!
I hope to write a book about my life one day! It has been that kind of crazy from my first memories as a small child.
My husband and I met at a difficult time in both of our lives. I can now look back on that and see things differently, but after almost 28 years, a grown son (Bill still remembers, and we both adore), a grandson, and ALZ I know I can’t change or fix anything or anyone.
I’m 45 years young/old. Bill’s onset was age 80, and while it was mostly just annoying little things for the first three years it still impacted our lives. Around year four everything changed! I still worked full time and was a mom and full time caregiver. Our church “family” of many, many years slowly disappeared, Bill was the one to write the checks each month, and was no longer able so that may have been a reason for the distancing. I can’t say for sure and don’t really mind it. When he became incontinent I wasn’t sure I could handle it, but I managed.
short version;
Bill 91
Me 45
GF 55
Bill out lived all of his life insurance policies at age 80 except one for 10k from his last job. He does not have long term care insurance. I worked full time until my breakdown at age 40 that landed me in the hospital for a month and closer to death than Bill has ever been. Upon my return to the same life I had to make some adjustments, so I stoped working outside of the house for the most part, I did continue to run my business from home. At this point I could still take Bill out of the house for little fun things and even dinner and drinks. I was being the best caregiver I could be.
I was extremely lonely. I eventually met Sarah, and she is my absolute everything. I love her and I am here, a live and well, and caring for Bill because of her love and support.
This is my life! I do have Bill on a wait list for a nursing home. I hope to have enough savings to cover the cost. We are very blessed, but as you know nursing homes are very expensive. He has been in the end stages of ALZ for a few months, and will be starting hospice home care this month.
I will not apologize for my life choices! I know not everyone will agree with them, that’s absolute okay. For the first time in my life, I’m happy, I’m at peace, I’m loved, and I’m still doing all I can to be the best caregiver (my role as wife has been gone for many, many years), mom, grandparent, sister, girlfriend, and small business owner that I can possibly be.
Thanks for listening and caring. Be kind, and stay well!
You might feel fine - but could be carrying the virus. After all, you would be "breathing the same air" as he is. COVID-19 does not discriminate its victims.
I would advise against it at this time.
COVID19 is super contagious. I know because I likely have it- still waiting for an appointment to get tested here in NY, where tests are in short supply and only given to severe cases. All I did was go to the grocery and walk around the block! No contact with anyone (that I'm aware of), maintained social distancing of bare minimum 6 feet, washed my hands like crazy and I STILL got sick! Thankfully my case is mild (knock on wood) but still, this is not something to mess around with.
Folks, COVID19 is real, it's serious, and it's widespread. Please stay home!!! Stay safe. This is not a drill.
Fortunately we now live in a day and age where social interaction is very possible without physical interaction so there are all kinds of good ways to interact with your grand’s without going to visit them and then go home. In fact it’s probably a great opportunity to aclamate all of you to other methods of interacting (reading a bedtime story via Skype, FaceTime or one of the virtual drop in devices, send recordings back and forth or write letters the way we did prior to the internet. You may need to fall back on these methods or even choose to continue them in the future anyway. Even if they only live 15 min away how nice would it be to have an Echo Show for instance in each home so you can drop in on your grandson from home whenever the desire hits and he can do the same (yes you can see the caller before they see you and refuse the call so no unwelcome surprise visits)? How nice would it be for your husband in his more lucid moments as well as your son and grandchildren to visit with him more often and when he’s lucid? I think some real positives could come out of this these difficult times if we look for them.
All of that said, if you do decide to go see them I would urge you to take the precautions the Dr in your home assumably does, wash your hands when you arrive at your sons before touching anything or anyone, again before you leave and then shower when you get home and wear some sort of mask barrier at least when you go into DH room but even better when you go to see grands as well, I know it doesn’t protect you per se but it does remind you not to touch your face and then it helps protect your loved ones from anything you might pick up in either home.
