I have eight brothers and sisters. My mother is in a nursing home now and she insists that I help her do things that the nursing home aides and or nurses can help her do. Such as brushing her teeth and helping her to the bathroom doing her hair and laundry. She never asks any of my siblings to help her do these things but she thinks it is my job. I have been designated as the POA in my mothers living trust and have done the lions share of taking care of her and her needs these past 6 years as her health has steadily declined. I have PTSD from dealing with the nursing home staff and fighting them about her being overmedicated etc. My siblings never volunteer to take over some of the tasks but instead want to be asked to do these things. It feels like I am an only child and makes me angry and bitter. I don't want to feel this way! My mother has no quality of life now and complains every day about it. I wish every day for my mother to die in her sleep.
I actually think it is better for you to be the central organizer for how and when your siblings help...at least they seem open to it! You are in the best position know exactly what your mom *really* needs (and its not brushing her teeth or doing her hair as the facility can do that). Think of what will benefit her the most and is easiest for the family to do. Send out a group email so that everyone gets the same communication from you at the same time and please sound grateful when asking for their help. They can't read your mind for what you need help with. Ask them if there's anything they'd be willing to do that's not on your list, like bring their kids over to do something fun with Gramma or take her out to lunch, etc. I'm an actual only child and I manage care for 4 seniors over 85. Two of them are out of state. The only way it gets done is with good communication and gratitude. I realize you are feeling burnt out and your mom's complaints are draining you. My mother has always been a complainer and I just don't listen to it. You don't have to listen to it or internalize it. You're not responsible for her happiness. Only for her care. Now go write up that list of what help you think your mom really needs!
I found that to keep my sanity I had to 'promote' myself: from hands-on carer duties to clerical - organising the care.
Took a while for the lightbulb to go on but the new job (ie boundaries) suits me much better. Plus the unexpected bonus that Mum & Sis (both disabled) are coping just fine.
If you are visiting every day for hours, step back. Mom has come to rely on you too much. As long as you make yourself so available, she will continue to use you.
You cannot force your siblings to help. They will either outright refuse or ignore you. I would not plead with them or force them. I would save yourself the anger and anguish and write them off.
NO....say it again. NO....Look in the mirror and say it.
When you go visit if your mom needs help call an aid. That is what she/you are paying them for. And I can assure you that if/when you are there they will not respond quickly because they are used to you doing things for mom that they would normally do. And you can bet that mom probably tells them ..oh Jeanfastbrush will do that when she comes today. So you will have to retrain both groups to understand you are not going to do hands on care.
Another reason not to do so is IF something were to happen to you or mom it is possible that the facility would not cover any injury.
So lets try this again, and practice until you can say it easily ...NO, I can not help you to the bathroom. I will get an aid to help you.
NO, I can not help you shower. I will get an aid to help you.
NO, I can not do your laundry. (although if you want to do this take it home and return clean laundry later in the week) And you might even want to give one of the siblings the laundry duty.
One of my sisters said she wanted to be asked. Not by me, but by my mother. The idea of helping out to make things easier for me did not appeal to her.
My mother didn't ask her, or my other local sister, because she was not as comfortable with them. My sibs also didn't volunteer, and that made my mother less inclined to ask them. I was the first to step up, and the more I helped her, the more I grew familiar with Mom's habits and wishes, and the more comfortable she became letting me help her with things. My mother made no secret that she would rather have me help her or accompany her places than my siblings. Of course this further discouraged them from volunteering.
You can try to draw one or more of your siblings in by asking them to take specific chores off your plate. I've done that. You can make yourself unavailable and suggest to your Mom that she call one of your siblings to help her out. I've done that too. It worked somewhat, in some circumstances. In the end I think I just accepted that I had a relationship with Mom that none of my siblings had. I'm now the one who has her ashes on a shelf in my bookcase in my bedroom.
I wish you luck working this out with your Mom and your siblings.
You need make the decision to save yourself. Allow the NH to do their job. Decide on day or two a week and tell those who care for your Mother that you will no longer be spending as much time with her. If you're concerned, then just stop by on different days and then they won't be "ready" when they know you're coming. I know this is easier said than done, but believe me, if you don't set boundaries, it WILL affect your health. Someone on this forum once told me the same thing - and it has. You are crying out for help and you know what you need to do. Please Jean, your Mother has lived her life. You deserve to live yours too. 💙💙
If you have been doing these things, maybe let the staff know (maybe in writing if you've had issues with them) that you will no longer be doing x, y and z for your mom. Is she unable to do some of those things like brushing her teeth and hair? Or is it for attention? Control? IDK, just wondering.
Is there anything she likes to do that you can do with or for her? Play cards? Read to her? Take her on a walk outside? If so, maybe you could say that although you're not going to brush her teeth you would like to do X with her instead. Something more fun and less care giver like for both of you.
You have to set the boundries. She is in a NH all you need to do is visit. She has to allow the staff to do their jobs. She is now provided with her toiletries, depends and laundry services. If on Medicaid she gets a $50 allowance. POA does not mean caregiver. You are enabling her. Put the laundry in the facilities hands. Really, whatever soap they use takes out stains and smells mine couldn't. When u do that, plan a trip and go. Mom will be cared for.
Talk to the doctor that prescribes her meds. The staff is only following doctors orders. Always talk to the Director of Nursing if not getting anywhere with the charge nurse.
Why can't you say the same thing to your mother that your siblings do?
I would step back like others have suggested and I wouldn't beat yourself up because no one else is stepping up or volunteering. Do what you can and leave the rest to the nursing staff.
It's hard but try to get on their good side at the AL/NH and get them in your pocket. It has to be a team effort but that doesn't necessarily mean related team members. It is sad but people often who you don't have history with are the best ones to turn to.
