only child ,mom has cancer and other health issues my dad does everything but is in poor health himself. I am a single 51 year old who works two jobs to support myself . I have a daughter who is a single parent and in addition to my parents I help out alot with my grandson. I am very overwhelmed and feel alot of guilt over the way I handle all the resposibility i feel towards my family. I have been cleaning for my parents and feel it is time to get some help. My mom does noy want stangers in her house and so I feel stuck. I told them I could no longer clean as I am really busy. I go over and the house is disgusting and I end up cleaning in a very resentful way. I know they will be gone someday and then I will be sorry for the way I handeled the situation. I have created the way the family depends on me yet now I feel like I no longer can keep up with all I am expected to do.Also I am scared because I dont know how to loose my parents and be in the world without them. I am alreadt grieving there loss as I know they will not be around much longer. I am aware this is a sacred time yet all the other stuff keeps getting in the way. I would br grateful for someones input as I am at my wits end. Thank you
I suggested they ask someone they knew or knew their parents as it turned out.
Mom seemed content to have some good friends daughter come in. She had been cleaning their small church, altho not attending there.
My mom is now in assisted living as my stepfather killed himself 3 months ago. She has dementia, I have always tried to get for them anything they asked for or I thought they would use, and now my mother has only me to call on. I've had to handle selling their home and getting her into the facility. Which thankfully I had been looking for before she lost her spouse AND her home AND 1/2 her income.
I have a brother who we haven't seen in about 20 years. He is aware of her condition, because his son calls his grandma and lives near his dad. As you can imagine I have many things to deal with at once. No other siblings. You have to be firm with your folks. Maybe come and work along with the housekeeper the first time so they get used to her gradually?? Good Luck, we all need help with SOO many areas of caregiving, and can sympathize.
Thanks for sharing your stories. Guess we had the same type of up-bringing. Even after all this time, it still haunts me. But, it's okay.....I got through it and went on to raise a wonderful family.
Character builder. Sorry for carrying on about my childhood. I'm ok now :) xo
Agreed about living your own life too -- & make sure you remember more about visiting them than cleaning the toilets!
When we called Social Services in to evaluate what Mom needed, the social worker asked if she needed homemaking services, to do laundry and clean. "No," she said, "My daughters can do that." Fortunately one of those daughters was there and spoke up. "No, Mom. When your daughters give up time with our own families we want to play Scrabble with you. We want to try to beat you at cribbage. We want to watch a funny tv show with you. We don't want to scrub your toilet or wash your bedding." And Mom got a homemaker a few hours a week!
They don't want strangers in their house? Well, none of us gets through life having only what we want. What you want and what you need is every bit as important as what they want.
If instead of spending 5 hours a week cleaning for them you spent one hour a week playing cards with them or taking them for a ride through a beautiful park, wouldn't everyone really be happier, and have less to regret?
Bringing in Bristol Elder Services was my life saver, until she had to go to assisted living and then that bubble burst. Mom did not want to be there even though she knew she could no longer live alone. She became impossible, started throwing away her meds, trying to manipulate the situation so she could go back to a facility where she was treated like royalty. What she did not realize is she was treated that way because she was a short term rehab patient... as a life resident, it is all together different. Throwing away the meds did so much damage and I know she did not even consider that. Her condition is critical... she has a DNR, Do Not Hospitalize, and Do Not Intibate in place. This has been so hard!
My mom trusted me to do the right thing even though it is not what she really wanted for her life! My heart is so heavy because she has shortened her life considerably. All that pain and frustration I went through in the beginning is completely gone... just knowing she will not be with me much longer has over taken those emotions and there is a whole new set in place now! I just keep on smiling, keep on trusting God, and moving forward, hard as it is, and it certainly is!
Because of her medical condition, her mind is not always with us... and she is much like a small child. In that, it is easier to talk to her and just love her and do what is right by her. Kissing her good bye every night that I see her, and telling her I love her has been huge in healing me. She looks at me with so much love in her eyes and says... I love you too Cindy! She knows I am taking good care of her. There has been a lot of heartache in the family with my siblings and their treatment of her... but, she knows she can count on me and for that I am VERY thankful. Honoring God by honoring her as my mother does a heart good!
First, good for you that you recognize what is going on in your life. So many caregivers don't see the problem until it is too late. What you have taken on is simply not possible to sustain. You cannot continue to maintain this level of commitment to your parents, your family and your two jobs. Something will break and I fear it will be you. You MUST get help and you should start doing less.
