One mid-stage AD and other is Paranoid. My aging parents are mentally not doing well. They continue to act like teenagers and run away without notice-driving to places they have not even figured out whether they have a place to sleep or not. My father, a retired military man of 80, is an overcontrolling, burnedout caregiver of my 76 year old mother who has mid-stage AD. It is upsetting as I quit work once to stabilize them since the County Protection Agency was called and wanted me to put them in a home which they have refused. I am tired of trying to help even though my father will pay me cash to sit and spend time with my mother a few hours a week. He still does not trust me or anyone else and is losing it more and more. He threatens to take sphere of the moment trips with my confused mother who keeps her purse filled like a suitcase. She now thinks she is lives in her mothers home (been dead for over 10 years and lived in Maine). Help!!!
I would talk to your father about setting up an alternate POA for finances and healthcare. Your mother is not able to do the job if he should need.
Elders do like to remain in control. In their minds they are still the same people as before. Often they don't realize their limitations. They may think that a good night sleep or a trip will change everything and make them more energetic. I'm sure it is disorienting to your mother.
One thing you can do is look to getting some of the technicalities taken care of. Have your parents designated financial and healthcare POAs? Have they written their wills and advanced directives? Have they invested in funeral policies? Getting some of these technicalities done can lend some direction and have things ready to go if they are needed.
The others things can feel like a waiting game. Something your parents won't allow today may sound like a good idea to them tomorrow. Often elders do begin to accept their limitations when things are not working well for them. They may need assisted living in the future and your mother may need nursing care. You can look around to see what is affordable and doable, so when things are needed you'll know what's available.
It would be nice if we were magic and could just tell our parents to do something and not get an argument. That is seldom the way it happens, though. Particularly when one (or both) parent is difficult.
I'm curious what her response is when you say, forcefully "mom, i can't do this any more;we're out of money and i have to go vack to work. Either someone comes in to watch you or you need to live in this nice AL". And if she says "no, i want you to help me", you say " that's not one of the choices mom". I HAVE to go back to work or we'll both be in a homeless shelter.
Nothing in our lives prepares us for the day where we have to take the reigns from our parents. It's terrifying. And it has to be done. It is a complete and total surprise to a large number of people, and they feel utterly unprepared to do so. Or even unwilling to face it.
I have walked this path myself and I can tell you that it is life-changing in a way I never expected. If I stuck with what my mom said and demanded all the time, she may be dead right now in her filthy hoarder house.
I had to show some leadership (if that's a nicer word) and do some things that were massively unpopular with her, simply to keep her safe and as well as possible.
There are an awful lot of people here who gave me a swift kick in the can when I needed it to get going and take action. Dementia caregiving requires a very thick skin and a level of creativity I did not expect. I had to grow a thick skin pretty darn quick to survive the rants, raves, fighting, arguing, swearing, foul names, and outright obstruction from other family.
Now, the solution to this is the first explore your options. If you're in a position to be able to go for guardianship, then you really do need to do it or someone else will. If someone else takes guardianship of these specific people, there's a chance that it may not be who you would want to have that guardianship of your loved ones, especially if the state must step in. When guardianship is established, the first thing you're definitely going to want to do is to take the keys. Even if you must make a police report and gain any other support needed to do so, then definitely do it, because public safety should definitely be a priority when it involves getting someone permanently off the road who is a danger to themselves and other drivers. Remember, some of those drivers transport passengers, with some of them being children. If you think for a moment, you really wouldn't want an angry parent on your tail just because your loved one caused an accident that killed someone's child. Again, you really don't want an angry parent on your tail, because it can have a very ugly ending in some cases. If you're the kind of person who really doesn't like trouble, please think of the consequences that could result if proper measures are not taken by the right people to prevent anything that could cause those consequences. People here who are trying to help you get to the bottom of this very unfortunate situation really are telling the truth, and you really should listen to what everyone is trying to say, because sometimes situations bring us to the point of having to take responsibility that we really don't want to take. Sometimes we may have to make the hardest decisions to remove someone's independence just because there a danger to themselves and others, I've seen this happen twice in recent years. Fortunately, both people were placed where they can get the round the clock help they need in order to protect them and the public from undo trouble. Sometimes this really is necessary, and if you don't do it, someone else will, and you really don't know how or when this will happen or what it will take for it to happen. I only hope that proper measures are taken before your loved ones hurt themselves or someone else. What you can do now is what anyone else can do. Take a description of the vehicle and the license plate to your local police station and at the very least alert them to the situation. They can alert all proper channels to be on the lookout and take any proper action necessary. If you tell them in the report that your loved one may have age related dementia or Alzheimer's, that will definitely get the police on high alert. After all, it's much better to be safe now than sorry later, especially if someone must pay for avoidable hospital bills or even an avoidable funeral. It's up to you now because the ball is now in your court. What will you do? This is a case where public safety now rests on your shoulders because you know the situation. You really want and want to read tomorrow's headlines about some wreck that you know you're loved one cause, so wouldn't you want to avoid it now while you have that chance? Please, make the responsible decision to do the right thing while you still have a chance to make that decision, the public is now counting on you and other responsible citizens to do the right thing when they know it's necessary. I must remind you of another thing since you said that your loved ones are always running away and going for drives without notice. Remember, the higher the speed a car goes, the more damage that will be done on impact if something happens out on the open road. If you assumed responsibility for your loved one, but please do the right thing as a responsible person.