Be present but don't let this consume you.
Also, let mom know you have other things to do too. (even if you don't) just being home resting or watching tv or reading is something else to do. Or just BEING.
its hard to say no to your parents. It took me a long time before I learned to say no myself. But you’ve got to learn to say no and set boundaries. Your mother is in LTC, there’s no reason you should be wearing yourself out taking care of your mom.
Frankly, I would forget siblings. You cannot make them help and more importantly, they should not have to. Your Mom is paying a facility to care for her. They should, and will, attend to her.
Fade into the background and allow the facility to do what they are paid to do.
I know that dealing with NH staff and gooofs are so frustrating as I’ve experienced it myself. But I don’t let them get away with it. They will probably be glad to see my dad die so I’ll quit bugging them about the things they let fall through the cracks. Even the billing gets messed up.
anyway, bottom line is, stop going so often, tell your siblings that mom would like them to visit and assign a day.
No one can take advantage of you unless you let them.
My mother, also in a nursing home, has only me to oversee the care she receives, etc. It's not a good time in my life, or hers. I, like you, wish my mother would "fade into her next life" while she is sleeping.
I have to keep in mind that the (woefully underpaid and overworked) staff are just "doing their jobs" -- the over-medication is a direct result of the doctor's instruction. The doc has seen her 2x in 5 months -- and likely makes 20x what most CNAs make. Here's to raising their pay to (at least) $15 per hour, yes?
Best to you.
his mother which is in a nursing home now., but before that he was always
supportive of her making sure she had what she needed, but he was the one
that the other siblings looked down on. Some way , somehow these kinds of people will be rewarded one day.
RE: 8 brothers & sisters: Oftentimes, the parent will choose one child to do everything but don't feel bad, feel flattered. You're the one she wants to be there 24/7 with her as much as for her. And it's common for the parent to prefer the child to assist as opposed to a nurse/stranger, especially with hygiene.
Be angry if you must, but hold your head up high and "lord it over" the other children. Later, after your mother has passed, your siblings will try to cry on your shoulder - and it will be up to you if you allow it. Personally, I told my father and my DH that No One will cry on my shoulders after they each passed. Everyone could have been there with me or even instead of me had they wanted to have quality time while Pop & DH were still here. Lamenting to me after the fact was not an option for me and I cut DH's children from my life. My sisters did try and we still get along great. But I cut Pop's brother from my life too. It allowed me to keep my sanity. Pop's only brother could have done more, even if only calling and the same goes for DH's children. Calling me after they passed? No. I will not grant absolution for their neglect of their LO's.
So a lot of times like right now I get very angry and bitter at my grandmother because she asks me to do everything. But... I get my strength through Jesus Christ. When I received him a couple of months ago he made it even more bearable to deal with her even when I wanted to quit. He has shown me his love and his grace during the whole process even now. I was feeling quite bitter and angry toward her because I had to bed wash her in the morning. But everyday I ask the Jesus Christ to give me strength to make it through and he does! I noticed that she calls on me all the time because she knows that I answer to her and not my siblings. She trusts me more to help her out because I have been around her more than them. Can it be annoying sometimes? Yes! It can lol. But I pray and ask Jesus to help me with my every need because I know this is something that he wants us to do. Pray and tell Jesus how you feel. He listens and understands and when you trust and rely on him he will give you the strength to continue
Question about siblings - you say "My siblings never volunteer to take over some of the tasks but instead want to be asked to do these things." Do they want mom to ask? That may/may not happen. IF this is the issue, you can try gently suggesting she ask for them - over time it might sink in. If they are looking to you to ask, then draw up a list of things they can do to help you and provide it to them. They can choose from that list what they might consider doing. If not, well then join the crowds here who feel like only children. We can't force them to help. We can only realize they won't and try to let the anger, etc go, because your anger doesn't hurt them, it only hurts you.
As others have suggested, perhaps back off visiting or visit at times when she is less likely to need your "help." Brushing teeth should be done after meals, before bed. Don't go then. Laundry? Find out what day the NH does laundry and show up after - then there is no laundry to do! If she "holds" it for you, take it out of the room, but give it to staff, don't take it home. The cost of the facility pays for this.
My two brothers don't really contribute much. One isn't local, but the last time he was here and "visited" he refused to go again saying he "didn't know what to do with her." Mom is in MC, repeats herself often and has bad hearing, even with a hearing aid. I suspect even if he lived closer, he would not visit. Early on trying to manage getting her in-home care, providing supplies when we took the car away, going often and/or calling (1.5 hr drive each way), finding a place for her when she refused to let the aides in, getting her condo cleared out, cleaned up and repaired, while still visiting and managing finances (for her AND the condo), medications (staff doles it out, but it is less expensive to get it via her plan than the 'usual' NH suppliers), supplies the MC doesn't provide, etc became a bit much. 99.9% was on my plate. It took over a year and a half to get the condo on the market. When I told this brother it was all too much, his only response was 'give it up.' Not exactly helpful!! No plan for someone else to take over, no offer to do more, nothing. He is no longer welcome here due to his behavior when last here. YB provides some help, but often it requires multiple pings via phone, text, email to even get a response!
BTW - for all:
Having POA (either medical or financial or both) does NOT mean one has to provide ANY care-giving. POAs grant you the ability to make financial and medical decisions (what and when is determined by the document), pay bills, etc., but it does not require one to provide the actual care (details are unique to each document.) Providing some or all of the care and visiting comes from the heart - the time and care one gives is a personal choice. If one can't or doesn't want to provide any of it, so be it. We cannot change others, only ourselves.