It is very common for aging parents to not want a stranger in the home, but I'm guessing if a major appliance breaks or the plumbing goes out, that you are not the person to fix it. They would have a stranger in their home. They don't want anyone else because up until now you have been willing to do everything. So now it's time to set some boundaries and put some of your needs at the top of the list...and there is NOTHING wrong with doing that. You are NOT a bad person because you don't want to lose your life. In fact, if you get some help, your attitude will change and the resentment will begin to subside. The scenario that you describe is the biggest challenge caregivers face. There are too many emotions to manage and guilt becomes the most powerful. You Matter! Your Life Matters and I encourage you to get some help quickly.
The thought of losing our parents is, of course, scary, but that fear and sadness should be focused on spending time with them that serves them and you in a good way. Cleaning and feeling resentment about doing it, is only going to erode your feelings of love. All the best to you.
After her death, life went on. Believe it or not, Home Health Care had to come in and they said that she needed to be in the hospital. Everything progressed from there.
But, I wish my sister would have spent time out of town at her sons', instead of being co-dependent on Mother.
I like Jannie's suggestion, too. Sit down with your Mom and Dad and start the conversation out by asking them if they trust that you have their best interests at heart. Good luck and let us know how your doing.
I sat down on the sofa next to Mom and had a calm heart to heart.
I said to her that I would give any thing to be able to contine to clean for them but it has become too much for me.
I said to mom that I know she does not like any strangers in her home but to please trust me.
I told I would make sure the person or persons that came in were responsible, and I would be there too when they came to clean. Until they would get used to them coming in.
I said to Mom, what if the roles were switched? What if you could no longer do it? But, I did start out the conversation by saying to Mom, "Do you trust me Mom"? Do you trust that I have your best interest at heart? That I would never do any thing to harm you or Dad.
The Dept of aged may have some ideas on who you could find, or suggestions on finding some one.
Let your Mom know that you did extensive research on finding some one.
Good luck, I so understand.
You cannot do what you cannot do! There is only so much one person can handle, and beyond that we need help. You have to make the decisions that truly help and protect their interests, as well as your own. And how you respond to your parents is teaching your family at the same time. Be a good role model.
It's hard enough to anticipate losing your parents now [as will /have we all] without creating situations now that will make it harder to deal will the grief later. Don't heap unnecessary guilt and grief upon yourself. Get some assistance to do things anyone can do --cleaning, laundry. etc -- without the natural "resentment" you feel, and focus on the emotional needs your parents have [as well as you and your family too]. They probably realize their lives are "out of control", and the fear from that, as well as the fear of losing each other, is scary. And when they realize that despite your help, and what your dad tries to do, things are actually still getting worse, that's scarier yet. Try an experiment and get outside help to do the basic house and daily maintenance things, and you focus on their medical and other situations--getting them to doctors, making sure they take meds, are eating good food, you are making sure their bills are paid for on a timely basis, etc. See if things don't improve for them [they should see things as better even if they don't want to admit it] and for you. Emphasize the need and desire to help them, but also the need to be what you need to at home.
Get a social worker to come in and access the situation and recommend the help and needed assistance to free you up. That helped us get the basic help we needed with my mother-in-law and let me focus on her "family" needs as well as attend to my children. I couldn't be in two places or take on tasks beyond my time and physical [and emotional] limitations and do any of them well. And running myself into the ground would render me ineffective in all arenas. Outside help is essential. Few families are capable of meeting all the routine mechanical and emotional needs of aging / ailing parents for very long and doing it effectively and without burnout. And when you burn out, you can't take care of anything adequately.
Their situations force the realization that we don't have the people in our lives forever. Accept that, as painful as it may be, and don't live in denial. And don't deny your family your presence and assistance and interaction they need from you.
Don't create future regrets; the "if onlys", "what ifs", "why couldn't I have onlys" will consume you with grief they create and add on top of the normal grief of eventual loss. Protect yourself in order to protect your family and manage your parents adequately.
Been there and done that, and got close to burnout that rendered me ineffective in anything I tried to do. And that helped no one! The social worked assigned to our case saved the day!
You can't do what you can't do; you can only do so much. And as one person said, "Never cry alone". Share the load and emotions. Praying for you and your situation.
I have a great little family of my own and they should be priority. Also, don't forget yourself. I should've have heeded that advice about years ago when I was injured and cannot do all the physical labor any more -- yet, feel guilted into it -- don't let it happen to you!!!
Christinaw's note had a good bit of advice -- choose a priority "quality" thing to do for or do with your parent. One thing though, and make it good and memorable. Whittling back the list has helped with physical stress. Good luck.