Mum lives with my husband and me in a granny flat behind our house. She was diagnosed with dementia 3 years ago.
She has 2 sons and me, a daughter. She has 5 grandchildren, 8 great grandchildren and 1 great, great granddaughter. Although she has photos displayed of everyone, she forgets who they are.
My older brother, who lives in Thailand calls mum every Tuesday and her mood immediately changes towards me. She becomes aggressive and calls me a prison warden. She refuses to leave her flat, all her old friends have passed but on a good day I can coax her to come to get her hair done or for a Pedy. I've cared for mum alone for 4 years and she is fine every day, until my brother rings. Then I know, for that day, things will be difficult. He refuses to listen to me when I ask him to not upset her as he refuses to believe that she has dementia.
She refuses outside help of any kind so I do her cooking, cleaning and anything else she wants/needs.
How can I assure her that I only want what's best for her?
Mother being agitated after Brother's calls is not a good sign.. I'd only be guessing at his behaviour & intentions. What does he have to say about their calls? Do you think he talks honestly to you?
Is he sort of clueless & happy? The hopeful glass half full sort?
At risk of stirring the pot, who has POA for your Mother? Please say you!
If your Brother - he could have a monetary reason for his 'denial'.
Because if no diagnosis there will be no need use Mother's money to hire aides or even pay for Assisted Living or Memory Care, right?
That's a lot. What does "sleep disorder" mean? Is she up at night? (Are YOU then up at night?)
"She refuses outside help of any kind so I do her cooking, cleaning and anything else she wants/needs."
How many hours a day do you spend doing things for her? Can you leave her alone and go out? Can you go on vacations?
Beatty: "If your Brother - he could have a monetary reason for his 'denial'.
Because if no diagnosis there will be no need use Mother's money to hire aides or even pay for Assisted Living or Memory Care, right?"
I'm wondering this, too. What happens when your other brother calls? Does he come and visit? Is he local? Does he do anything to help out?
What is your mother's financial situation? Is there an estate that will be split three ways upon her death? Is she paying you anything now for her living in your property and all that you do for her? For her food, medicines, whatever?
You cannot assure anyone with dementia of anything. You can't convince your brother of anything. You can't change others. So if this care is becoming too onerous now it is time to change how it is being given. This sounds like a severe progression of your Mom's dementia, best cared for in full nursing home or memory care unit.
Mom can't live alone. You never know what someone with Dementia will do. Does she recognize you as her daughter or the one that iss always there for her? If your Mom knows no one, then I would say her Dementia is advanced. She doesn't go anywhere because she is comfortable in her little world. Going outside it is overwhelming. Please don't care for her to save an inheritance. The only people who profit from ur hard work is your brothers.
With Dementia, she should NOT be left alone. She may be able to do certain things for herself now, but this will not last for much longer. You can NOT convince her of anything. She has Dementia and cannot understand. You may have to limit her calls with your brother.
Every family is the same. You are in the trenches on a daily basis. Who in their right mind would place a label on a loved one with Dementia and doing all that you are doing just to say it and provide all the care that goes along with it.
Sounds like far away brother is trying to make you look bad. So, he is not showing up, but brother has Mom thinking there's nothing wrong with me, and brother ends up looking like the good guy. Join the Club honey...
Men don't notice hygiene, is mother eating properly "everyday" not just once a year when they take Mom out for dinner. Are her prescriptions being filled, dispensed and monitored for any side effects. Does she wear clean, fresh clothes on a daily basis.
Is Mom getting exercise, fresh air, socialization, etc. You get what I am saying. Oftentimes, you can't always discuss a loved one's diagnosis with the person who has Dementia. If people were polite about this loved one's would be driving that shouldn't and endangering themselves and others.
You have to make decisions for the safety of your loved one and others. Some families can get together and come up with a schedule and a plan. Other's, sometimes when you step up to the plate, don't expect to be praised by your siblings.
It's like a slap in the face because you are on the front lines 24-7 and they are an armchair traveler with their Sunday night phone call.
Tell brother that you and hubby are going on a cruise for a week and to come out and stay with Mom. She would love to see you. Print out a "list of things to do" and all the specialists and their phone numbers of the doctor's you visit for mother's health.
Tell him how mother likes her coffee, eggs cooked, clothes cleaned, hair parted, crush her pills and put it in applesauce so she won't choke and cranberry juice to prevent UTI's. The hearing aid batteries need to be changed, partial plate cleaned and the bed stripped and clean sheets put on. This is just the morning routine.
He'll get the message...enough said!
We also struggle often with convincing Mom that we only best for her. When she is being suspicious and argumentative “you are wrong” with the brother she lives with, I often hear him pleading “it would be so much easier if you would just trust us” “don’t you trust me”? I of course get to this point too but not actually living with her maybe have learned to refrain as much as I can from pleading or taking it personally and instead taking a step back when I get into that space and remembering that she isn’t able to reason at the moment and the reason she is trying to take control, all be it in unreasonable ways, is because she is feeling more out of control. It’s her broken brain not her heart at work and instead of trying to cover that up she is laying it out with me because somewhere inside she feels comfortable trying to work it through with me. So I back off and just say ok and let it go as much as I can because I know there is no reasoning when she is in this space and getting upset only makes her worse and me angry. It sounds to me like your Mum is much the same given that the days she doesn’t put all that energy into show timing for her far away son she is able to settle into her routine counting on you. Because my mom forgets so much and has a hard time with new concepts we have found that going over the reasons for this thing or that she really doesn’t like to do when she is in a receptive mood helps and when you asked her then if she understands we are just trying to do what’s best for her and or what the doctor wants she usually indicates she knows we want what’s best for her and that we love her which is always helpful for both she and us to hear acknowledged.
Its a labor of love what you are doing and in a backwards kind of way the treatment you get from your mum compared to the treatment far away brother gets is an acknowledgment of that, what’s the old saying…the people we love are the people we hurt the most…something like that. As far as your brother goes, cut him some slack I can only imagine how hard it is to be so far away and so far out of real touch with my mother and her life/caregiving. I doubt he is trying to be disruptive but that’s another discussion. Hang in there your doing great!
Your mother cannot be safely alone and requires memory care in a 24-hour nursing home. Looks like her level of care is more than you can handle. Send your overseas brother proof of her assessed diagnosis that she has dementia. Time for him to wake up and face life today, as what you say is not pretend time.
Second Answer: Speak with an Elder Attorney to see what you options are. It seems that she may be to far gone to make decisions on her own.