The people I feel most for are the ones with loved ones in NH nearing the end of their life who are unable to physically visit. Their time together is very limited and may never be recouped. Your situation while not enviable at all is at least not so timely since you have years to look forward to with your son and his family, plenty of time to make up for missed hugs and kisses the way those of us not lucky enough to live that close to our grand children do. Again I don’t mean to minimize your relationship in any way, I’m just saying kids survive through all kinds of separation from parents and grandparents these days and we are so fortunate to have the ways we do to stay connected during these times, maybe explore some of those while weighing the pluses and minuses of exposing everyone. Good luck.
I do though have a tip for everyone. I live in UK & my bff in NY since early 90's we have finished phone calls doing this (both at same time):-
1) tuck phone between ear and shoulder
2) wrap left arm diagonally across your body
3) wrap right arm diagonally across your left arm
4) gentle squeeze
5) You just shared a hug.
My friend spoke to her grandchildren (age 2-19) on Social Media and they all
loved it. The littlest copied the actions and now share "Lucy Hugs" with everyone.
Okay it's not the same as a physical hug, but it's one more way we have of sharing.
Take Care, Stay Safe and Well, Lucy
To go and see noisy, running around the house screaming children and putting a 91 yo husband at risk with Alzheimers makes no sense to me. Sorry if I generalized or stereotyped your grandchildren who might be well mannered, but you get my point.
Everyone please, control yourselves!
P.S. why don’t you Skype or FaceTime your grandchildren and son to you can SEE EACH OTHER?
I would suggest it is time to experiment with video visits with your children and grandchildren. Facetime, Facebook, Zoom and Skype are all fairly easy to operate options. Of course, regular phone calls can work wonders too. Have your children and grandchildren send you plenty of pictures. Send them pictures too.
The most distressing part of COVID-19 in the social distancing required. Anybody can have the virus and pass it along without having any symptoms. Try to hold out a little longer until the pandemic has passed.
stay home
the only way to be certain is to stay home.
flatten the curve.
Use FaceTime, Skype, Zoom, House party there are so many platforms to use to see your grandchildren nowadays!
I am in NJ ...my 94 yr. old MIL is in Assisted Living ....we haven’t been able to see her in a over a month ....@ her age & w/ the current situation maybe we will never see her again! Your grandchildren r young wait till it’s SAFE!
Stay Home! Amen!
( something about your question, ages, etc. seems off ...as other mentioned ...IF you are trolling this is absolutely the lowest to do it here.
Oh, did I mention stay home!
I appreciate your response, and I’m sorry that my venting something would upset anyone. I thought it to be a better choice to come to this safe place, where I didn’t expect anyone to say GO, and vent and put it out there, than to act on my heart.
The guidelines issued about age over 60, and /or chronic medical conditions, are just that, GUIDELINES. They are not hard and fast rules about who can contract and die from this.
There should be no in-person visiting of anyone for a very long while. Now is not the time to be selfish; it is a time to be selfless and considerate to all humanity.
There is a great video on YouTube by a Dr. Keith Mortman from George Washington University showing a virtual image of the lungs of a health 50-yr. who became infected. This virus causes widespread, diffuse pneumonia of all lobes of both lungs with PERMANENT damage.
Your husband is in this 90's
You are in your 40's
You miss seeing your son and children
Something just does not make sense. You NEED to stay at home. Many different generations you could infect.
This emergency is not about you. It is about protecting all those you love. Be mindful and thoughtful. Take care of others by following the CDC guidelines.
That bike will mean even more later.
it is indeed very hard times
right now! Please stay home safe and go out only for essentials. You should not go visit anyone right now and none should visit you! Maybe you can FaceTime or Skype? Otherwise talk to them on the phone.
stay safe! We all need to be extra socially responsable !
We are told to social distance for a reason. "Missing someone" is not a good enough reason to put may peoples lives in jeopardy especially the doctor who resides in your home.
I suggest you find creative ways to connect with the 2 year old and make this a learning situation for both of you.
One came this morning from The Netherlands with a lot of information. It is so serious over there now, that " if 2 people are not 5 feet away from each other and are not from the same family, police will issue fines of 400 euros".