My Mother and I were best friends before her stroke. When I disagreed with placing Mom in a nursing home my siblings coerced my Mom to cut me and my family completely out of her life. I miss my Mom terribly. I don't know how to live without my Mom (she lives 20 minutes from me) in my life. I reported this and the financial exploitation to the authorities, but all I'm told is the investigation is on-going. It's been almost 6 months since I've seen my Mother and I believe it's slowly killing me. I'm living in my own hell now.
There's many a true word spoken in jest. That's kind of what worries me.
Being separated from a mother you love and being unable to satisfy yourself that she is being cared for is very painful. You do not have to disguise that in any way, in front of anybody.
Keep sending cards to your mother. Keep them loving. Keep them cheerful. Let her know what your news is. Do NOT include anything that can be interpreted as an emotional lever - reminding her of shared experiences, for example, could make her feel bad about not being in touch with you now. If it's bad for her, it will be kept from her. If it is likely to make her sad, it will be kept from her.
You may not get a reply, and you won't have any way to know if she is receiving them. Doesn't matter. You've still sent them, you're thinking of her, and at the very least it is something you can do.
I would like you to look for professional guidance about your best way forward. The counselling could do a lot to help you cope, and that's good; but what you're also aiming for is a route to re-establishing some kind of contact with your mother. For that, you need a strategy and a firm hand to keep you on track. Do you have your own lawyer?
Thank you again for your support and words of encouragement.
When you say that you disagreed with your mother's being placed in a nursing home following her stroke, what form did the disagreement take?
Similarly, as gladimhere asks, what form does your mother's cutting you out of her life take? Is there some kind of order preventing you from visiting the NH? If there is, have you taken legal advice on how you might challenge or amend it?
Your mother has a right to contact with all her children, is your starting point. When she is asked if she wants to see you, she says no. She does not have to give a reason, so her "no" is not challenged. You can understand, I'm sure, that as a general rule this process is correct. Not your mother, but other vulnerable people *may* be afraid of relatives, and should not have to give a reason not to want to see them. So you can see the sense of it, yes?
So. Negotiate. Maybe you might get somewhere if you aimed for supervised access to start with. Are you in regular touch with any particular social worker or similar professional?
The heartbreak is unbearable. I'm in counseling, but I miss my Mom so much the sadness and depression of not being able to share our lives permeates every aspect of my daily life.
One thing I choose to believe is that parents always love their children no matter what. She may have been fed a pack of lies by your siblings and they are the ones who are barring you from the residence your Mother is in, but eventually she will know (in life or after death). Take comfort in the fact that everything is eventually revealed. If she is cognitively impaired it may be that she is 'stuck' in that mental attitude and may not be able to get around it regardless of what you do. You have to understand that it is the disease, not your Mom who has highjacked your Mom's attitude. Your siblings are exploiting that for all it's worth to them and will continue to reinforce that as frequently as they can.
What I don't understand is why they would put her in a nursing facility which would drain her resources rapidly leaving nothing. Unless they pulled something like getting her to sign a sales agreement or transfer of ownership which goes back to the medical question of competence. This is exploitation of an elderly person.
You need to get your ducks in a row:
1. Medical records
2. Usually you can look up deeds and property records in the county where the property resides - get those records.
3. If you had access to her bank accounts previously, get those collected.
4. If you still have access, obtain copies of them as well.
5. Collect any written documentation that existed before your Mother had her stroke (Will, POA, Healthcare POA) that are in existence that you can put your hands on. If you do not have physical access some states/counties allow you to look this information up similar to property records. If they were filed after she had her stroke, make a note of it. Gather both documents for proof if both records exist.
6. Go to your Mothers lawyer and see if he will talk to you about her will or any documents she may have filed if you are unsuccessful in #5.
7. Once you have all this information, submit them to the proper authorities.
The elder abuse investigators should think about the elderly being intimidate, frightened, and coerced, but if they're in a nursing home it seems as though those types of concerns are not investigated because they believe that the elderly person is in a safe environment. Shameful!
My brother and sister are living in Mom's home rent free and living off her money. My siblings wanted to add their names to the deed to Mom's house, but the last I check it was still in my parents name.
Each day that goes by I run the risk of my Mom forgetting me. I would like to spend time and create new memories with Mom. I was informed that Mom may be in the early stages of dementia. I can't even mourn the passing of my father because being without my Mom consumes me. I'm a sad, depressed daughter that longs to be apart of my Mother's life.
Waiting on the investigation is very hard to do.
It is SO hard to “sit and wait” for the “Wheels of Justice” to turn. You have received some great advice. I am glad that you plan to send letters to your Mom and that you have consulted an attorney. Keep sending loving letters to your Mother and continue therapy.
{{{Hugs}}} 💖 and Prayers 🙏 ❀
I miss her desperately. When I'm out doing normal things like shopping, walking through the park, etc. I see other daughters and mothers enjoying their lives and I want that for my Mom.
Thank you again for your support and prayers.
I truly believe what goes around comes around.
Om the rare occasions that I'm allowed to talk with Mom I always tell her i love her and that I'm trying to be reunited with her.
Thank you for your support.
And I do believe that family members can be selfish and devious. I boggles my mind, but I believe it does happen. I am glad you are in counseling for your emotions and that financial situations are being investigated. How long ago did you turn your evidence over for investigation? Such matters do take time, and often staff is limited.
But I hear warning bells in your description. You were ready to send Mom back to her own house two months after her stroke. Is that what she wanted? Certainly! Is that what was really best for her? Hmm. Did her doctor give the go-ahead for her to return home? Your siblings apparently did not think that is what was best for her. Greed? Maybe. But every day she is in a nursing home reduces their potential inheritance.