If it's APS, I'd ask them to show me where it's in case law, IN YOUR STATE.
Trust me, I know the situation you're in ALL too well. Biggest difference for me is that my Mom doesn't live on her own...I was stupid enough 5 years ago to move her into my home when she was "a little forgetful". Things grew worse & I was not only fearful for her safety while I was gone 12 hrs per day at work but, quite frankly, I was scared to death I'd come home to find that she had accidentally burned my house down! Talked with Mom about Assisted Living...refused. She listened better to my brother so I had him talk with her...refused. Home aide while I worked...refused. Adult day care...refused & they aren't open when I can get her there before work or when I can pick her up afterward. Talked with Office of Aging about how I could get her out of my house & placed in AL. Sorry, we can't help you but you can evict her....but if something happens that she gets hurt, hurts someone else or dies...yes, you can be prosecuted for neglect & abandonment since you knew she can't manage on her own. So, here I am unable to convince her to go to a facility, but afraid she's going to burn down my home while I'm gone, I can't force her out or face jail if something goes wrong...and it will...and she continues to refuse all help or placement unless it's in my home & given by me. I'm stuck between agencies that won't/can't give help & the law that basically says I must or face legal penalty. I've had to quit my job to stay home with her 24/7/365, my savings is dwindling because I can't find a elder lawyer who is attentive enough to actually write a care contract that reflects OUR situation so that I can get paid from Mother's private funds to do the care I'm already doing that's bankrupting me. So, yeah, I completely understand having to flounder around out there on your own with no one willing to help. To be in a situation like yours & mine where you can't legally force someone into a home & then to have someone imply that you're weak or acting like a child about it is NOT helpful. And for those of you advising, well, hust take them & show them some facilities & how nice they are or take them for a short respote stay & just keep extending it....IT AIN'T THAT SIMPLE WHEN THE PERSON CAN REFUSE! My Mom won't get out of the frickin car to go look or have a respite stay & the staff can't legally drag her in! Even if she DID go in, they cannot legally prevent her from leaving if she says she doesn't want to stay. Is Mom capable of calling for a cab? Probably not....but she is completely caoable of walking right out their doors & there's not one thing they can/will do about it. So, where does that leave us? What are we supposed to do when the solution isn't simple & tied up in a cute little box with a pretty bow on it???
I think in your shoes, I'd send a certified letter to APS indicating that you have no POA and thus no ability to spend their money on care. Your father is non compliant with care you have brought in. You tell them that you cannot be responsible for their well being. You let the county step in when things get ugly.
You are not required to ruin your life.
Oh well, some of what you did say is correct about needing to take further action since my father is not capable of caring for my mother anymore. I will think twice before I ask for help on here again.
I realized with my mom that I had to step in - like it or not - because she didn't care if she hit or killed anyone.
These two can no longer be left on their own and need to be in a secure, supervised residence. Ideally, you can find a place where they can be together or at least very near one another inside.
Home care is a reasonable option when the person needing care is not at risk for getting outside on their own. It is extremely difficult to secure a home for anyone who may wander. There is no way to know how long that stage will last. It could be years.
To be blunt again, they don't have a choice anymore about stay at home or be somewhere safe and looked after. Sometimes you have to do what must be done and realize it's for their own good. Yes, there will be fits.
This is one of toughest and most common situations with elders who are stubborn and borderline incompetent. That your Dad is still driving is also something to worry about, and that's also one of the toughest nuts to crack.
My folks are not far behind yours. They're hanging on in there home but won't allow any in home help or discuss assited living, so like many others I'm just waiting for the next crisis that will force the issue. Unfortunately, in many cases like ours that is what it will take to get elders the help they need but are refusing.