You acknowledge that she needs "intensive therapy" to regain her skills. Therapy is available every day in a nursing home. Nursing homes have staff skilled in evaluating what therapies and how much is likely to be most effective.
But my biggest concern is that Mom is in a secure facility, and you think you can immediately place her back in her home. How will you secure the home? How will you provide 24 hour supervision? Maybe you have a great plan, but you haven't described it here, and it worries me. Persons don't get accepted into secure facilities unless that level of care is appropriate. The most common reason is wandering -- leaving the building without supervision and without sufficient self-awareness to be safe. That level of care is also used when there are behavioral problems that could cause harm to the patient or others.
You say, "If the authorities act timely and allow me to oversee Mom's daily care I would immediately move her back into her own home.” What qualifies you to be able to determine that is in her best interests at this time? Do you think being in her own home would magically cure her? You haven't even seen her lately. How can you be so sure of the level of care she needs?
I am absolutely sure that you love your mother very much. I am less sure that you understand what is best for her. It sounds like you are more interested in pursuing what would be best for you. I think you might be blinded by what you wish were true, instead of realistically seeing the truth.
“I want Mom in her home and to attend intensive therapy to try and regain the skills that were lost from the stroke. If the authorities act timely and allow me to oversee Mom's daily care I would immediately move her back into her own home.”
How much did the stroke affect your Mom’s ability to take care of herself? In other words, how much assistance/help does your Mom need to bathe, using the toilet, get dressed, walk, prepare food, feed herself, etc. Is it possible that your Mom really does need to be in a nursing home? If you research this website, you will learn just how much work it takes to care for someone who is unable to perform her own Activities of Daily Living (ADLS) unless she/he has help/assistance from others.
According to the website, https://www.sageminder.com/Caregiving/CaregivingBasics/ADLAssessment.aspx: “Healthcare Professionals use standard scales to assess a patient's/resident’s ability to cope with life's general demands. Activities of Daily Living Scales (ADLs) are basic daily self-care activities. Instrumental Activities of Daily Living Scales (IADLs) are the basic daily activities needed to live independently in the community. You can get a sense of where your loved one stands by downloading the forms below. Health care at home really needs to begin with an accurate assessment of these ADLs and IADLs.”
I have listed below information about ADLs and IADLs and some ADL & IADL Assessment forms that you can download to your computer and use to evaluate just how much care or “intensive therapy” your Mom needs. Copy and Paste the URL to your computer browser.
https://www.agingcare.com/articles/activities-of-daily-living-why-this-measure-matters-186853.htm
https://www.agingcare.com/articles/activities-of-daily-living-defined-427356.htm
https://www.sageminder.com/Caregiving/CaregivingBasics/ADLAssessment.aspx
ADL (Activities of Daily Living/Self-Care) https://www.sageminder.com/Portals/0/pdf/ADLforweb.pdf?ver=2016-06-27-134001-457
IADL (Instrumental Activities of Daily Living/Measures of Independence) https://www.sageminder.com/Portals/0/pdf/Assessment%20of%20IADLs1.pdf?ver=2016-06-27-134001-457
You will need to be truthful while completing these forms and not write down what you “WANT” your Mom to be able to do; BUT WHAT SHE REALLY CAN DO—today.
Is it possible that your Mom is receiving Physical Therapy or Occupational Therapy at the nursing home? If your Mom is NOT receiving therapy, is it possible that the stroke has affected her ability to understand HOW TO PERFORM ADLS or to FOLLOW DIRECTIONS; thus making it difficult for your Mom to participate in Physical Therapy or Occupational Therapy? What do you mean when you stated “I want my Mom…to attend intensive therapy”? Do you mean that if your Mom lives in her own house that you will take her in your car to Physical Therapy or Occupational Therapy at the local hospital or at a Therapy Clinic or where? Would it not be better if your Mom stayed in the same building where she is getting Physical Therapy or Occupational Therapy, then having to be brought to that building 5 days a week. Can your Mom get herself into and out of a car or SUV with minimal assistance?
These are some things caregivers have to think about when they are trying to decide whether it would be better for their loved one to live at home with them or to live in a nursing home. You have some difficulty thinking and evaluations to do in regards to your Mom’s situation. I hope that you make the decisions that are BEST FOR YOUR MOM even if you don’t agree completely with those decisions.
But every time I sit down and try to think of something consoling or encouraging to say to you, which I really want to do, I fall into this black hole of missing information.
Something happened that you're not telling us about. I can guess what kind of thing. I can understand that it might well have been an incredibly distressing time or event, that you wouldn't want to revisit. That's okay.
But along the route from mother living at your home with you caring for her full time and supporting her enrichment program; to mother preparing to move back to her home; to the diversion to the nursing home where - this is crucial - at one point you were able to visit her; to now when your mother's link with you, on her side, has been damaged in a way that even the most overbearing siblings couldn't pull off on their own -
There's something missing.
What went so wrong that your siblings not only want you gone but have successfully created the consensus on that? Did you try to spring her, or something? Did a confrontation get out of hand?
Don't answer this with what lying thieving hounds the siblings are. Sure, yes, we can take that for granted - who doesn't tell whatever story serves his own interest? But the point is that lawyers and social workers and related professionals, they all *know* that.
An elderly lady is not separated from her loving full time caregiver child on the unsupported say-so of rival siblings.
So what is the real obstacle we have to get broken down and swept out of the way?
The real issue is that my siblings want my Mom's house (2 siblings are living there now) and they're spending Mom's money. GREEDY!
I looked into the issue that is stopping the APS and that is Mom's capacity to make decision not whether she fully understands the totality of the situation.
I told APS the attorney that I spoke with that I'd give up any right to my Mother's estate as long as I could be reunited with her and afford us the opportunity to implement my recovery plan that was previously approved by her doctors.